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raredisease.net
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Categories: Shopping/Publications, Health/Conditions and Diseases, Health/Medicine, Health, Business
Topics: iih, sanfilippo syndrome, pouchitis disease activity index, myasthenia gravis, raremark, RareDisease.net

Semrush Rank: 370,624 Facebook Likes: 2,627 Est. Website Worth: $ 1,500
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Sites similar to raremark.com - Top 58 raremark.com alternatives

sanfilippo.org.au

sanfilippo.org.au sanfilippo.org.au           
sanfilippo children's foundation
sanfilippo is a rare genetic condition that causes fatal brain damage. it is a type of childhood dementia and most patients never reach adulthood. but there is hope. researchers around the world are working hard to find effective treatments.

Semrush Rank: 506,146
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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jonahsjustbegun.org

jonahsjustbegun.org jonahsjustbegun.org           
jonah's just begun - curing sanfilippo disease one day at a time
jonah's just begun - curing sanfilippo disease one day at a time

Website Worth: $ 2,100
Categories: Sports, Health and Wellness
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teamsanfilippo.org

teamsanfilippo.org teamsanfilippo.org           
team sanfillipo — parents united to find a cure or treatments
cure sanfilippo, gene therapy, get help for sanfilippo, mps, mps iii, rare diseases, lysosomal disease, and fundraising

Website Worth: $ 600
Categories: Business, Charitable Organizations
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phoenixnestbiotech.com

phoenixnestbiotech.com phoenixnestbiotech.com           
phoenix nest inc.
phoenix nest inc.

Semrush Rank: 927,555
Categories: Business, Business
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stopald.org

stopald.org stopald.org           
the stop ald foundation
the stop ald foundation focuses on accelerating the process of developing new knowledge and new therapies for adrenoleukodystrophy (ald), and works to accelerate implementation of newborn screening for ald. we also educate the medical profession and the public about ald, raising awareness in order to improve detection, diagnosis and treatment. in addition, we serve as a resource to families affected by the condition.

Semrush Rank: 94,573
Categories: Marketing/Merchandising, Health and Wellness
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mpssociety.org

mpssociety.org mpssociety.org           
mps society | support for families. research for a cure.
mps society | support for families. research for a cure.

Facebook ♡: 1,906 Website Worth: $ 135,300
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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ihrfoundation.org

ihrfoundation.org ihrfoundation.org           
welcome to the intracranial hypertension research foundation | formerly called benign intracranial hypertension and pseudotumor cerebri
welcome to the intracranial hypertension research foundation | previously called pseudotumor cerebri and benign intracranial hypertension

Website Worth: $ 100
Categories: Health, Health and Wellness
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iih.org.uk

iih.org.uk iih.org.uk           
welcome to iih uk
the iih uk website is a source of information for iih – idiopathic intracranial hypertension

Website Worth: $ 600
Categories: Web Mail, Health and Wellness
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aldlife.org

aldlife.org aldlife.org           
home - alex - the leukodystrophy charity
home - alex - the leukodystrophy charity

Website Worth: $ 2,100
Categories: Business, Health and Wellness
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curesff.org

curesff.org curesff.org           
cure sanfilippo foundation | accelerating a cure for sanfilippo syndrome
every parents dreams of their child's future. sanfilippo syndrome takes that away and replaces it with pain and suffering before death. cure sanfilippo foundation advocates for and funds research to accelerate discovery of a cure or treatment options for children with sanfilippo syndrome (mps iii).

Semrush Rank: 39,406,583
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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myastheniagravisnews.com

myastheniagravisnews.com myastheniagravisnews.com           
myasthenia gravis news home
the web's daily resource for myasthenia gravis news

Semrush Rank: 83,068
Categories: Health, Health and Wellness
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adrenoleukodystrophy.info

adrenoleukodystrophy.info adrenoleukodystrophy.info           
adrenoleukodystrophy - adrenoleukodystrophy.info
information platform for adrenoleukodystrophy: treatment options, clinical presentations, underlying biochemistry & genetics and the ald mutation database.


Categories: Health, Business
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myastheniagravis.org

myastheniagravis.org myastheniagravis.org           
conquer myasthenia gravis - offering help to myasthenia gravis patients
mg is a neurological disorder. conquer myasthenia gravis is driven by the desire to help mg patients get prompt diagnosis and optimal care.

Semrush Rank: 198,216
Categories: Business, Health and Wellness
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myelin.org

myelin.org myelin.org           
myelin magazine – learn more about the human brain
we are a 501(c)3 international non-profit aimed at funding research into treatments for demyelinating diseases such as ald and amn.

Facebook ♡: 255 Website Worth: $ 123,900
Categories: Health, Health and Wellness
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abbygracefoundation.org

abbygracefoundation.org abbygracefoundation.org           
abby grace foundation - helping find a cure for sanfilippo syndrome
helping find a cure for sanfilippo syndrome

Semrush Rank: 4,880,457
Categories: Health, Health and Wellness
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mpssociety.org.uk

mpssociety.org.uk mpssociety.org.uk           
mps society | support for mps, fabry and related diseases in the united kingdom
the society for mucopolysaccharide diseases (mps society) provides professional support to individuals and families affected by mps, fabry and related lysosomal storage diseases. contact our helpline monday-friday 9-5pm on 0345 389 9901 or email us at [email protected]


Categories: Business, Health and Wellness
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xperiome.com

xperiome.com xperiome.com           
get to know rare disease patients
match research-ready members to clinical and real-world studies, faster and smarter than ever before through our data-driven knowledge bank of the rare experience.

Semrush Rank: 14,717,306
Categories: Business, Business
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ulf.org

ulf.org ulf.org           
home | united leukodystrophy foundation
september 14, 2021 “unlock ctx” partipate in a patient-focuseddrug development meeting learn more previous next who we are the united leukodystrophy foundation (ulf), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals. the foundation is located in … home read more »

Website Worth: $ 5,100
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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hemophilianewstoday.com

hemophilianewstoday.com hemophilianewstoday.com           
hemophilia news today home - hemophilia news today
the web's daily resource for hemophilia news

Semrush Rank: 63,570 Website Worth: $ 1,300
Categories: Health, Health and Wellness
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myaware.org

myaware.org myaware.org           
myaware
myaware is the only charity in the uk dedicated solely to the care and support of people affected by myasthenia.

Semrush Rank: 292,693
Categories: Business, Health and Wellness
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myasthenia.org

myasthenia.org myasthenia.org           
myasthenia gravis foundation of america (mgfa)
the myasthenia gravis foundation of america (mgfa) works to raise awareness for and support those living with myasthenia gravis (mg).

Facebook ♡: 703 Website Worth: $ 20,800
Categories: Health, Health and Wellness
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matthewandandrew.org

matthewandandrew.org matthewandandrew.org           
matthew & andrew - hlh | hemophagocytic lymphohistiocytosis | 700 miles to hope
matthew & andrew - hlh | hemophagocytic lymphohistiocytosis | 700 miles to hope

Facebook ♡: 3 Website Worth: $ 2,600
Categories: Marketing/Merchandising, Health and Wellness
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fabrydisease.org

fabrydisease.org fabrydisease.org           
sucuri website firewall - access denied
sucuri website firewall - access denied

Semrush Rank: 718,133
Categories: Business, Health and Wellness
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northcrossing.com

northcrossing.com northcrossing.com           
the northcrossing
a meeting point of many different roads, all for one purpose: to help.

Semrush Rank: 59,627,194
Categories: Blogs/Wiki, Health and Wellness
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hlhsupport.org

hlhsupport.org hlhsupport.org           
what is hlh?
what is hlh?

Semrush Rank: 1,626,463
Categories: Health, Health and Wellness
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hemophilia.ca

hemophilia.ca hemophilia.ca           
canadian hemophilia society - help stop the bleeding
statement - chs reacts to health canada decision on relaxing donor selection criteria click here to read the full statement.     learn more chs 2022 agm may 8, 2022 at 1:00 p.m. (edt). the meeting will be held in hybrid mode.

Facebook ♡: 49 Website Worth: $ 908,100
Categories: Health, Health and Wellness
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globalgenes.org

globalgenes.org globalgenes.org           
allies in rare disease - global genes
global genes is committed to providing information, resources and connections to all communities affected by rare disease.

Semrush Rank: 228,321 Facebook ♡: 3,785 Website Worth: $ 6,800
Categories: Health/Conditions and Diseases, Health/Child Health, Business/Biotechnology and Pharmaceuticals, Business, General Organizations
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cysticfibrosisnewstoday.com

cysticfibrosisnewstoday.com cysticfibrosisnewstoday.com           
cystic fibrosis news today home - cystic fibrosis news today
your online resource for the latest cf news

Semrush Rank: 76,192 Website Worth: $ 1,900
Categories: General News, Health and Wellness
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allabouthae.com

allabouthae.com allabouthae.com           
all about hae
learn all about identifying and treating hereditary angioedema (hae), a rare disease that causes swelling anywhere in the body. attacks can be painful and, in some cases, lifethreatening. symptoms often include hand or foot swelling, stomach pain, or swelling in the throat.

Website Worth: $ 5,900
Categories: Marketing/Merchandising, Health and Wellness
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pediatricbrainfoundation.org

pediatricbrainfoundation.org pediatricbrainfoundation.org           
pediatric brain foundation
pediatric brain foundation (pbf) is very proud to be supporting and providing financial support for families of children with neurological disorders. pbf provides the most comprehensive site available for the discussion of medical and physical therapies for the treatment of brain-injured children for parents and physicians.

Semrush Rank: 1,812,337
Categories: Health, Health and Wellness
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myasthenia-ca.org

myasthenia-ca.org myasthenia-ca.org           
myasthenia gravis foundation of california |
myasthenia gravis foundation of california |

Semrush Rank: 5,523,016
Categories: Health, Health and Wellness
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mghope.org

mghope.org mghope.org           
myasthenia gravis - myasthenia gravis hope foundation
offering emergency resources, advocacy, support and education for myasthenia gravis. it is our focus to walk with patients and families every step of the way.


Categories: Blogs/Wiki, Information Technology
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mgakc.org

mgakc.org mgakc.org           
home

Semrush Rank: 2,680,549
Categories: Business, Health and Wellness
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fightald.org

fightald.org fightald.org           
index
fighting illness through education

Website Worth: $ 2,100
Categories: Education/Reference, Society and Lifestyles
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biomarin.com

biomarin.com biomarin.com           
biomarin pharmaceutical inc.
biomarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.

Facebook ♡: 0 Website Worth: $ 6,600
Categories: Health, Business
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alexionpharma.com

alexionpharma.com alexionpharma.com           
alexion
alexion is a global biopharmaceutical company focused on developing life-changing therapies for people living with rare disorders.

Facebook ♡: 0 Website Worth: $ 7,000
Categories: Business, Health and Wellness
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rochestercolon.com

rochestercolon.com rochestercolon.com           
rochester colon & rectal surgeons in rochester, ny
rochester colon-rectal surgeons is a group of colorectal specialists specializing in the treatment of tumors of the colon, diverticulitis and crohn's disease

Website Worth: $ 3,000
Categories: Marketing/Merchandising, Health and Wellness
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mps1disease.com

mps1disease.com mps1disease.com           
gateway page
gateway page

Semrush Rank: 893,800
Categories: Health, Health and Wellness
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leukodystrophyresourceresearch.org

leukodystrophyresourceresearch.org leukodystrophyresourceresearch.org           

Semrush Rank: 5,108,220
Categories: Health, Health and Wellness
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j-pouch.org

j-pouch.org j-pouch.org           
topics | the j-pouch group
topics | the j-pouch group

Website Worth: $ 2,100
Categories: Health, Health and Wellness
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huntershope.org

huntershope.org huntershope.org           
leukodystrophy & krabbe newborn screening awareness | hunter's hope
hunter's hope foundation is a non-profit organization committed to family and medical care for those affected by leukodystrophy and newborn screening. visit our site for more information.

Facebook ♡: 483 Website Worth: $ 35,500
Categories: Education/Reference, Health and Wellness
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cysticfibrosis.org.uk

cysticfibrosis.org.uk cysticfibrosis.org.uk           
cystic fibrosis trust homepage | cf trust
cystic fibrosis trust homepage | cf trust

Facebook ♡: 0 Website Worth: $ 9,300
Categories: Marketing/Merchandising, Health and Wellness
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cystic-fibrosis.com

cystic-fibrosis.com cystic-fibrosis.com           
cystic fibrosis health info & community
learn about cystic fibrosis including symptoms, diagnosis, treatment, patient stories, & more from a cystic fibrosis community perspective.

Semrush Rank: 128,924 Facebook ♡: 366 Website Worth: $ 10,600
Categories: Advertising
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bluebirdbio.com

bluebirdbio.com bluebirdbio.com           
bluebird bio | pioneering gene therapies | recode for life
bluebird bio | pioneering gene therapies | recode for life

Facebook ♡: 0 Website Worth: $ 6,200
Categories: Business, Health and Wellness
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mg-mi.org

mg-mi.org mg-mi.org           
myasthenia gravis foundation of michigan
myasthenia gravis foundation of michigan is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.

Semrush Rank: 1,427,704
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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ihaveiih.com

ihaveiih.com ihaveiih.com           
blog | power up brain energy
blog | power up brain energy

Website Worth: $ 2,600
Categories: Marketing/Merchandising, Health and Wellness
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haemophilia.org.au

haemophilia.org.au haemophilia.org.au           
haemophilia foundation australia
haemophilia foundation australia homepage. information on inherited bleeding disorders, eg haemophilia, hemophilia, von willebrand disorder, disease

Semrush Rank: 1,402,020
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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raredr.com

raredr.com raredr.com           

Semrush Rank: 8,601,061 Facebook ♡: 576 Website Worth: $ 1,080,001,600
Categories: Marketing/Merchandising, Health and Wellness
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hemophiliafed.org

hemophiliafed.org hemophiliafed.org           
website security - access denied
website security - access denied


Categories: Health, Health and Wellness
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everylifefoundation.org

everylifefoundation.org everylifefoundation.org           
sucuri website firewall - access denied
sucuri website firewall - access denied

Website Worth: $ 2,100
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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cysticfibrosis.ca

cysticfibrosis.ca cysticfibrosis.ca           
cystic fibrosis canada
cystic fibrosis canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (cf). we invest more in life-saving cf research and care than any other non-governmental agency in canada.

Facebook ♡: 1,217 Website Worth: $ 1,080,000,800
Categories: Health, Health and Wellness
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sanfilipponews.com

sanfilipponews.com sanfilipponews.com           
sanfilippo news home
the web's daily resource for sanfilippo syndrome news

Semrush Rank: 1,592,882
Categories: Health, Health and Wellness
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ihaveiih.org

ihaveiih.org ihaveiih.org           
directory of wholesale companies and dropship suppliers | salehoo
wholesale supplier directory: search 8000+ verified wholesale and dropship companies for low-cost product sourcing. especially designed for ebay and amazon sellers! salehoo is the most trusted dropshipping portal on the web since 2005. helping thousands of people start and grow their online stores through our actionable guides, tutorials, active community forum, market research tools, and massive list of verified low-cost suppliers.

Website Worth: $ 100
Categories: Information Technology
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haemophilia.org.nz

haemophilia.org.nz haemophilia.org.nz           
haemophilia foundation | bleeding disorders | haemophilia foundation of new zealand inc.
hfnz supports and represents people and families suffering from haemophilia and other related bleeding disorders. find out more about our foundation here!

Website Worth: $ 2,100
Categories: Health, Health and Wellness
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clarahealth.com

clarahealth.com clarahealth.com           
clara: access new treatments with personalized support
clinical studies represent the latest research about your condition, and can offer access to new therapy options years before they’re available commercially.

Semrush Rank: 508,771 Website Worth: $ 2,300
Categories: Health, Information Technology
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adrenoleukodystrophynews.com

adrenoleukodystrophynews.com adrenoleukodystrophynews.com           
adrenoleukodystrophy news home
no description.

Semrush Rank: 469,377
Categories: Health, Health and Wellness
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sicklecellanemianews.com

sicklecellanemianews.com sicklecellanemianews.com           
sickle cell disease news home
the web's daily resource for sickle cell disease news

Semrush Rank: 84,594 Website Worth: $ 1,700
Categories: Internet Services, Health and Wellness
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livingwithhemophilia.ca

livingwithhemophilia.ca livingwithhemophilia.ca           
Aim Higher. Life is what you make of it
Hear how people with hemophilia are realizing their potential, regardless of their condition

Semrush Rank: 43,130,480
Categories: Marketing/Merchandising, Health and Wellness
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