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cdls.org.uk cdls.org.uk           
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Establish Community. Educate Families. Enable Advocacy. The Cornelia de Lange Syndrome (CdLS) Foundation provides a host of services for anyone touched by this little-known genetic syndrome and other isolating conditions. If CdLS is Part of Your Life, We’re Here to Help CdLS occurs in approximately 1 in 10,000 live births and the CdLS Foundation is […]


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cdls.org.il

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עמותת קורנליה דה לנגה ישראל CDLS- האתר הרשמי
קרונליה דה לנגה ישראל - העמותה הישראלית ללוקים בתסמונת קורנליה דה לנגה (CdLS) ולבני משפחותיהם. העמותה פועלת למען רווחתם של הלוקים בתסמונת CdLS בישראל ובני משפחותיהם, באמצעות יצירת קשרים בין קהילת משפחות CdLS בארץ ובעולם, שיתופי פעולה עם ארגונים בינלאומיים, חוקרים ורופאים העוסקים בחקר מחלות גנטיות נדירות, יצירת קשרים עם רופאים וחוקרים מקומיים והנגשת ידע ומידע קיימים.

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