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Home - Rare Disease UK

What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...
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Topics: rare disease disorder, rare disease uk

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Sites similar to raredisease.org.uk - Top 69 raredisease.org.uk alternatives

mastcellaction.org

mastcellaction.org mastcellaction.org           
Home | Mast Cell Action
Home | Mast Cell Action

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findacure.org.uk

findacure.org.uk findacure.org.uk           
Findacure | 7,000 rare diseases, 1 common goal
Findacure | 7,000 rare diseases, 1 common goal

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rarediseaseday.us

rarediseaseday.us rarediseaseday.us           
Rare Disease Day - NORD (National Organization for Rare Disorders)
Rare Disease Day USA | Alone we are Rare. Together we are Strong.


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rarediseaseday.org

rarediseaseday.org rarediseaseday.org           
Rare Disease Day 2024
Raising awareness for patients, families and carers around the world that are affected by rare diseases.

Moz DA: 62 Moz Rank: 5.1 Semrush Rank: 276,129 Facebook ♡: 37,172
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eurordis.org

eurordis.org eurordis.org           
EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 1000 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe


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rarediseasesinternational.org

rarediseasesinternational.org rarediseasesinternational.org           
Rare Diseases International Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.


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rarevoices.org.au

rarevoices.org.au rarevoices.org.au           
Rare Voices Australia
An estimated two million Australians live with a rare disease. Approximately 80% of rare diseases are genetic disorders.

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ordindia.org

ordindia.org ordindia.org           
Tabletki na dłuższy stosunek - TEST i ranking - wyłoniliśmy najlepsze tabletki na dłuższy stosunek
Poznaj zwycięzcę testu na najlepsze tabletki na dłuższy stosunek na rynku. Nasza recenzja, opinie użytkowników, działanie. Zobacz ranking i wybierz najskuteczniejsze i zaufane tabletki na dłuższy stosunek


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rarediseasefoundation.org

rarediseasefoundation.org rarediseasefoundation.org           
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.

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tmsforacure.org

tmsforacure.org tmsforacure.org           
Home - TMS - The Mast Cell Disease Society, Inc
The Mast Cell Disease Society is a non-profit organization dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration.

Moz DA: 45 Moz Rank: 4.4 Semrush Rank: 174,925 Facebook ♡: 284
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nzord.org.nz

nzord.org.nz nzord.org.nz           
Rare Disorders NZ
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues


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rarediseasesindia.org

rarediseasesindia.org rarediseasesindia.org           
Rare Diseases India
Rare Diseases India


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ngocommitteerarediseases.org

ngocommitteerarediseases.org ngocommitteerarediseases.org           
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care


Categories: Non-Profit/Advocacy/NGO, Business
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cureraredisease.org

cureraredisease.org cureraredisease.org           
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.

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neutropenianet.org

neutropenianet.org neutropenianet.org           
Home - National Neutropenia Network
Home - National Neutropenia Network

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neutropenia.ca

neutropenia.ca neutropenia.ca           
Neutropenia Support Association Inc. - Home
Enter Description


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geneticalliance.org.uk

geneticalliance.org.uk geneticalliance.org.uk           
Helping families affected by genetic, rare and undiagnosed conditions | Genetic Alliance UK
We work on issues that families and individuals with genetic conditions face. We provide information, support families and influence the services needed by these patients. Our work includes: reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

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ukmasto.org

ukmasto.org ukmasto.org           
The UK Mastocytosis Support Group
Vision for UK Masto: To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

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drtaniadempsey.com

drtaniadempsey.com drtaniadempsey.com           
Dr. Tania Dempsey | New York | Lyme Disease Specialist
While most doctors treat symptoms, Dr. Tania Dempsey treats the cause of the symptoms to find the root cause of your mystery illness.

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raredisorders.org.nz

raredisorders.org.nz raredisorders.org.nz           
Rare Disorders NZ
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues

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raredisorders.ca

raredisorders.ca raredisorders.ca           
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders


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htlvaware.com

htlvaware.com htlvaware.com           
HTLV Home
HTLV Aware Home Page. We felt that too many patients with HTLV and their relatives, too many clinicians and scientists did not know what HTLV was. We felt that everybody has the right to quick, accurate and easily accessible information online.

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bluematterconsulting.com

bluematterconsulting.com bluematterconsulting.com           
Blue Matter Consulting
Blue Matter is a group of management consultants passionate about adding value at every stage of the product and company lifecycle.

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mastattack.org

mastattack.org mastattack.org           
Mast Attack - Educating people about life with mast cell disorders
Educating people about life with mast cell disorders


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medunikusa.com

medunikusa.com medunikusa.com           
Home | Medunik USA
Home | Medunik USA

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ehlersdanlosnews.com

ehlersdanlosnews.com ehlersdanlosnews.com           
Ehlers-Danlos News Home | Ehlers-Danlos News
The Web's Daily Resource for Ehlers-Danlos Syndrome

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ordindia.in

ordindia.in ordindia.in           
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.

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edsers.com

edsers.com edsers.com           
Treatment And Research Center For Rare Genetic Conditions - Edsers United Foundation
EDSers United Foundation Treatment and Research Center for Rare Genetic Conditions

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severe-chronic-neutropenia.org

severe-chronic-neutropenia.org severe-chronic-neutropenia.org           
SCNIR | Severe Chronic Neutropenia International Registry
SCNIR | Severe Chronic Neutropenia International Registry

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aoporphan.com

aoporphan.com aoporphan.com           
Home - AOP Health
AOP Orphan is now AOP Health

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ohtwist.com

ohtwist.com ohtwist.com           
Oh TWIST Home - Discover what could be making you so tired too!
Oh TWIST- Oh, That's Why I'm So Tired! Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.

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erare.eu

erare.eu erare.eu           
Research Programmes on Rare Diseases (E-RARE)
Discover the importance of research programs on rare diseases and how they contribute to medical advancements. Learn about initiatives like the European Joint Programme on Rare Diseases (EJP RD).


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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society

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recordatirarediseases.com

recordatirarediseases.com recordatirarediseases.com           
Home | Recordati Rare Diseases
At Recordati Rare Diseases, we focus on the few - those affected by rare diseases. We believe that every single patient has the right to the best possible treatment.

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medunikcanada.com

medunikcanada.com medunikcanada.com           
Home | Medunik Canada
Home | Medunik Canada


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htlv1.eu

htlv1.eu htlv1.eu           

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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
The Ehlers-Danlos Support UK - Support for people touched by the Ehlers-Danlos syndromes
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes

Moz DA: 53 Moz Rank: 4.8 Semrush Rank: 79,718
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rarediseasesnetwork.org

rarediseasesnetwork.org rarediseasesnetwork.org           
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.

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franklincardiovascular.com

franklincardiovascular.com franklincardiovascular.com           
Home - Dr. Nicholas L. DePace, M.D., F.A.C.C.
Dr. Nicholas DePace is an expert and experienced Cardiologist. He is author of Medical books on Heart Repair and Autonomic Dysfunction

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rare-diseases.eu

rare-diseases.eu rare-diseases.eu           
European Conference on Rare Diseases - ECRD2022
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

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dysautonomiaclinic.com

dysautonomiaclinic.com dysautonomiaclinic.com           
Dysautonomia Clinic
Dysautonomia Clinic | Video and Phone Consults | Board Certified Neurologist | Patient Care | Psychotherapy | Nutrition | Life and Health Coaching

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ehlers-danlos.se

ehlers-danlos.se ehlers-danlos.se           
ehlers-danlos.se – PATIENTFÖRBUNDET FÖR DIG MED EDS/HSD
EDS, Ehlers-Danlos syndrom, Riksförbund är en rikstäckande intresseorganisation för människor med, eller anhöriga till, personer med Ehlers-Danlos syndrom (EDS). EDS Riksförbund arbetar för att göra information om EDS tillgänglig på svenska och skapa mötesplatser för personer med EDS. Syftet är att öka kunskapen om EDS i samhället; hos allmänheten, bland vårdpersonal och andra yrkeskategorier. EDS Riksförbund har givit ut informationsboken Min bok om EDS.


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rareadvocates.org

rareadvocates.org rareadvocates.org           
rareadvocates.org
Sucuri WebSite Firewall - Access Denied

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raregenomics.org

raregenomics.org raregenomics.org           
Rare Genomics Institute
Rare Genomics Institute connects patients to research institutions and
assists with logistics and fundraising.

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rarediseases.co.za

rarediseases.co.za rarediseases.co.za           
Rare Diseases SA
Bridging the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.

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irdirc.org

irdirc.org irdirc.org           
IRDiRC – International Rare Diseases Research Consortium
International Rare Diseases Research Consortium

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ehlersdanlos.dk

ehlersdanlos.dk ehlersdanlos.dk           
Ehlers-Danlos Foreningen i Danmark
Ehlers-Danlos’ syndrom er den hyppigste arvelige bindevævssygdom. Sygdommen medfører typisk hypermobile led. Hudens elasticitet og helingen ved sår er påvirket.

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ehlers-danlos.nl

ehlers-danlos.nl ehlers-danlos.nl           
Ehlers-Danlos
De Vereniging van Ehlers-Danlos patiënten (VED) bestaat sinds 1984. De vereniging is opgericht om mensen die aan EDS lijden te helpen bij al hun vragen, vragen waarmee ze vaak niet bij een arts terecht kunnen.


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dysautonomiainternational.org

dysautonomiainternational.org dysautonomiainternational.org           
Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement
Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement

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non-24.com

non-24.com non-24.com           
Non-24-Hour Sleep-Wake Disorder is a serious circadian rhythm disorder
Learn about Non-24-Hour Disorder here at the first site completely dedicated to those affected by the circadian rhythm disorder.


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tcapp.org

tcapp.org tcapp.org           
Make A Difference Today - The Coalition Against Pediatric Pain
Make A Difference Today - The Coalition Against Pediatric Pain

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rqmo.org

rqmo.org rqmo.org           
RQMO – Regroupement québécois des maladies orphelines
:: Regroupement québécois des maladies orphelines::

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geneticgenie.org

geneticgenie.org geneticgenie.org           
Genetic Genie - Free Raw DNA Data Analysis Upload Tools
Discover health-related variants with GenVue Discovery or use our genomic panels with 23andMe, AncestryDNA, or Whole Genome Sequencing data.

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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.

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rarerevolutionmagazine.com

rarerevolutionmagazine.com rarerevolutionmagazine.com           
Rare Disease Information Resources | Rare Revolution Magazine
Rare Revolution Magazine is a digital magazine giving a voice to patients affected by RARE conditions and the charities that represent and support them


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hypermobilitet.se

hypermobilitet.se hypermobilitet.se           
Ehlers-Danlos Syndrom och Hypermobilitet
Medicinsk information för vårdpersonal och lekmän


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chronicpainpartners.com

chronicpainpartners.com chronicpainpartners.com           
Ehlers-Danlos Support Groups and EDS education
Ehlers-Danlos Support Groups and EDS education

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hoffmancentre.com

hoffmancentre.com hoffmancentre.com           
Hoffman Centre for Integrative & Functional Medicine in Calgary
The Hoffman Centre for Integrative Medicine in Calgary offers an integrative, science-based healthcare approach by functional medicine doctor Bruce Hoffman.

Moz DA: 37 Moz Rank: 4 Semrush Rank: 362,594
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annabelleschallenge.org

annabelleschallenge.org annabelleschallenge.org           
Vascular EDS is a life limiting rare genetic disorder
UK registered charity supporting patients & families touched by Vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.

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camraredisease.org

camraredisease.org camraredisease.org           
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network

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positivelyrachel.com

positivelyrachel.com positivelyrachel.com           
Positively Rachel – art, photography, chronic illness advocate, home of newbietubies
This is the home page's excerpt

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mastcellaware.com

mastcellaware.com mastcellaware.com           
MastCellAware :: Raising awareness of the important role that mast cells play in all our lives
MastCellAware :: Raising awareness of the important role that mast cells play in all our lives

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cjdfoundation.org

cjdfoundation.org cjdfoundation.org           
Creutzfeldt-Jakob Disease Foundation |
Creutzfeldt-Jakob Disease Foundation |

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edstoday.org

edstoday.org edstoday.org           

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cjdsupport.org.au

cjdsupport.org.au cjdsupport.org.au           
CJD Support Group Network Australia
CJD Support Group Network Australia

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hdrcstudy.org

hdrcstudy.org hdrcstudy.org           
hdrcstudy.org
GoDaddy Security - Access Denied


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kxadvisors.com

kxadvisors.com kxadvisors.com           
Healthcare Strategy Consulting | Kx Advisors
Kx Advisors provides growth strategy consulting services to help healthcare executives achieve critical business goals. See how.


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ejcrim.com

ejcrim.com ejcrim.com           
European Journal of Case Reports in Internal Medicine
European Journal of Case Reports in Internal Medicine

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alexionpharma.com

alexionpharma.com alexionpharma.com           
Alexion
Alexion is a global biopharmaceutical company focused on developing life-changing therapies for people living with rare disorders.

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