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Leukodystrophy & Krabbe Newborn Screening Awareness | Hunter's Hope

Hunter's Hope Foundation is a non-profit organization committed to family and medical care for those affected by Leukodystrophy and Newborn Screening. Visit our site for more information.

Categories: Education/Reference, Health and Wellness
Topics: home page, hunter's hope, jill kelly, jim and jill kelly, krabbe, krabbe newborn screening awareness, leukodystrophy, leukodystrophy &, newborn screening without a word, pomp, pompe, pompe disease

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ulf.org

ulf.org ulf.org           
HOME - United Leukodystrophy Foundation
Discover how United Leukodystrophy Foundation in DeKalb, IL supports medical research, provides referrals, and more.
. Ulfborg-Vemb was a municipality (Danish, kommune) in the former Ringkjøbing County on the west coast of the Jutland peninsula in west Denmark. By January 1, 2007, Ulfborg-Vemb municipality ceased to exist due to Kommunalreformen ("The Municipality Reform" of 2007). It was merged with existing Holstebro and Vinderup municipalities to form the new Holstebro municipality. This created a municipality with an area of 790 km2 and a total population of 56,204. Ulfborg-Vemb covered an area of 226 km2, and had a total population of 6,959 (2005).


Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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leukodystrophy.wordpress.com

leukodystrophy.wordpress.com leukodystrophy.wordpress.com           
Krabbe - Leukodystrophy
Spread the awareness about this devastating disease. (by Anurag Bansal)



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stopald.org

stopald.org stopald.org           
The Stop ALD Foundation
The Stop ALD Foundation focuses on accelerating the process of developing
new knowledge and new therapies for adrenoleukodystrophy (ALD), and works
to accelerate implementation of newborn screening for ALD. We also educate
the medical profession and the public about ALD, raising awareness in order
to improve detection, diagnosis and treatment. In addition, we serve as a
resource to families affected by the condition.


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adrenoleukodystrophynews.com

adrenoleukodystrophynews.com adrenoleukodystrophynews.com           
Adrenoleukodystrophy News Home
No Description.


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Categories: Health, Health and Wellness
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leukodystrophyresourceresearch.org

leukodystrophyresourceresearch.org leukodystrophyresourceresearch.org           



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ela-asso.com

ela-asso.com ela-asso.com           
L'ASSOCIATION ELA - Association Européenne contre les Leucodystrophies
Bienvenue sur le site de l'Association Européenne contre les Leucodystrophies (ELA).


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Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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mldfoundation.org

mldfoundation.org mldfoundation.org           
MLD Foundation - The Premiere Family Resource for Metachromatic Leukodystrophy - MLD Research, MLD Cure, Education, and Support
We C.A.R.E.®; ... Compassion, Awareness, Research, Education



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judsonslegacy.org

judsonslegacy.org judsonslegacy.org           
Judson's Legacy ‹ Faith & Hope in Suffering
Judson's Legacy ‹ Faith & Hope in Suffering


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aldlife.org

aldlife.org aldlife.org           
Home - Alex - The Leukodystrophy Charity
Home - Alex - The Leukodystrophy Charity



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alextlc.org

alextlc.org alextlc.org           
Home - Alex - The Leukodystrophy Charity
Home - Alex - The Leukodystrophy Charity


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Categories: Non-Profit/Advocacy/NGO, Business
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myelin.org

myelin.org myelin.org           
Home - Myelin Magazine
Discover the science of the human brain


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pmdfoundation.org

pmdfoundation.org pmdfoundation.org           
PMD Foundation
PMD Foundation


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adrenoleukodystrophy.info

adrenoleukodystrophy.info adrenoleukodystrophy.info           
Adrenoleukodystrophy - Adrenoleukodystrophy.info
Information platform for adrenoleukodystrophy: treatment options, clinical presentations, underlying biochemistry & genetics and the ALD Mutation Database.



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aldconnect.org

aldconnect.org aldconnect.org           
ALD Connect
ALD Connect


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evanoskyfoundation.org

evanoskyfoundation.org evanoskyfoundation.org           
Home | The Evanosky Foundation
Fighting MLD and Leukodystrophies.


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agsamericas.org

agsamericas.org agsamericas.org           
AGS Americas
Aicardi-Goutieres Syndrome Americas Association- AGSAA: Spreading awareness
to help fund critical research. Non-profit


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jillk.org

jillk.org jillk.org           




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nationalstemcellfoundation.org

nationalstemcellfoundation.org nationalstemcellfoundation.org           
The National Stem Cell Foundation - Home
Curious about who we are or what we do? Research, Education, Advocacy and more. Find what you need to know about the National Stem Cell Foundation here.


Moz DA: 41 Moz Rank: 3.8 Semrush Rank: 615,111 Facebook ♡: 1,218
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tloaf.org

tloaf.org tloaf.org           
The Legacy of Angels Foundation
The Legacy of Angels Foundation



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kellyforkids.com

kellyforkids.com kellyforkids.com           
Charity in Buffalo, NY | Kelly For Kids
Kelly For Kids is a charitable foundation helping disadvantaged & disabled children in WNY and throughout the area. Contact us for more information!



Categories: Sports, General Organizations
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counsyl.com

counsyl.com counsyl.com           
Home | Myriad Women's Health
Home | Myriad Women's Health


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aldalliance.org

aldalliance.org aldalliance.org           
ALD Alliance - ALD Alliance - Aidan Jack Seeger Foundation for Adrenoleukodystrophy
The ALD Alliance is a non-profit 501(c)3 organization. We are a charity run by volunteers with every donation directly benefiting our mission; addressing the need for information and newborn screening with respect to Adrenoleukodystrophy.


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Categories: Non-Profit/Advocacy/NGO, Business
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canavanfoundation.org

canavanfoundation.org canavanfoundation.org           
Canavan Foundation
The Canavan Foundation is a not-for-profit organization that was founded in 1992 by the parents and friends of children affected by the Canavan disease.


Facebook ♡: 24
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pediatricbrainfoundation.org

pediatricbrainfoundation.org pediatricbrainfoundation.org           
The Pediatric Brain Foundation - pediatricbrainfoundation.org
The Pediatric Brain Foundation - pediatricbrainfoundation.org


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aicardi-goutieres.com

aicardi-goutieres.com aicardi-goutieres.com           
Startseite
Aicardi-Goutières Syndrome


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Categories: Health, Health and Wellness
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jimkelly.com

jimkelly.com jimkelly.com           
JimKelly.com | The Official Site for Hall of Fame Quarterback Jim Kelly
The Official website of Hall of Fame Quarterback Jim Kelly from the Buffalo Bills



Categories: Entertainment, Sports
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26shirts.com

26shirts.com 26shirts.com           
26 Shirts - Behind every shirt, there's a story.
Limited edition Buffalo designs that do good for families in need! Over 1.87 MILLION DOLLARS donated to date.


Moz DA: 42 Moz Rank: 4.1 Semrush Rank: 254,805 Facebook ♡: 7,058
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mpssociety.org.uk

mpssociety.org.uk mpssociety.org.uk           
MPS Society | Support for MPS, Fabry and related diseases in the United Kingdom
The Society for Mucopolysaccharide Diseases (MPS Society) provides professional support to individuals and families affected by MPS, Fabry and related lysosomal storage diseases. Contact our helpline Monday-Friday 9-5pm on 0345 389 9901 or email us at [email protected]



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mldsupportuk.org.uk

mldsupportuk.org.uk mldsupportuk.org.uk           
Bringing hope to families in the flight to eradicate Metachromatic Leukodystrophy (MLD)
UK charity bringing hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD)


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Categories: Marketing/Merchandising, Health and Wellness
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theglia.org

theglia.org theglia.org           
The Global Leukodystrophy Initiative
The Global Leukodystrophy Initiative


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passagebio.com

passagebio.com passagebio.com           
Home | Passage Bio
Passage Bio, a genetic medicines company, is changing the future of CNS disorders and transforming the lives of patients and their families.


Semrush Rank: 384,241
Categories: Business, Information Technology
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elaespana.es

elaespana.es elaespana.es           
Ela España - home - Asociacin contra las leucodistrofias - ELA España
ELA España, Asociación contra las leucodistrofias ELA España ayudamos a las familias y a la investigación, nos ayudas DONA atención DONA Investigación



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ntsad.org

ntsad.org ntsad.org           
National Tay-Sachs & Allied Diseases Association - Home
National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.


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