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The Joshua Frase Foundation supports research for myotubular myopathy

The Joshua Frase Foundation supports ongoing research for myotubular myopathy. Help us discover the causes and cures for congenital myopathies.
Categories: Health, General Organizations
Topics: adeno associated virus, centronuclear myopathy, muscle weakness, myotubular myopathy, neuromuscular disease, neuromuscular disorder, striated muscle

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Developing TherapiesTo Transform Lives
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myotubulartrust.org

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myotubulartrust.com

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The Myotubular Trust promotes the relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy


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mtmcnmregistry.org

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