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Dravet Syndrome European Federation

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Dravet Syndrome European Federation (DSEF) is a non-profit organisation, a federation of European organisations, active in the field of Dravet Syndrome and driven by patients and patients’ caregivers. Together we have built a strong European community of people living with Dravet Syndrome. We are this community’s voice and, directly or indirectly, we fight against the impact of Dravet Syndrome.

Categories: Health, Business
Topics: dravet syndrome european federation, dsef, epilepsy, evere myoclonic epilepsy of infancy, non-profit organisation, people living with dravet syndrome, sindrome di dravet europa

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dravet.eu
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dravet-syndrome.com dravet-syndrome.com           
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dravet.de

dravet.de dravet.de           
Home - DRAVET HOME
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Wir sind eine Selbsthilfegruppe betroffener Eltern, die diesen Verein im Januar 2012 gegründet haben. Vorrangig stehen wir Eltern und Betroffenen, aber auch allen Interessierten zur Verfügung.
Alle Informationen auf unserer Homepage sollen Ihnen


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