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Little Miss Hannah Foundation — Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

The Little Miss Hannah Foundation's mission to work with Nevada families who have young children with life-limiting rare diseases, undiagnosed complex medical needs, and terminally diagnosed children who have been placed in hospice or palliative care. LMHF is a strong advocate for the childhood rare disease community. LMHF will host workshops on medical record management, media awareness opportunities, using social media to reach out for support, and finding the right information about your child’s condition. We work to provide educational and emotional support groups for all members of the family as well as providing fun, family-focused and sibling-focused events and activities.
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
Topics: abigail's angels, advocacy, bereavement parents, children support groups, children's rare disease, critically ill children, life-limiting, little miss hannah, or complex medically conditions. childhood rare disease advocacy, rare disease, sibling, terminally ill child

littlemisshannah.org
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