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ArmaGen Technologies-Enabling Biotechnology for the Brain

ArmaGen Technologies-Enabling Biotechnology for the Brain
Categories: Business, Health and Wellness

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sockit2huntersyndrome.org

sockit2huntersyndrome.org sockit2huntersyndrome.org           
Home | Sock-it 2 Hunter Syndrome
Home | Sock-it 2 Hunter Syndrome

Semrush Rank: 33,922,632

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projectalive.org

projectalive.org projectalive.org           
Home Page - Project Alive
We Believe a Cure Is Within Reach Hunter Syndrome (MPS II) is a rare genetic disease that affects less than 500 boys in the United States. These boys are missing an enzyme used to break down cellular waste. When that waste builds up, it leads to progressive damage throughout their little bodies. Some never develop speech, … Continue reading "Home Page"

Semrush Rank: 1,748,072

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curesff.org

curesff.org curesff.org           
Cure Sanfilippo Foundation | Accelerating a cure for Sanfilippo Syndrome
Every parents dreams of their child's future. Sanfilippo Syndrome takes that away and replaces it with pain and suffering before death. Cure Sanfilippo Foundation advocates for and funds research to accelerate discovery of a cure or treatment options for children with Sanfilippo Syndrome (MPS III).

Semrush Rank: 39,406,583
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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mpssociety.org

mpssociety.org mpssociety.org           
National MPS Society - We Help Cure, Support, & Advocate for MPS & ML
We support life-saving research for mucopolysaccharidosis (MPS) & mucolipidosis (ML), and we provide community resources, support, & more.

Moz DA: 52 Moz Rank: 4.6 Semrush Rank: 344,755 Facebook ♡: 1,906
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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jonahsjustbegun.org

jonahsjustbegun.org jonahsjustbegun.org           
Jonah's Just Begun - Curing SanFilippo Disease One Day at a Time
Jonah's Just Begun - Curing SanFilippo Disease One Day at a Time


Categories: Sports, Health and Wellness
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mpssociety.org.uk

mpssociety.org.uk mpssociety.org.uk           
MPS Society | Support for MPS, Fabry and related diseases in the United Kingdom
The Society for Mucopolysaccharide Diseases (MPS Society) provides professional support to individuals and families affected by MPS, Fabry and related lysosomal storage diseases. Contact our helpline Monday-Friday 9-5pm on 0345 389 9901 or email us at [email protected]


Categories: Business, Health and Wellness
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mps1disease.com

mps1disease.com mps1disease.com           
Gateway Page
Gateway Page

Semrush Rank: 893,800
Categories: Health, Health and Wellness
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sanfilippo.org.au

sanfilippo.org.au sanfilippo.org.au           
Sanfilippo Children's Foundation
Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. But there is hope. Researchers around the world are working hard to find effective treatments.

Semrush Rank: 506,146
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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abzena.com

abzena.com abzena.com           
Home Page - Abzena
Home Page - Abzena

Semrush Rank: 663,051
Categories: Business, Health and Wellness
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orphananesthesia.eu

orphananesthesia.eu orphananesthesia.eu           
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"OrphanAnesthesia" will prepare and publish concise recommendations for anesthesiologists as well as patients to help in planning and performing anesthesia in patients suffering from rare diseases. These recommendations will be peer reviewed readily accessible and reflect the best evidence available. Furthermore "Orphananesthesia" will provide a platform for discussion. "OrphanAnesthesia“ hat die Veröffentlichung von Handlungsempfehlungen zur anästhesiologischen Betreuung von Patienten mit seltenen Erkrankungen zum Ziel. Die einzelnen Beiträge sollen in kurzer, prägnanter Form Informationen für Anästhesisten zur Planung und Durchführung von Narkosen bei Patienten mit seltenen Erkrankungen zur Verfügung stellen. Die Handlungsempfehlungen von "OrphanAnesthesia" sind standardisiert und durchlaufen nach ihrer Erstellung einen Peer-Review Prozess an dem ein Anästhesist und ein weiterer Krankheitsexperte beteiligt sind. Darüber hinaus bietet "OrphanAnesthesia" die Möglichkeit

Semrush Rank: 1,835,659
Categories: Health, Health and Wellness
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