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Rare Disease Day - NORD (National Organization for Rare Disorders)

Rare Disease Day USA | Alone we are Rare. Together we are Strong.
Categories: Marketing/Merchandising, Health and Wellness
Topics: nord (national organization for rare disorders), raise your hand, rare disease, rare disease day, rare disease day 2015, rare diseases

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Sites similar to rarediseaseday.us - Top 42 rarediseaseday.us alternatives

nord-rdb.com

nord-rdb.com nord-rdb.com           
Home - NORD (National Organization for Rare Disorders)
NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.


Categories: Health, Health and Wellness
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rarediseaseday.org

rarediseaseday.org rarediseaseday.org           
Rare Disease Day 2024
Raising awareness for patients, families and carers around the world that are affected by rare diseases.

Moz DA: 62 Moz Rank: 5.1 Semrush Rank: 276,129 Facebook ♡: 37,172
Categories: Health, Health and Wellness
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lplda.org

lplda.org lplda.org           
Familial Lipoprotein Lipase Deficiency - NORD (National Organization for Rare Disorders)
Familial Lipoprotein Lipase Deficiency - NORD (National Organization for Rare Disorders)



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rarediseases.org

rarediseases.org rarediseases.org           
Home - NORD (National Organization for Rare Disorders)
NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.

Moz DA: 70 Moz Rank: 6.2 Semrush Rank: 1,499 Facebook ♡: 1,291
Categories: Health, Health and Wellness
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runningforrarediseases.org

runningforrarediseases.org runningforrarediseases.org           
Running for Rare® Team - NORD (National Organization for Rare Disorders)
Through Running for Rare®, NORD’s signature charity running program, runners join together with community partners to raise awareness for rare diseases while fundraising to contribute to NORD programs for undiagnosed patients. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare disease community. The funds Read more >


Categories: Sports, Sports
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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...

Facebook ♡: 163
Categories: Business, Health and Wellness
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rareaction.org

rareaction.org rareaction.org           
Rare Action Network
The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment […]

Semrush Rank: 5,076,243
Categories: Non-Profit/Advocacy/NGO, Business
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rarediseasefoundation.org

rarediseasefoundation.org rarediseasefoundation.org           
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.

Semrush Rank: 4,363,547
Categories: Non-Profit/Advocacy/NGO, General Organizations
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eurordis.org

eurordis.org eurordis.org           
EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 1000 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe


Categories: Health, Health and Wellness
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rarediseasesinternational.org

rarediseasesinternational.org rarediseasesinternational.org           
Rare Diseases International Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.


Categories: Health, Business
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rarevoices.org.au

rarevoices.org.au rarevoices.org.au           
Rare Voices Australia
An estimated two million Australians live with a rare disease. Approximately 80% of rare diseases are genetic disorders.

Semrush Rank: 12,486,464
Categories: Business, Health and Wellness
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findacure.org.uk

findacure.org.uk findacure.org.uk           
Findacure | 7,000 rare diseases, 1 common goal
Findacure | 7,000 rare diseases, 1 common goal

Semrush Rank: 1,198,696
Categories: Business, Health and Wellness
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fromhopetocures.org

fromhopetocures.org fromhopetocures.org           
FromHopeToCures.org - FromHopeToCures.org
FromHopeToCures.org


Categories: Health, Business
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ordindia.org

ordindia.org ordindia.org           
Tabletki na dłuższy stosunek - TEST i ranking - wyłoniliśmy najlepsze tabletki na dłuższy stosunek
Poznaj zwycięzcę testu na najlepsze tabletki na dłuższy stosunek na rynku. Nasza recenzja, opinie użytkowników, działanie. Zobacz ranking i wybierz najskuteczniejsze i zaufane tabletki na dłuższy stosunek


Categories: Blogs/Wiki, Health and Wellness
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nzord.org.nz

nzord.org.nz nzord.org.nz           
Rare Disorders NZ
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues


Categories: Marketing/Merchandising, General Organizations
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everylifefoundation.org

everylifefoundation.org everylifefoundation.org           
EveryLife Foundation for Rare Diseases
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.

Moz DA: 46 Moz Rank: 4.6 Semrush Rank: 475,904
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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medunikusa.com

medunikusa.com medunikusa.com           
Home | Medunik USA
Home | Medunik USA

Semrush Rank: 2,278,382
Categories: Health, Business
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ngocommitteerarediseases.org

ngocommitteerarediseases.org ngocommitteerarediseases.org           
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care


Categories: Non-Profit/Advocacy/NGO, Business
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rareadvocates.org

rareadvocates.org rareadvocates.org           
rareadvocates.org
Sucuri WebSite Firewall - Access Denied

Semrush Rank: 1,416,987 Facebook ♡: 764
Categories: Business, Health and Wellness
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haystackproject.org

haystackproject.org haystackproject.org           
The Haystack Project
The Haystack Project


Categories: Health, General Organizations
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rarediseasesindia.org

rarediseasesindia.org rarediseasesindia.org           
Rare Diseases India
Rare Diseases India


Categories: Business, Health and Wellness
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rarediseasedayaustralia.com.au

rarediseasedayaustralia.com.au rarediseasedayaustralia.com.au           
Rare Disease Day Australia
Rare Disease Day Australia


Categories: Health, Health and Wellness
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rrd-foundation.org

rrd-foundation.org rrd-foundation.org           
Home | Recordati Rare Diseases foundation
Home | Recordati Rare Diseases foundation

Semrush Rank: 57,809,988
Categories: Business, General Organizations
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rarediseasefilmfestival.com

rarediseasefilmfestival.com rarediseasefilmfestival.com           
DISORDER: The Rare Disease Film Festival
Disorder: The Rare Disease FIlm Festival gathers the most rare films both
documentaries and narrative, shorts and feature length to screen to
researchers, patients, advocates and clinicians.

Semrush Rank: 2,709,600
Categories: Recreation/Hobbies, Entertainment
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raregenomics.org

raregenomics.org raregenomics.org           
Rare Genomics Institute
Rare Genomics Institute connects patients to research institutions and
assists with logistics and fundraising.

Moz DA: 47 Moz Rank: 4 Semrush Rank: 564,296 Facebook ♡: 203
Categories: Business, Health and Wellness
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msrosdancecloset.com

msrosdancecloset.com msrosdancecloset.com           
Ms. Ro's Dance Closet - Dancewear College Park, Atlanta, Georgia
Ms. Ro's Dance Closet is a retailer in College Park, Georgia offering dancewear, exercise apparel, shoes & accessories for both adults & children.

Semrush Rank: 2,701,774
Categories: Recreation/Hobbies, Shopping
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trufflesnbacon.com

trufflesnbacon.com trufflesnbacon.com           
Truffles N Bacon
Welcome to Truffles N Bacon Cafe! A self-taught chef with first-hand training with master chefs in the industry, Chef Lim is reckoned to be artistic with her cooking style and turns regular dishes to a heightened flavorful dish with her Intercontinental Asian inspired cuisine.


Categories: Restaurants, Restaurant and Dining
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rarediseases.co.za

rarediseases.co.za rarediseases.co.za           
Rare Diseases SA
Bridging the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.

Semrush Rank: 7,717,120
Categories: Health, Health and Wellness
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irdirc.org

irdirc.org irdirc.org           
IRDiRC – International Rare Diseases Research Consortium
International Rare Diseases Research Consortium

Semrush Rank: 3,982,636
Categories: Health, Health and Wellness
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events-support.com

events-support.com events-support.com           
Events-Support Web Site
Events-Support Web Site

Semrush Rank: 2,007,688
Categories: Business, Health and Wellness
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alexionpharma.com

alexionpharma.com alexionpharma.com           
Alexion
Alexion is a global biopharmaceutical company focused on developing life-changing therapies for people living with rare disorders.

Facebook ♡: 0
Categories: Business, Health and Wellness
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raredisorders.ca

raredisorders.ca raredisorders.ca           
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders


Categories: Health, Health and Wellness
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rdss.org.sg

rdss.org.sg rdss.org.sg           
RDSS | Love Is Not Rare
RDSS | Love Is Not Rare


Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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ordindia.in

ordindia.in ordindia.in           
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.

Semrush Rank: 2,492,891
Categories: Health, Business
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rareundiagnosed.org

rareundiagnosed.org rareundiagnosed.org           
Rare & Undiagnosed Network
To empower rare & undiagnosed patients and their families with genomic information and community through advocacy, networking and support.

Semrush Rank: 3,283,855
Categories: Health, Health and Wellness
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dup15q.org

dup15q.org dup15q.org           
Dup15Q Alliance |
Dup15q Alliance - chromosome 15q duplication syndrome


Categories: Business, Health and Wellness
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erare.eu

erare.eu erare.eu           
Research Programmes on Rare Diseases (E-RARE)
Discover the importance of research programs on rare diseases and how they contribute to medical advancements. Learn about initiatives like the European Joint Programme on Rare Diseases (EJP RD).


Categories: Business, Health and Wellness
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innovation.org

innovation.org innovation.org           
Medicines in Development | PhRMA
By constantly developing new medicines, America’s biopharmaceutical research companies help prevent diseases, improve patient health, and save lives.

Facebook ♡: 120
Categories: Health, Business
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globalgenes.org

globalgenes.org globalgenes.org           
Homepage - Global Genes
Homepage - Global Genes

Semrush Rank: 228,321 Facebook ♡: 3,785
Categories: Health/Conditions and Diseases, Health/Child Health, Business/Biotechnology and Pharmaceuticals, Business, General Organizations
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rarediseasesnetwork.org

rarediseasesnetwork.org rarediseasesnetwork.org           
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.

Facebook ♡: 292
Categories: Education/Reference, Health and Wellness
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rare-diseases.eu

rare-diseases.eu rare-diseases.eu           
European Conference on Rare Diseases - ECRD2022
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

Facebook ♡: 9
Categories: Education/Reference, Health and Wellness
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rarepatientvoice.com

rarepatientvoice.com rarepatientvoice.com           
Providing patients and caregivers a voice - Rare Patient Voice
Rare Patient Voice helps patients and caregivers voice their opinions through surveys and interviews to improve medical products and services.

Semrush Rank: 1,442,130
Categories: Business, Health and Wellness
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