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Genetic Education Materials for School Success (GEMSS) | New England Regional Genetics Network

Genetic Education Materials (GEMSS)
Categories: Education/Reference, Health and Wellness
Topics: genetic education materials for school success (gemss), new england regional genetics network

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negenetics.org

negenetics.org negenetics.org           
New England Regional Genetics Network | University of New Hampshire
The New England Regional Genetics Network (NERGN) aims to improve health equity and health outcomes of individuals with genetic conditions by connecting them with genetic services, educate health care providers, and support families.


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gmdi.org

gmdi.org gmdi.org           
Home

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fodsupport.org

fodsupport.org fodsupport.org           
Fatty Oxidation Disorders Family Support Group - All In This Together
Fatty Oxidation Disorders Family Support Group - All In This Together

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cdlsusa.org

cdlsusa.org cdlsusa.org           
Home | CdLS Foundation
Establish Community. Educate Families. Enable Advocacy. The Cornelia de Lange Syndrome (CdLS) Foundation provides a host of services for anyone touched by this little-known genetic syndrome and other isolating conditions. If CdLS is Part of Your Life, We’re Here to Help CdLS occurs in approximately 1 in 10,000 live births and the CdLS Foundation is […]


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prisms.org

prisms.org prisms.org           
PRISMS - Parents & Researchers Interested in Smith-Magenis Syndrome
PRISMS is dedicated to providing information and support to families of persons with SMS

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chronicpainpartners.com

chronicpainpartners.com chronicpainpartners.com           
Ehlers-Danlos Support Groups and EDS education
Ehlers-Danlos Support Groups and EDS education

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cdlsworld.org

cdlsworld.org cdlsworld.org           
Homepage - CdLS World
Homepage


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newbornscreening.info

newbornscreening.info newbornscreening.info           
newbornscreening.info - Expanded Newborn Screening Using New Technologies, Financial, Ethical, Legal and Social Issues (FELSI)
newbornscreening.info - Expanded Newborn Screening Using New Technologies, Financial, Ethical, Legal and Social Issues (FELSI)

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ksa-uk.net

ksa-uk.net ksa-uk.net           
Klinefelter's Syndrome Association (KSA)
The KSA offers information and caring support to all affected by KS/47XXY, raises awareness, especially amongst the medical profession, and promotes research into the management of KS/XXY.

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metabolic.ie

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Home - Metabolic
As you may be aware the HSE ICT systems have been severely compromised due to a Cyber attack since Friday. All computers and phones are affected. This also  involves the analysis and reporting of blood results. Please continue to send bloods as frequently as you have been advised by the metabolic team. There will, however …

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cedsa.org

cedsa.org cedsa.org           
CEDSA Home
CEDSA helps patients and families who are diagnosed with Ehlers-Danlos Syndrome by providing advocacy, medical resources, and additional help.


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22qfamilyfoundation.org

22qfamilyfoundation.org 22qfamilyfoundation.org           
22q Family Foundation
Taking the Mystery Out of 22q

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Adult Metabolic Diseases Clinic
Adult Metabolic Diseases Clinic

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klinefeltersyndrome.org

klinefeltersyndrome.org klinefeltersyndrome.org           
Home - Klinefelter Syndrome + X and Y variations
Klinefelter Syndrome, XXY, 47XXY, Trisomy X, 47XYY, 48XXXY, 48XXYY, 49XXXXY, X & Y, infertility, ADHD, ADD, behavior, testosterone, HRT


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WVECTCR - Home
A WVECTCR Website

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cdls.org.uk

cdls.org.uk cdls.org.uk           
CdLS Foundation UK and Ireland
CdLS Foundation UK and Ireland

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504idea.org 504idea.org           
Council of Educators for Students with Disabilities, Inc. - Quality disability law training for public schools
Quality disability law training for public schools

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IFSP Web - Individual Family Service Program
IFSP, Individualized Family Service Plan, is developed by parents and early intervention service providers to meet the special need of young children, birth to three, with developmental delays and disabilities.


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fdna.com fdna.com           
FDNA®
We use facial analysis, deep learning and artificial intelligence to transform big data into actionable genomic intelligence.


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edsers.com edsers.com           
Treatment And Research Center For Rare Genetic Conditions - Edsers United Foundation
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smith-magenis.org

smith-magenis.org smith-magenis.org           
Supporting Families who have Children and Adults with Smith-Magenis Syndrome - Smith-Magenis Syndrome Foundation UK
What is Smith-Magenis Syndrome? Smith-Magenis syndrome (SMS) is a genetic disability due to a microdeletion or abnormality of chromosome 17. The key symptoms of SMS include: mild through to profound learning disability severely disrupted sleep pattern delayed speech and language skills distinctive facial features behaviours that challenge like self-harm, aggression, impulsivity, and hyperactivity What’s New? …

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pwcf.org

pwcf.org pwcf.org           
Home - Prader-Willi California Foundation
A full life

without limits.

The success of people with Prader-Willi syndrome depends greatly upon the knowledge and support of the community around them.

Prader-Willi California Foundation is committed to being an integral part of your support community. What is PWS?


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childgrowthfoundation.org childgrowthfoundation.org           
Home - Child Growth Foundation
Supporting growth conditions including Silver-Russell Syndrome, Sotos Syndrome, GHD, Hypopituitarism, Shox Deficiency, TBRS, IUGR, SGA.


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findresources.co.uk

findresources.co.uk findresources.co.uk           
FIND Neurogenetic Disorders-Angleman-Cri Du Chat-Cornelia De Lange Syndrome
Information about Neurogenetic Disorders - Angleman - Cri Du Chat - Cornelia De Lange Syndromes research findings families parents carers

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childnow.org

childnow.org childnow.org           
Children's Institute for Learning Differences | PROGRESS STARTS HERE
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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
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The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes

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Special Friends Foundation
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Noonan Syndrome Foundation
The Noonan Syndrome Foundation: created to help support, educate, & advocate for and on behalf of all those who have bee affected by Noonan Syndrome.


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galactosemia.org

galactosemia.org galactosemia.org           
Galactosemia Foundation
We connect families affected by galactosemia, and support networking efforts between clinicians and researchers.

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rasopathiesnet.org

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The RASopathies Network

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genetic.org

genetic.org genetic.org           
AXYS - The Association for X and Y Chromosome Variations
AXYS is an advocacy, education and support organization for individuals with X and Y chromosome variations and their families.


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noonansyndroom.nl

noonansyndroom.nl noonansyndroom.nl           
Home - Stichting Noonan Syndroom
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npkua.org

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Home

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verdugopsych.com

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Psychological Evaluations | Verdugo Psychological Associates
Neuropsychological and psychological evaluations for adults and teens in Los Angeles, Glendale, Pasadena, Burbank, San Bernardino.

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hgsa.org.au

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Human Genetics Society of Australasia - Human Genetics Society of Australasia
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noonanasturias.com

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Asociacin Sindrome de Noonan Asturias
Visita la entrada para saber más.


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jointpainrelief.com.au

jointpainrelief.com.au jointpainrelief.com.au           
Chronic Pain Resources for Children - Joint Pain Relief
An independent Parent to Parent resource for children and young adults who have a rheumatology condition or a chronic pain condition.

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littlepeopleuk.org

littlepeopleuk.org littlepeopleuk.org           
Little People UK
Little People UK


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hypermobility.org

hypermobility.org hypermobility.org           
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.

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Home : National Urea Cycle Disorders Foundation
Home : National Urea Cycle Disorders Foundation

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pwsa.co.uk

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PWSA UK | Support for those living with Prader-Willi Syndrome
PWSA UK | Support for those living with Prader-Willi Syndrome

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familyconnect.org

familyconnect.org familyconnect.org           
Home - FamilyConnect
FamilyConnect is a service offered by the American Printing House for the Blind to give parents and other family members of children who are visually impaired–and professionals who work with them–a supportive place for sharing and finding resources on raising their children from birth to adulthood.

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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.

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turnersyndrome.org turnersyndrome.org           
The Turner Syndrome Society of the United States
The Turner Syndrome Society advances knowledge, facilitates research, and provides support for all those touched by Turner syndrome.

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aaksis.org

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The American Association for Klinefelter Syndrome | AAKSIS
The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is a national volunteer association. For more information call us at 888-466-5747.


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Oh TWIST- Oh, That's Why I'm So Tired! Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.

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Mun-H-Center - Mun-H-Center
Vi är ett nationellt orofacialt (mun och ansikte) kunskapscenter för sällsynta hälsotillstånd och en del av specialisttandvården inom Folktandvården Västra Götaland.

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Support for people with Ehlers-Danlos Syndromes, Heritable Connective Tissue Disorders and Chronic Pain through knowledge sharing resources, awareness, education, peer support and research to find a cure


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mountainstatesgenetics.org

mountainstatesgenetics.org mountainstatesgenetics.org           
Genetics Disorders Information & Resources – Mountain States
MSRGN is a regional network on genetics disorders. We families in Montana, Wyoming, Nevada, Utah, Colorado, Arizona, New Mexico, and Texas.

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utahparentcenter.org utahparentcenter.org           
Homepage - Utah Parent Center
Bringing Hope. Opening Doors. Elevating Inclusion.Confused? Overwhelmed? Not sure where to start? Look at our upcoming events calendar for free classes to begin your journey. Disability Resources Access print information on a variety of topics. Videos, Webinars & Podcasts View, listen to and download training resources and information. Who are we? Bringing families hope. Success

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thinkgenetic.com thinkgenetic.com           
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ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
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PEAK Parent Center |
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angelman.org angelman.org           
Angelman Syndrome Foundation – With you for the journey
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Learn about the different types of long-chain fatty acid oxidation disorders (LC-FAOD), a group of rare, genetic metabolic disorders.

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Home - Welcome to the Williams Syndrome Association of (SA) Incorporated website. We aim to be the first point of contact for individuals with Williams

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Empowering Individuals Supporting Families Have Your Voice Heard by Members of the FDA! YOU have the opportunity to have your voice heard by several U.S. Food and Drug Administration (FDA) representatives at PWSA | USA's

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ehlersdanlos.dk ehlersdanlos.dk           
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