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つくしの会

「つくしの会」は、軟骨無形成症の患者と家族の会です。『軟骨無形成症の現実と未来を考える』との基本姿勢のもと、この病気に関するさまざまな問題をともに考え、多様な取り組みや利用できる制度などについて、総合的に取り上げたサイトです。

Categories: Health, Health and Wellness
Topics: つくしの会, 軟骨無形成症患者・家族の会

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achondro.net
つくしんぼ－軟骨無形成症と骨疾患低身長の会
つくしんぼ－軟骨無形成症と骨疾患低身長の会

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club-bone.jp
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sagaseishi.jp
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skyclinic.jp
スカイ整形外科クリニック｜小児整形外科・手の外科・リウマチ・骨延長・骨変形矯正｜大阪・茨木・整形外科・日曜・祝日・救急
当クリニックは大阪の茨木市駅から直結しているビルの１Fにあります整形外科専門の有床クリニックです。一般整形をはじめ、小児整形・手の外科・リウマチ・イリザロフ手術（骨延長・骨変形矯正）などを行っております。平日は夜8時まで・土曜も診療しております。64歳以下の方のワクチン接種のお申し込み開始しております。保険と自費の新型コロナウイルスのPCR検査・ワクチン接種後の抗体検査を行っております。ハワイ・中国渡航の際の指定医療機関に登録されております。

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jcrgh.com
成長ホルモン治療情報サイト | JCRファーマ株式会社
子どもの成長ホルモン治療についてJCRファーマ株式会社が情報提供するサイト。

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meidai-seikei.jp
名古屋大学大学院医学系研究科総合医学専攻運動・形態外科学整形外科学/リウマチ学
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raddarj.org
難病プラットフォーム - Rare Disease Data Registry of Japan
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sapporo-childrendo.com
札幌　低身長　甲状腺　糖尿などの小児内分泌疾患｜さっぽろ小児内分泌クリニック
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