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ERKNet: ERKNet

The European Rare Kidney Disease Reference Network
Categories: Health, Health and Wellness
Topics: c3 glomerulopathy ppt, ecrd, ecrd 2020, erk to php, hcp mailing list

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erknet.org
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atypicalhus.co.uk

atypicalhus.co.uk atypicalhus.co.uk           
Atypical Haemolytic Uraemic Syndrome (aHus) & Eculizumab
National Renal Complement Therapeutics Centre (NRCTC) Specialise In Atypical Haemolytic Uraemic Syndrome (aHUS), Eculizumab, C3 Glomerulopathy (C3G) & MPGN.


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vascern.eu

vascern.eu vascern.eu           
VASCERN - The European Reference Network on Rare Multisystemic Vascular Diseases
VASCERN - The European Reference Network on Rare Multisystemic Vascular Diseases

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wec3g.com

wec3g.com wec3g.com           
WeC3G.com
Learn about C3G & a community of people connecting to each other and to information, support, & resources focused on patients and caregivers living with & managing this rare, chronic disease affecting the kidneys. Register TODAY!

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rarerenal.org

rarerenal.org rarerenal.org           
Rare Renal | The UK Kidney Association
*Please click here to see the latest RaDaR Research It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 30 different rare renal conditions and their current activity such as patient support groups

Moz DA: 32 Moz Rank: 3.4 Facebook ♡: 438
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tsdev.org

tsdev.org tsdev.org           
Tuberöse Sklerose Deutschland e.V. - Tuberöse Sklerose Deutschland e.V.
Tuberöse Sklerose Deutschland Österreich Schweiz Selbsthilfegruppe


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earlinet.org

earlinet.org earlinet.org           
EARLINET
EARLINET

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cystaran.com

cystaran.com cystaran.com           
Cystaran Eyedrops for Cystinosis | Treat Crystals in Eye
Learn about the causes and symptoms of cystinosis, why eyedrop treatment may be needed to treat crystals in the eyes, and download the Cystaran voucher.

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endo-ern.eu

endo-ern.eu endo-ern.eu           
Endo-ERN | European Reference Network on Rare Endocrine Conditions
Endo-ERN , European Reference Network on Rare Endocrine Conditions, European Reference Network on Rare Endocrine Conditions. Endo-ERN’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine disorders in Europe, through facilitating knowledge sharing and facilitating related healthcare and research.

Moz DA: 31 Moz Rank: 3.4 Semrush Rank: 2,408,764 Facebook ♡: 159
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sedimental.com

sedimental.com sedimental.com           
Sedimental Records
Sedimental Records


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rare-liver.eu

rare-liver.eu rare-liver.eu           
Home / rare-liver.eu
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cystinosis.org.uk

cystinosis.org.uk cystinosis.org.uk           
Cystinosis Foundation UK | For a brighter future…
Cystinosis Foundation UK | For a brighter future…

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ern-lung.eu

ern-lung.eu ern-lung.eu           
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG #ERNcare4Ua ERN-LUNG is deeply concerned over the devastating situation and catastrophic crisis which is currently taking place in the Ukraine. Learn more WE CARE ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient

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rare-diseases.eu

rare-diseases.eu rare-diseases.eu           
European Conference on Rare Diseases - ECRD2022
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

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eurodig.org

eurodig.org eurodig.org           
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xlhnetwork.org xlhnetwork.org           
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monitoringris.org

monitoringris.org monitoringris.org           
Mainstreaming Ageing
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nephromeet.com

nephromeet.com nephromeet.com           


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kansascitynova.org kansascitynova.org           
KC NoVA - Home Page
KC NoVA - Home Page

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renepolicistico.it renepolicistico.it           
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Associazione Italiana Rene Policistico

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espn-online.org

espn-online.org espn-online.org           
ESPN – European Society for Paediatric Nephrology
ESPN - European Society for Paediatric Nephrology

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rarediseasesinternational.org

rarediseasesinternational.org rarediseasesinternational.org           
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Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.


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patienten-bibliothek.org

patienten-bibliothek.org patienten-bibliothek.org           
Patienten-Bibliothek gGmbH - Patienten-Bibliothek
Zeitschriften und Ratgeber der Patienten-Bibliothek® sind im Text immer frei von Werbung, werden von Ärzten überprüft und von der jeweiligen Patientenorganisation freigegeben und dienen zur Information und im Idealfall zur optimalen Vorbereitung des Arzt- Patientengespräch.

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chikd.org

chikd.org chikd.org           
Child Kidney Dis, Childhood Kindey Diseases
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airg-france.fr airg-france.fr           
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filiereorkid.com filiereorkid.com           
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esjindex.org esjindex.org           
Eurasian Scientific Journal Index
Eurasian Scientific Journal Index


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dialyse-kiel.de dialyse-kiel.de           
Praxis am Sophienhof - Nephrologie, Dialyse und Hypertonie - Kiel
Dialyse und Diagnostik und Behandlung bei Nierenerkrankungen und Bluthochdruck sind Schwerpunkte von Dr. Bellersen, Dr. Hedke und Dr. Steinbach in der Praxis am Sophienhof in Kiel.

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ultrarareadvocacy.com

ultrarareadvocacy.com ultrarareadvocacy.com           
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solcavsko.info solcavsko.info           
Domov - Logarska Solčavsko


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epikurier.de

epikurier.de epikurier.de           
Epikurier: HOME
Informationen und Unterstützung für von Epilepsie Betroffenen und aller anderen Menschen, die persönlich, therapeutisch, beruflich etc. mit uns in Berührung kommen.

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architecturalpapers.ch

architecturalpapers.ch architecturalpapers.ch           
dAP


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goodtidings.org

goodtidings.org goodtidings.org           
Home - Good Tidings
Home - Good Tidings


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nephrocare.it

nephrocare.it nephrocare.it           
Nephrocare - Centri Dialisi in tutta Italia - Servizi per il Paziente
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ecqa.org

ecqa.org ecqa.org           
Home
 

 

 

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pkdcure.de

pkdcure.de pkdcure.de           
Startseite - PKD Familiäre Zystennieren e.V.
Zystennieren - wie bitte?

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xlhlink.com

xlhlink.com xlhlink.com           
Soft and weak bones? Have you heard of X-linked hypophosphatemia (XLH)? Learn more about this disease and its symptoms.
XLHLink is dedicated to providing education and support services for XLH (X-linked hypophosphatemia). Learn about the symptoms of and disease management for this rare skeletal disorder.

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ern-rnd.eu

ern-rnd.eu ern-rnd.eu           
ERN-RND | European Reference Network on Rare Neurological Diseases – for rare or low prevalence complex diseases
ERN-RND | European Reference Network on Rare Neurological Diseases - for rare or low prevalence complex diseases

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erk-systems.com

erk-systems.com erk-systems.com           
Home | ERK Energy Systems
ERK Eckrohrkessel GmbH grants licenses to manufacturers and engineering companies for the production of corner tube systems, without any geographical restrictions; these licenses can be expanded to include fuel engineering ( fluidised bed, two-stage combustion) systems.

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metabolicsupportuk.org

metabolicsupportuk.org metabolicsupportuk.org           
Home - Metabolic Support UK
Metabolic Support UK is the leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients and families worldwide.

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apellis.com

apellis.com apellis.com           
Official Home Page of the Apellis Pharmaceuticals Corporate Site | Apellis Pharmaceuticals
Apellis is a global biopharmaceutical company that develops life-changing therapies. By pioneering targeted C3 therapies, we aim to treat diseases that are driven by excessive activation of the complement cascade, including those within hematology, ophthalmology, and nephrology.

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cystinosisresearch.org

cystinosisresearch.org cystinosisresearch.org           
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eurogen-ern.eu

eurogen-ern.eu eurogen-ern.eu           
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European Reference Network (ERN) for rare and complex urogenital diseases and conditions

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arkanalabs.com

arkanalabs.com arkanalabs.com           
Arkana Laboratories | Center for Esoteric Pathology
Arkana Laboratories is a center for esoteric pathology. We interpret the largest number of renal biopsies in the U.S. at 23,000+ annually.

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ern-cranio.eu

ern-cranio.eu ern-cranio.eu           
Home | ERN CRANIO website
ERN CRANIO is a European Reference Network for rare and/or complex craniofacial anomalies, and Ear, Nose, and Throat (ENT) disorders. Experts from hospitals in Europe are connected to this network. We cover a wide range of conditions, including craniosynostosis (isolated & syndromic), craniofacial anomalies (such as craniofacial microsomia, Treacher Collins, Pierre Robin Sequence), cleft lip and palate, orodental anomalies and ENT disorders.

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eurobloodnet.eu

eurobloodnet.eu eurobloodnet.eu           
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ern-net.eu

ern-net.eu ern-net.eu           
user's Blog! | Just another WordPress site
user's Blog! | Just another WordPress site

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nephropathol.com nephropathol.com           
Home | Journal of Nephropathology


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kindernetzwerk.de

kindernetzwerk.de kindernetzwerk.de           
Das Kindernetzwerk ist der Dachverband der Selbsthilfe von Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen.
Das Kindernetzwerk ist der Dachverband der Selbsthilfe von Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen.


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isr-tkd.com-搜狗百度很好的玉米-聚米城聚好米
搜狗百度很好的玉米,爱玉米,不只是看米,也尝试用米,踏上玉米之旅,努力将旅途中的风景分享,与其感慨路难行,不如马上出发一起前进吧!寻域名-聚米城,应有尽有,为您的*务提供了广阔的选择空间,以满足您的个性化需求,选择聚米城,让您的品牌与众不同,赢得市场竞争的优势!


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epomm.eu epomm.eu           
EPOMM - the European Platform on Mobility Management | EPOMM
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pkdinternational.org

pkdinternational.org pkdinternational.org           
Home - PKD International
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giornaleitalianodinefrologia.it giornaleitalianodinefrologia.it           
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Herzlich willkommen beim urology.guide
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