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Ehlers-Danlos Support Groups and EDS education

Ehlers-Danlos Support Groups and EDS education
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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society

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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
The Ehlers-Danlos Support UK - Support for people touched by the Ehlers-Danlos syndromes
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes

Moz DA: 53 Moz Rank: 4.8 Semrush Rank: 79,718
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hypermobility.org

hypermobility.org hypermobility.org           
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.

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ohtwist.com

ohtwist.com ohtwist.com           
Oh TWIST Home - Discover what could be making you so tired too!
Oh TWIST- Oh, That's Why I'm So Tired! Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.

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edswellness.org

edswellness.org edswellness.org           
Home - EDS Wellness, Inc.
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strengthflexibilityhealtheds.com

strengthflexibilityhealtheds.com strengthflexibilityhealtheds.com           
2020 Home - Strength Flexibility Health EDS
Strength/Flexibility/Health/EDS – the ONLY digital magazine for living well with hypermobility disorders, such as Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD) & related conditions. #LiveEDSStrong Recent Posts “,”nextArrow”:”“,”autoplay”:false,”autoplaySpeed”:5000,”rtl”:false}’ dir=”ltr”> June 21, 2018 40 Years Old in 4 Months – Day 1 June 20, 2018 Heat Therapy for the Treatment of Chronic Pain – Avacen Product … 2020 Home Read More »

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eds-nyc.com

eds-nyc.com eds-nyc.com           
EDS NYC – Ehlers Danlos in New York
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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
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edsinfo.wordpress.com

edsinfo.wordpress.com edsinfo.wordpress.com           
EDS and Chronic Pain News & Info | Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome
Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome

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tcapp.org

tcapp.org tcapp.org           
Make A Difference Today - The Coalition Against Pediatric Pain
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cedsa.org

cedsa.org cedsa.org           
CEDSA Home
CEDSA helps patients and families who are diagnosed with Ehlers-Danlos Syndrome by providing advocacy, medical resources, and additional help.


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spoonsandbrainfog.com

spoonsandbrainfog.com spoonsandbrainfog.com           
The Tale of a Zebra (EDS) and POTS
Spoons and brain fog - Ehler's Danlos Syndrome (EDS) and Postural
Orthostatic Tachycardia Syndrome Orthostatic Tachycardia Syndrome (POTS).
Patient resources, my personal journey, and support groups.

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muldowneypt.com

muldowneypt.com muldowneypt.com           
Muldowney Physical Therapy
Helping Patients Live Life to the Fullest.

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bodysupportstore.com

bodysupportstore.com bodysupportstore.com           
Best Quality Body Support & Ergonomic Products
Body Support Store provides Best Quality Body Support & Ergonomic Products. We offer pillows, back support, mattress solutions, leg cushions, travel pillows, ergonomic office & backpacks, wrist, leg & neck braces at competitive prices. We deliver our products on time.

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edsers.com

edsers.com edsers.com           
Treatment And Research Center For Rare Genetic Conditions - Edsers United Foundation
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annabelleschallenge.org

annabelleschallenge.org annabelleschallenge.org           
Vascular EDS is a life limiting rare genetic disorder
UK registered charity supporting patients & families touched by Vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.

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rareconnect.org

rareconnect.org rareconnect.org           
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.


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ehlersdanlosnews.com

ehlersdanlosnews.com ehlersdanlosnews.com           
Ehlers-Danlos News Home | Ehlers-Danlos News
The Web's Daily Resource for Ehlers-Danlos Syndrome

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thezebranetwork.org

thezebranetwork.org thezebranetwork.org           
The Zebra Network
The Zebra Network

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theilcfoundation.org

theilcfoundation.org theilcfoundation.org           
The ILC Charitable Foundation
Support for people with Ehlers-Danlos Syndromes, Heritable Connective Tissue Disorders and Chronic Pain through knowledge sharing resources, awareness, education, peer support and research to find a cure


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prettyill.com

prettyill.com prettyill.com           
NEW STUDY! Parasym Plus™ for Multiple Sclerosis - PrettyIll.com
This is an in-house study for patients with Relapsing-Remitting Multiple Sclerosis (RR-MS) dealing with constipation, gastroparesis. You will be provided with a free bottle of Parasym Plus™ and asked for a diary of bowel movements — it’s that easy! What is Parasym Plus™? Parasym Plus™ is a new supplement mix with two patents to date. It is […]


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gemssforschools.org

gemssforschools.org gemssforschools.org           
Genetic Education Materials for School Success (GEMSS) | New England Regional Genetics Network
Genetic Education Materials (GEMSS)


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edswi.org

edswi.org edswi.org           
EDS Wisconsin - Strengthening Connections
Support and resources for patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders.

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csfinfo.org csfinfo.org           
Chiari & Syringomyelia Foundation
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themalleablemom.com

themalleablemom.com themalleablemom.com           
themalleablemom.com -
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jboccupationaltherapy.co.uk jboccupationaltherapy.co.uk           
Welcome - Jo Southall, Independent OT
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edser.weebly.com edser.weebly.com           
A Little Twisted: Life with EDS
Hello and welcome!  "A Little Twisted" is my quirky, comical, and sometimes quite serious perspective on life with Ehlers-Danlos Syndrome, Hypermobility Type.  Look for scholarly articles,...

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edsresearch.weebly.com

edsresearch.weebly.com edsresearch.weebly.com           
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Ehlers-Danlos research and support

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uwcpdx.org uwcpdx.org           
LPDx: Clinical Genetic Testing - Next-gen sequencing, SNP array, FusionPlex®
LPDx at the University of Washington offers clinical genetic testing and research collaboration using cutting edge genomics technology.

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eds-dc.org

eds-dc.org eds-dc.org           
Metro DC EDS and HSD Support Group
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mayfieldchiaricenter.com mayfieldchiaricenter.com           

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marfan.org

marfan.org marfan.org           
The Marfan Foundation | Know the Signs | Fight for Victory
The Marfan Foundation tirelessly advances the research for the treatment of marfan syndrome and its related conditions! We're here to create a brighter future!

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bauerfeind.com

bauerfeind.com bauerfeind.com           
Bauerfeind | Braces & supports: knee, back, ankle, shoulder injuries | Bauerfeind USA
Bauerfeind braces, supports, compression socks & foot insoles for injuries & pain


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naturallivingcenter.net

naturallivingcenter.net naturallivingcenter.net           
Natural Living Center
Natural Living Center


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clairehasehlersdanlos.com

clairehasehlersdanlos.com clairehasehlersdanlos.com           
claire-has-ehlers-danlos | Life with Ehlers-Danlos Syndrome
Claire has what?! I started to become curious about my strange body after traumatic harassment at work in 1999.  Won't go into it here....it's all in the section MY STORY.  I had ten years of sleeping the greatest part of each day, for the first five I could not concentrate to read even a page…

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drbradtinkle.com

drbradtinkle.com drbradtinkle.com           
Brad T. Tinkle, M.D., Ph.D. - Dr. Brad Tinkle, M.D., Ph.D.
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invisibleillnessforum.com

invisibleillnessforum.com invisibleillnessforum.com           
Invisible Illness Info Repository - Index
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ctds.info

ctds.info ctds.info           
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dysautonomiasupport.org

dysautonomiasupport.org dysautonomiasupport.org           
DYSAUTONOMIA SUPPORT NETWORK
The Dysautonomia Support Network (DSN) is a U.S. based, 501(c)(3) non-profit organization. Our mission is to empower, educate, and advocate for patients affected by the many forms of dysautonomia and its related conditions. This goal is accomplished through a transparent, collaborative approach that

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conquerchiari.org

conquerchiari.org conquerchiari.org           
Conquer Chiari
Chiari Malformation- A Comprehensive site providing information on Chiari Malformation and related topics

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standinguptopots.org

standinguptopots.org standinguptopots.org           
Home | Standing Up To POTS
STANDING UP to POTS is committed to increasing awareness for postural orthostatic tachycardia syndome (POTS) within the medical community and raising money to support POTS research. POTS is a form of dysautonomia, and is caused by malfunctioning of the autonomic ("automatic") nervous system.

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oreds.org

oreds.org oreds.org           
Oregon EDS Home Page
Oregon EDS Group Home Page - learn about Ehlers-Danlos Syndrome Support in Oregon

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inspire.com

inspire.com inspire.com           
Inspire | Health and Wellness Support Groups and Communities
Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Connect with others who know what you're going through. American social network. Inspire is an Arlington, Virginia-based healthcare social network. It builds and manages online health communities for patients and caregivers, and connects patients to life science companies for the purpose of research.

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patientworthy.com

patientworthy.com patientworthy.com           
Rare Patient News. Well Done. - Patient Worthy
PODCAST: WAIT, HOW DO YOU SPELL THAT? PATIENT WORTHY SERIES THE LATEST FROM PATIENT WORTHY OF INTEREST Research in Treatment Options for Primary Biliary Cholangitis (PBC) Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH) PATIENT STORIES VIEW ALL » GET INVOLVED Make a difference, […]

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mystripylife.com mystripylife.com           
My Stripy Life • EDS, CMT & ME
EDS, CMT & ME

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healyphysicaltherapy.com

healyphysicaltherapy.com healyphysicaltherapy.com           
Physical Therapy Cumberland, East Providence, East Greenwich & Warwick, RI - Healy PT & Sports Medicine
Healy Physical Therapy and Sports Medicine is located in Cumberland, East Providence, East Greenwich, and Warwick, RI. Call us today for exceptional physical therapy services.


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victoriafenton.net

victoriafenton.net victoriafenton.net           
Victoria Fenton: Health Consultant & Life Coach
Victoria Fenton: Health Consultant & Life Coach

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zebranation.org

zebranation.org zebranation.org           
Life As A Zebra Foundation | Life as a Zebra Foundation
In medical school, students are taught to diagnose patients based on the condition that’s most likely. This idea goes along with the saying: “When you h...

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longislandeds.com

longislandeds.com longislandeds.com           
Long Island – EDS Group
Local Support Group (Long Island, NY) for patients with Ehlers-Danlos Syndrome (EDS) or benign hypermobility syndrome

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dysautonomiainternational.org

dysautonomiainternational.org dysautonomiainternational.org           
Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement
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scienceoveracuppa.com

scienceoveracuppa.com scienceoveracuppa.com           
Science Over a Cuppa | BI-WEEKLY POSTS ON SCIENCY TOPICS
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kinderggnome.biz

kinderggnome.biz kinderggnome.biz           
KinderGenome Medical Genetics Golder N. Wilson MD PhD - Home
After 40 years of academic and private practice encompassing over 27,000 new medical genetic evaluations, I am changing my genetics practice to an information service that will be backed by continued...

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jointpainrelief.com.au

jointpainrelief.com.au jointpainrelief.com.au           
Chronic Pain Resources for Children - Joint Pain Relief
An independent Parent to Parent resource for children and young adults who have a rheumatology condition or a chronic pain condition.

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Life as a Zebra
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dynainc.org

dynainc.org dynainc.org           
Dysautonomia Youth Network of America, Inc.
Dysautonomia Youth Network of America, Inc. (DYNA) is a 501(c) (3) non-profit organization dedicated to serving young people diagnosed with childhood dysautonomia conditions including Postural Orthostatic Tachycardia Syndrome (POTS), Neurally Mediated Hypotension (NMH), Neurocardiogenic Syncope (NCS), Vasovagal Syncope, Generalized Dysautonomia, Birth Dysautonomia,

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thezebramom.com

thezebramom.com thezebramom.com           
The Zebra Mom | One mother's experience of life with Ehlers Danlos Syndrome
One mother's experience of life with Ehlers Danlos Syndrome

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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...

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lindbergnutrition.com

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Lindberg Nutrition- Lindberg Nutrition Stores
Shop our massive selection of top quality protein, vitamins, probiotics, collagen, bodybuilding supplements & more in Torrance or Manhattan Beach California. Not in Los Angeles County? Shop online at Nutrition Express - FREE SHIPPING with $49 minimum purchase.

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ehlersdanlos.ca

ehlersdanlos.ca ehlersdanlos.ca           
The Canadian Ehlers Danlos Association
Through an educational and informational support network, CEDA is committed to the enhancement of the lives of all persons affected by Ehlers-Danlos Syndrome.


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3pointproducts.com

3pointproducts.com 3pointproducts.com           
Orthotics Designed for Comfort, Fit & Function | 3-Point
3-Point Products designs and manufactures splints and braces that deliver Comfort, Fit and Function for optimal compliance and effective solutions.

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edsconnects.com

edsconnects.com edsconnects.com           
The 2023 EDS Leadership Summit, May 16-19, 2023, Mirage, Las… | EDS
EDS is the gath­er­ing of the movers, shak­ers and bright­est minds that elec­tron­ic com­po­nent man­u­fac­tur­ers, dis­trib­u­tors and…


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ehlersdanlos.dk

ehlersdanlos.dk ehlersdanlos.dk           
Ehlers-Danlos Foreningen i Danmark
Ehlers-Danlos’ syndrom er den hyppigste arvelige bindevævssygdom. Sygdommen medfører typisk hypermobile led. Hudens elasticitet og helingen ved sår er påvirket.

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silverringsplint.com

silverringsplint.com silverringsplint.com           
Silver Ring Splint Company | Medically Effective Hand and Finger Splints
For more than 33 years, we have provided high-quality, custom-fit SilverRing™ Splints to individuals around the world who have hand and finger problems.

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neurokc.com

neurokc.com neurokc.com           
Kansas City Neurologist | Los Angeles Neurologist | Clinical Trials | Rowe Neurology
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invisibleproject.org

invisibleproject.org invisibleproject.org           
INvisible Project - Real People, Real Stories, Real Hope
Real People, Real Stories, Real Hope

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hypermobilityconnect.com

hypermobilityconnect.com hypermobilityconnect.com           
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Welcome to Hypermobility Connect, an online community & education source for people with hypermobility conditions including The Hypermobility Spectrum Disorders, The Ehlers-Danlos Syndromes, Loeys-Dietz, Marfan & Stickler Syndromes and Osteogenesis Imperfecta. Based in Australia, supporting people across the globe!

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