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Advances in ME/CFS


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Sites similar to jaxmecfs.com - Top 33 jaxmecfs.com alternatives

microbediscovery.org

microbediscovery.org microbediscovery.org           
StackPath
StackPath



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me-cfs.cz

me-cfs.cz me-cfs.cz           
Chronický únavový syndrom
Syndrom chronické únavy - Informace o ME/CFS


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mecfs.org.au

mecfs.org.au mecfs.org.au           
ME/CFS Australia Ltd
A national perspective for Myalgic Encephalomyelitis ME/CFS Australia is a registered charity with a key goal of influencing national health care decision makers to improve the care & treatment of people with ME/CFS. Solving the Puzzle of ME/CFS Myalgic Encepha



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cfsknowledgecenter.com

cfsknowledgecenter.com cfsknowledgecenter.com           
cfsKnowledge Center (ME/CFS) - Chronic Fatigue Syndrome (ME/CFS), an open access website to provide information for those around the world who are affected by (ME/CFS). Powered by: People Like You.
Chronic Fatigue Syndrome (ME/CFS), an open access website to provide information for those around the world who are affected by (ME/CFS). Powered by: People Like You.



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azitrainc.com

azitrainc.com azitrainc.com           
Home - Azitra


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meauckland.org.nz

meauckland.org.nz meauckland.org.nz           
ME Auckland
ME Auckland


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anzmes.org.nz

anzmes.org.nz anzmes.org.nz           
ANZMES
The Associated New Zealand ME Society


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mecfssa.org

mecfssa.org mecfssa.org           
The ME CFS Foundation South Africa - ME/CFS Advocacy, Counselling
The ME CFS Foundation South Africa - ME/CFS Advocacy, Counselling


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batemanhornecenter.org

batemanhornecenter.org batemanhornecenter.org           
Bateman Horne Center - Research | Clinical Care | Education
Improving the lives impacted by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), post-viral syndromes, and related comorbidities.


Semrush Rank: 1,134,922 Facebook ♡: 1,415
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me-cfs.eu

me-cfs.eu me-cfs.eu           
Magazín Heroine: Svou nemoc jsme si nevymysleli
Autor: Paní Hana – pro magazín Heroine
Vydáno: 31. 3. 2021 (Heroine)
Převzato: 9. 6. 2021 (Klub ME/CFS CZ)



Únava a vyčerpání jsou běžnou součástí života. Většině z nás stačí pořádně se vyspat, odpočinout si. Ale ne všem. Lidé trpící chronickým únavovým syndromem musí kromě své nemoci bojovat i s nepochopením lékařů a nálepkou lenocha.

V médiích se čím dál častěji mluví o postcovidových symptomech, které alespoň na první pohled (více dat zatím nemáme) připomínají myalgickou encephalomyelitidu (ME) neboli chronický únavový syndrom (CFS). Pozitivní zprávou pro nemocné je to, že při Fakultní nemocnici Hradec Králové vzniklo první odborné postcovidové centrum. Někteří lékaři to ovšem považují za zbytečné. Například podle Hany Roháčové, primářky ve Fakultní nemocnici Bulovka, dlouhým covidem trpí lidé, kteří mají predispozice k psychosomatickým potížím. Pro Hospodářské noviny Roháčová řekla: „Budou je mít léta a budou jimi trpět, protože si budou myslet, že je to po covidu. Stávalo se to i u jiných onemocnění.“ Je mi velice líto všech těchto lidí, které budou lékaři přesvědčovat, že je to „jenom v jejich hlavě“. Případná úzkostlivost těchto pacientů je ve skutečnosti často způsobena právě tím, že jsou svým potížím vydáni napospas, že se jim od zdravotnického systému nedostane opory a informací.



S covidem naštěstí osobní zkušenost nemám. Zato chronickým únavovým syndromem trpím už osm let. Správně diagno­stikován mi byl přede dvěma lety. Před tím jsem navštívila spoustu lékařů a byla jsem vždy odkázána na psychiatra. Duševně jsem se cítila v pořádku. Ale nikdo mi nevěřil.

V roce 2012 jsem přivedla na svět dceru. Byl to přirozený porod, ale trval 31 hodin. Sáhla jsem si na absolutní dno a nedokázala jsem se odrazit. Byla jsem unavená, nemohla jsem spát. Moje okolí přijalo závažnost mého zdravotního stavu až po několika týdnech, kdy se u mě začala spouštět poporodní deprese. Manžel, rodiče i kamarádka mi začali hodně pomáhat a mně se dostalo spánku, kte


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mecfsnsw.org.au

mecfsnsw.org.au mecfsnsw.org.au           




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lost-voices-stiftung.org

lost-voices-stiftung.org lost-voices-stiftung.org           
lost-voices-stiftung.org | Hilfe für Menschen mit ME/CFS
lost-voices-stiftung.org | Hilfe für Menschen mit ME/CFS


Facebook ♡: 44
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meaustralia.net

meaustralia.net meaustralia.net           
ME Australia - Championing change: advocacy | news | collaboration
ME Australia - Championing change: advocacy | news | collaboration


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mefm.bc.ca

mefm.bc.ca mefm.bc.ca           
Home | MEFM SOCIETY OF BC
The ME|FM Society of BC is a charity formed to help and support patients with Myalgic Encephalomyelitis (ME) andor Fibromyalgia (FM).


Semrush Rank: 7,198,757
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ecch.org

ecch.org ecch.org           
East Coast Community Healthcare CIC | ECCH
East Coast Community Healthcare (ECCH) is a social enterprise providing NHS community health and social care services across Norfolk and Suffolk.


Semrush Rank: 1,331,628 Facebook ♡: 458
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meadvocacy.org

meadvocacy.org meadvocacy.org           
Home - MEadvocacy.org
Your source for advocacy information and actions for ME


Semrush Rank: 2,529,738
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s4me.info

s4me.info s4me.info           
Science for ME
A forum where Science and the ME/CFS Community Meet



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mecfs.de

mecfs.de mecfs.de           
Start — Deutsche Gesellschaft für ME/CFS
Informationen über die Myalgische Enzephalomyelitis bzw. das Chronische Fatigue-Syndrom und die Arbeit der Deutschen Gesellschaft für ME/CFS.
Review of the topic. Clinical descriptions of chronic fatigue syndrome (CFS) vary. Different groups have produced sets of diagnostic criteria that share many similarities. The biggest differences between criteria are whether post-exertional malaise (PEM) is required, and the number of symptoms needed. Aspects of the condition are controversial, with disagreements over etiology, pathophysiology, treatment and naming between medical practitioners, researchers, patients and advocacy groups. Furthermore, diagnosing CFS can be difficult due to several factors, including lack of a standard test and non-specific symptoms.


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solvecfs.org

solvecfs.org solvecfs.org           
Home - Solve ME/CFS Initiative
Solve M.E. is a non-profit org focused on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases.


Moz DA: 54 Moz Rank: 4.8 Semrush Rank: 273,458 Facebook ♡: 107
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masscfids.org

masscfids.org masscfids.org           
Home
Massachusetts CFIDS/ME & FM Association



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investinme.org

investinme.org investinme.org           
Invest in ME Research - Redirect
Invest in ME Research - Redirect index.shtml


Moz DA: 44 Moz Rank: 3.9 Semrush Rank: 4,425,313
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iacfsme.org

iacfsme.org iacfsme.org           
Home - International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME)
IACFS/ME is dedicated to the research of people affected by myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), fibromyalgia, and other related conditions.



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meresearch.org.uk

meresearch.org.uk meresearch.org.uk           



Moz DA: 51 Moz Rank: 3.9 Semrush Rank: 1,006,315 Facebook ♡: 217
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ammes.org

ammes.org ammes.org           
American ME and CFS Society
American ME and CFS Society


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cfshealth.com

cfshealth.com cfshealth.com           
CFS Health
Help for people with M.E/Chronic Fatigue Syndrome, Fibromyalgia, POTS and Post Viral Fatigue who want to get better, improve their health and quality of life.


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simmaronresearch.com

simmaronresearch.com simmaronresearch.com           
Simmaron Research
Simmaron Research plays a key role in developing scientific research to
improve diagnosis, treatment and medical understanding of CFS/ME and other
neuroimmune diseases.


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meaction.net

meaction.net meaction.net           
Home - #MEAction Network
we’re IGNITING A GLOBAL REVOLUTION IN ME CARE Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have support and access to compassionate and effective care. JOIN US What is ME? Myalgic encephalomyelitis (ME), commonly known as chronic fatigue syndrome (CFS) or ME/CFS, is a … Home Read More »


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gehennom.org

gehennom.org gehennom.org           
gehennom.org
gehennom.org



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cfstreatmentguide.com

cfstreatmentguide.com cfstreatmentguide.com           
CFS Treatment Guide
Comprehensive information on treating and managing Chronic Fatigue Syndrome


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omf.ngo

omf.ngo omf.ngo           
Home - Open Medicine Foundation
Open Medicine Foundation leads the largest nonprofit effort to cure ME/CFS and related diseases such as Long COVID, Fibromyalgia and Lyme.


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meassociation.org.uk

meassociation.org.uk meassociation.org.uk           
The ME Association
We support, inform, campaign, and invest in biomedical research for people in the UK with the neurological disease known as ME/CFS,


Semrush Rank: 406,201 Facebook ♡: 1,978
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fourwav.es

fourwav.es fourwav.es           
Not Found
Not Found


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emerge.org.au

emerge.org.au emerge.org.au           
Emerge Australia
National Australian not-for-profit organisation for information, support and advocacy about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).


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