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MPS Society | Support for MPS, Fabry and related diseases in the United Kingdom

The Society for Mucopolysaccharide Diseases (MPS Society) provides professional support to individuals and families affected by MPS, Fabry and related lysosomal storage diseases. Contact our helpline Monday-Friday 9-5pm on 0345 389 9901 or email us at [email protected]

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Topics: fabry and related diseases in the united kingdom, mps society, support for mps

mpssociety.org.uk
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mpssociety.org

mpssociety.org mpssociety.org           
National MPS Society - We Help Cure, Support, & Advocate for MPS & ML
We support life-saving research for mucopolysaccharidosis (MPS) & mucolipidosis (ML), and we provide community resources, support, & more.


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mpssociety.in

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We C.A.R.E.®; ... Compassion, Awareness, Research, Education



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Home - ISMRD
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Fighting MLD and Leukodystrophies.


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. Ulfborg-Vemb was a municipality (Danish, kommune) in the former Ringkjøbing County on the west coast of the Jutland peninsula in west Denmark. By January 1, 2007, Ulfborg-Vemb municipality ceased to exist due to Kommunalreformen ("The Municipality Reform" of 2007). It was merged with existing Holstebro and Vinderup municipalities to form the new Holstebro municipality. This created a municipality with an area of 790 km2 and a total population of 56,204. Ulfborg-Vemb covered an area of 226 km2, and had a total population of 6,959 (2005).


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mpssociety.ca

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Learn About Hunter Syndrome
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mpssociety.org.au

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Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. But there is hope. Researchers around the world are working hard to find effective treatments.


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Cure Sanfilippo, Gene therapy, Get help for Sanfilippo, MPS, MPS III, Rare diseases, lysosomal disease, and Fundraising



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VIMIZIM® (elosulfase alfa) is the first and only enzyme replacement therapy approved for people with Morquio A. View important safety information, including risk of anaphylaxis.


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MPS 7 - Mucopolysaccharidosis VII | MPS VII In Focus
MPS VII is one of the rarest types of mucopolysaccharidoses2-4
Mucopolysaccharidosis VII (MPS VII), also called Sly syndrome, is a genetic metabolic disorder caused by a deficiency of the lysosomal enzyme β-glucuronidase.1,2
MPS VII is a heterogeneous and progressive disease. It requires early diagnosis for


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The United MSD foundation advocates for, supports and funds biomedical research to cure Multiple Sulfatase Deficiency and avails its reserach to cure other lysosomal storage diseases.


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The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.



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. The Great Lakes Commission is a United States interstate agency established in 1955 through the Great Lakes Basin Compact, in order to "promote the orderly, integrated and comprehensive development, use and conservation of the water resources of the Great Lakes Basin," which includes the Saint Lawrence River. The Great Lakes Commission provides policy development, coordination, and advocacy on issues of regional concern, as well as communication and research services. The eight member states are Illinois, Indiana, Michigan, Minnesota, New York, Ohio, Pennsylvania, and Wisconsin. The Canadian provinces of Ontario and Quebec are associate members. Each state has three votes on matters coming before the commission, while associate members and observers (representing the United States and Canadian federal governments, tribes, and other regional organizations) are permitted to participate in discussions, deliberations and other activities as approved by the Commission but have no vote.There is a separate and distinct entity with a similar brief, the International Joint Commission, which exists between the federal levels of the United States and Canada.

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