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Homepage - Global Genes

Homepage - Global Genes

Categories: Health/Conditions and Diseases, Health/Child Health, Business/Biotechnology and Pharmaceuticals, Business, General Organizations
Topics: allies in rare disease, g tube, gastrostomy tube, global genes, j tube, peg tube, rare diseases

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globalgenes.org
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Sites similar to globalgenes.org - Top 60 globalgenes.org alternatives

livingwithlems.org

livingwithlems.org livingwithlems.org           
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.


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learnaboutnarcolepsy.org

learnaboutnarcolepsy.org learnaboutnarcolepsy.org           
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.



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rareproject.org

rareproject.org rareproject.org           
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.


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feedingtubeawareness.org

feedingtubeawareness.org feedingtubeawareness.org           
Feeding Tube Awareness Foundation
Feeding Tube Awareness Foundation shares practical information on tube feeding and raises positive awareness.



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miami-als.org

miami-als.org miami-als.org           
ALS Center | University of Miami
ALS Center | University of Miami



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rarediseases.org

rarediseases.org rarediseases.org           
Home - NORD (National Organization for Rare Disorders)
NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.


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rarechromo.org

rarechromo.org rarechromo.org           
Unique | Understanding Rare Chromosome and Gene Disorders
Unique | Understanding Rare Chromosome and Gene Disorders


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rarediseaseday.org

rarediseaseday.org rarediseaseday.org           
Rare Disease Day 2024
Raising awareness for patients, families and carers around the world that are affected by rare diseases.


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g-pact.org

g-pact.org g-pact.org           
Home | G-PACT
Home | G-PACT



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mic-key.com

mic-key.com mic-key.com           
Enteral Feeding Tube Supplies & Resources | TubeFed
TubeFed is here to help you with your enteral feeding needs. We strive to provide you with up-to-date resources & information regarding enteral feeding tubes.


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oley.org

oley.org oley.org           
Oley Foundation Home Page
Oley Foundation Home Page


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tarlovcystfoundation.org

tarlovcystfoundation.org tarlovcystfoundation.org           
Tarlov Cyst Disease Foundation | Promoting Research and Education about Tarlov Cysts
A non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts.


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tube-feeding.com

tube-feeding.com tube-feeding.com           
Home - Tube Feeding
Home - Tube Feeding


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eurordis.org

eurordis.org eurordis.org           
EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 1000 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe



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malacards.org

malacards.org malacards.org           
Attention Required! | Cloudflare


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everylifefoundation.org

everylifefoundation.org everylifefoundation.org           
EveryLife Foundation for Rare Diseases
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.


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aarda.org

aarda.org aarda.org           
Autoimmune Info - American Autoimmune Related Diseases Association
Autoimmune diseases affect 20% of the US population - 75% are women. AARDA educates elected officials, medical professionals and the public on autoimmunity.


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Categories: Health/Conditions and Diseases, Science/Biology, Health/Support Groups, Health, Health and Wellness
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apfed.org

apfed.org apfed.org           
Home - Apfed
Home - Apfed


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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society


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shieldhealthcare.com

shieldhealthcare.com shieldhealthcare.com           
Shield HealthCare | Medical Supplies for Care at Home Since 1957!
Shield HealthCare provides medical products for care at home: incontinence supplies, urological supplies, ostomy supplies, enteral nutrition supplies, and wound care supplies.


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Categories: Shopping/Health, Health/Conditions and Diseases, Health, Health and Wellness
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pinnt.com

pinnt.com pinnt.com           
PINNT: Advocacy & support for people on home artificial nutrition (HAN): parenteral, enteral & oral nutritional supplements. | PINNT
PINNT: Advocacy & support for people on home artificial nutrition (HAN): parenteral, enteral & oral nutritional supplements.



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asge.org

asge.org asge.org           
ASGE | American Society for Gastrointestinal Endoscopy | ASGE
ASGE is the leader in advancing patient care and digestive health by promoting excellence and innovation in endoscopy.
Mechanical engineering professional society. The American Society of Mechanical Engineers (ASME) is an American professional association that, in its own words, "promotes the art, science, and practice of multidisciplinary engineering and allied sciences around the globe" via "continuing education, training and professional development, codes and standards, research, conferences and publications, government relations, and other forms of outreach." ASME is thus an engineering society, a standards organization, a research and development organization, an advocacy organization, a provider of training and education, and a nonprofit organization. Founded as an engineering society focused on mechanical engineering in North America, ASME is today multidisciplinary and global. ASME has over 85,000 members in more than 135 countries worldwide.ASME was founded in 1880 by Alexander Lyman Holley, Henry Rossiter Worthington, John Edison Sweet and Matthias N. Forney in response to numerous steam boiler pressure vessel failures. Known for setting codes and standards for mechanical devices, ASME conducts one of the world's largest technical publishing operations, holds numerous technical conferences and hundreds of professional development courses each year and sponsors numerous outreach and educational programs. Georgia Tech president and women engineer supporter Blake R Van Leer was an executive member.

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omim.org

omim.org omim.org           
Online Mendelian Inheritance in Man (OMIM)
Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily. The full-text, referenced overviews in OMIM contain information on all known mendelian disorders and over 15,000 genes. OMIM focuses on the relationship between phenotype and genotype. It is updated daily, and the entries contain copious links to other genetics resources.


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halyardhealth.com

halyardhealth.com halyardhealth.com           
Innovative Healthcare Solutions | HALYARD
Halyard, part of the Owens & Minor Global Products Division, is focused on moving care forward. Our $1.2 billion portfolio of market-leading brands includes HALYARD, MEDICHOICE and MEDICAL ACTION are sold in more than 90 countries. Halyard’s broad portfolio offers the right product for each need, backed by best-in-class clinical expertise and more support at points of care. Our product standardization opportunities combined with supply chain expertise help drive efficiencies and protect healthcare providers from risks and disruptions in care.


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patientworthy.com

patientworthy.com patientworthy.com           
Rare Patient News. Well Done. - Patient Worthy
PODCAST: WAIT, HOW DO YOU SPELL THAT? PATIENT WORTHY SERIES THE LATEST FROM PATIENT WORTHY OF INTEREST Research in Treatment Options for Primary Biliary Cholangitis (PBC) Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH) PATIENT STORIES VIEW ALL » GET INVOLVED Make a difference, […]


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frankfeigenbaum.com

frankfeigenbaum.com frankfeigenbaum.com           
Experienced Tarlov, Meningeal Cyst Neurosurgeon - Frank Feigenbaum, MD
Experienced Tarlov and Meningeal Cyst neurosurgeon, Dr. Feigenbaum, provides significant improvement of symptoms using minimally invasive techniques.



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cincinnatichildrens.org

cincinnatichildrens.org cincinnatichildrens.org           
Cincinnati Children's Hospital Medical Center
Caring for infants to adolescents, Cincinnati Children's Hospital Medical Center is an international leader in pediatric medicine, research and education.


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thetubefedwife.blogspot.com

thetubefedwife.blogspot.com thetubefedwife.blogspot.com           
A Day in the Life of The Tube Fed Wife
An honest, yet uplifting glimpse into the mind of a young wife battling Mixed Connective Tissue Disease.


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weillcornellbrainandspine.org

weillcornellbrainandspine.org weillcornellbrainandspine.org           
Brain & Spine Center | Weill Cornell Medicine
Brain & Spine Center | Weill Cornell Medicine


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22qfamilyfoundation.org

22qfamilyfoundation.org 22qfamilyfoundation.org           
22q Family Foundation
Taking the Mystery Out of 22q


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mpssociety.org

mpssociety.org mpssociety.org           
National MPS Society - We Help Cure, Support, & Advocate for MPS & ML
We support life-saving research for mucopolysaccharidosis (MPS) & mucolipidosis (ML), and we provide community resources, support, & more.


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gosh.nhs.uk

gosh.nhs.uk gosh.nhs.uk           
Great Ormond Street Hospital | Great Ormond Street Hospital Website Homepage
This is the homepage for Great Ormond Street Hospital Trust website.


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gi.org

gi.org gi.org           
Home Page - American College of Gastroenterology
Home Page - American College of Gastroenterology
Prime Minister of Italy since 2022. Giorgia Meloni (Italian pronunciation: [ˈdʒordʒa meˈloːni]; born 15 January 1977) is an Italian politician who has been serving as the prime minister of Italy since 22 October 2022, the first woman to hold this position. A member of the Chamber of Deputies since 2006, she has led the Brothers of Italy (FdI) political party since 2014, and she has been the president of the European Conservatives and Reformists Party since 2020. In 1992, Meloni joined the Youth Front, the youth wing of the Italian Social Movement (MSI), a neo-fascist political party founded in 1946 by former followers of Italian fascist dictator Benito Mussolini. She later became the national leader of Student Action, the student movement of the National Alliance (AN), a post-fascist party that became the MSI's legal successor in 1995 and moved towards national conservatism. She was a councillor of the Province of Rome from 1998 to 2002, after which she became the president of Youth Action, the youth wing of AN. In 2008, she was appointed Italian Minister of Youth in the Berlusconi IV Cabinet, a role which she held until 2011.

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notube.com

notube.com notube.com           
NoTubes experts for tube weaning and feeding therapy
We treat children and adolescents who have difficulty eating and specialize in weaning tube-fed children.


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counsyl.com

counsyl.com counsyl.com           
Home | Myriad Women's Health
Home | Myriad Women's Health


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genedx.com

genedx.com genedx.com           
GeneDx | Clinical Genomics | Genetic Testing | Rapid Results | GeneDx
GeneDx is a leader in clinical genomics and rare disease. Read about our unparalleled database, deep clinical knowledge and expertise in variant interpretation.


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childrenshospital.org

childrenshospital.org childrenshospital.org           
Home Page | Boston Children's Hospital
Home Page | Boston Children's Hospital


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mitoaction.org

mitoaction.org mitoaction.org           
MitoAction - Helping People With Mitochondrial Disease
MitoAction is a nonprofit organization founded to make a measurable impact in the lives of those who are affected by mitochondrial disease.


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raremark.com

raremark.com raremark.com           
Rare Disease Health Info & Community
Learn about numerous rare diseases including symptoms, diagnosis, treatment, patient stories & more from a rare disease community perspective.


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eosinophilicesophagitishome.org

eosinophilicesophagitishome.org eosinophilicesophagitishome.org           
Eosinophilic Esophagitis Home - A reliable source for patients and families on Eosinophilic Esophagitis diagnosis, management, and treatment.
A reliable source for patients and families on Eosinophilic Esophagitis diagnosis, management, and treatment.



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ihrfoundation.org

ihrfoundation.org ihrfoundation.org           
Captcha



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umdf.org

umdf.org umdf.org           
UMDF | Mitochondrial Disease Education & Research
New Design



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mdds.org.uk

mdds.org.uk mdds.org.uk           
Mal de Debarquement Syndrome (MdDS) – MdDS Information and Help
Mal de Debarquement Syndrome (MdDS) - MdDS Information and Help


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dup15q.org

dup15q.org dup15q.org           
Dup15Q Alliance |
Dup15q Alliance - chromosome 15q duplication syndrome



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genome.gov

genome.gov genome.gov           
National Human Genome Research Institute Home | NHGRI
Official website of the National Human Genome Research Institute. The Forefront of Genomics.


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chromodisorder.org

chromodisorder.org chromodisorder.org           
Chromosome Disorder Outreach Inc | chromosome disorder info & support
Chromosome Disorder Outreach Inc a nonprofit organization supporting rare chromosome and single gene mutation disorders for over 28 years. Join us.


Semrush Rank: 2,654,994 Facebook ♡: 104
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thinkgenetic.com

thinkgenetic.com thinkgenetic.com           
Home | ThinkGenetic
Home | ThinkGenetic


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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...


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asap.org

asap.org asap.org           
ASAP » American Syringomyelia & Chiari Alliance Project - Chiari malformation and syringomyelia information
ASAP'S MISSION
To improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find the cure Newly Diagnosed? Click here to get information
FOR PATIENTS, FAMILY & FRIENDS


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choc.org

choc.org choc.org           
CHOC - Children's Hospital of Orange County
Named a best children's hospital by U.S. News & World Report, CHOC is defining the future of pediatric medicine.


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rareconnect.org

rareconnect.org rareconnect.org           
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.



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rarediseaseday.us

rarediseaseday.us rarediseaseday.us           
Rare Disease Day - NORD (National Organization for Rare Disorders)
Rare Disease Day USA | Alone we are Rare. Together we are Strong.



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mda.org

mda.org mda.org           
Muscular Dystrophy Association
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research.
Political party in the Maldives. The Maldivian Democratic Party (Dhivehi: ދިވެހި ރައްޔިތުންގެ ޑިމޮކްރެޓިކް ޕާޓީ, Dhivehi Rayyithunge Demokretik Paati; MDP) is the first political party formed in the Republic of Maldives with a total membership of 53,139 individuals as of 11 July 2021. It is a party with its stated goal being the promotion of human rights and democracy in the Maldives. The party won the first ever multi-party elections in the Maldives with the support from all the other political parties in the 2008 elections against the president Maumoon Abdul Gayoom.

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checkorphan.org

checkorphan.org checkorphan.org           
CheckOrphan
CheckOrphan


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managedhealthcareconnect.com

managedhealthcareconnect.com managedhealthcareconnect.com           
Population Health Learning Network | Home
The Population Health Learning Network serves as a robust hub of information and insight for health care providers and decision-makers focused on key issues in population health management, long-term care, managed care, pharmacy, veteran health, and the latest legislative changes.


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diseaseinfosearch.org

diseaseinfosearch.org diseaseinfosearch.org           
Disease InfoSearch - Your guide to the best disease information and support on the internet.
Disease InfoSearch will locate quality information for 10,000 diseases, including support groups, resources, clinical trials, articles, and more.


Semrush Rank: 6,644,981 Facebook ♡: 119
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ulf.org

ulf.org ulf.org           
HOME - United Leukodystrophy Foundation
Discover how United Leukodystrophy Foundation in DeKalb, IL supports medical research, provides referrals, and more.
. Ulfborg-Vemb was a municipality (Danish, kommune) in the former Ringkjøbing County on the west coast of the Jutland peninsula in west Denmark. By January 1, 2007, Ulfborg-Vemb municipality ceased to exist due to Kommunalreformen ("The Municipality Reform" of 2007). It was merged with existing Holstebro and Vinderup municipalities to form the new Holstebro municipality. This created a municipality with an area of 790 km2 and a total population of 56,204. Ulfborg-Vemb covered an area of 226 km2, and had a total population of 6,959 (2005).


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mddsfoundation.org

mddsfoundation.org mddsfoundation.org           
Mal de Débarquement, Debarkation Syndrome | MdDS Foundation
Mal de Débarquement, Disembarkment or Debarkation Syndrome is a disorder that leaves patients with a constant feeling of movement, as if on a boat. The MdDS Foundation advocates for and seeks treatments to end the suffering from MdDS. Learn more!



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klsfoundation.org

klsfoundation.org klsfoundation.org           
KLS Foundation - One in a Million People Worldwide live with KLS
The KLS Foundation provides information and support to those diagnosed with KLS and their families.



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endpts.com

endpts.com endpts.com           
Endpoints News - Biotech, drug, pharma and health news for business and professional readers
Biotech, drug, pharma and health news for business and professional readers


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