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Rare Disease Day 2024

Raising awareness for patients, families and carers around the world that are affected by rare diseases.
Categories: Health, Health and Wellness
Topics: rare disease day 2021

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Sites similar to rarediseaseday.org - Top 46 rarediseaseday.org alternatives

eurordis.org

eurordis.org eurordis.org           
EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 1000 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe


Categories: Health, Health and Wellness
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rarediseaseday.us

rarediseaseday.us rarediseaseday.us           
Rare Disease Day - NORD (National Organization for Rare Disorders)
Rare Disease Day USA | Alone we are Rare. Together we are Strong.


Categories: Marketing/Merchandising, Health and Wellness
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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...

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rarediseases.org

rarediseases.org rarediseases.org           
Home - NORD (National Organization for Rare Disorders)
NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.

Moz DA: 70 Moz Rank: 6.2 Semrush Rank: 1,499 Facebook ♡: 1,291
Categories: Health, Health and Wellness
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misophoniainternational.com

misophoniainternational.com misophoniainternational.com           
Misophonia International - Resources for Misophonia
Resources for Misophonia

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Categories: Blogs/Wiki, Personal Websites and Blogs
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neuronresearch.net

neuronresearch.net neuronresearch.net           
The Complete Neural System
A comprehensive electrolytic theory and description of the neurons and the neural system


Categories: Business, Health and Wellness
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findacure.org.uk

findacure.org.uk findacure.org.uk           
Findacure | 7,000 rare diseases, 1 common goal
Findacure | 7,000 rare diseases, 1 common goal

Semrush Rank: 1,198,696
Categories: Business, Health and Wellness
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globalgenes.org

globalgenes.org globalgenes.org           
Homepage - Global Genes
Homepage - Global Genes

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Categories: Health/Conditions and Diseases, Health/Child Health, Business/Biotechnology and Pharmaceuticals, Business, General Organizations
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allergictosound.com

allergictosound.com allergictosound.com           
Misophonia and Misokinesia Support - Allergic to Sound
Allergic to Sound is a free online resource, research and support network for people with misophonia, misokinesia and Sensory Processing Disorder.

Semrush Rank: 1,234,287 Facebook ♡: 70
Categories: Education/Reference, Personal Websites and Blogs
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everylifefoundation.org

everylifefoundation.org everylifefoundation.org           
EveryLife Foundation for Rare Diseases
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.

Moz DA: 46 Moz Rank: 4.6 Semrush Rank: 475,904
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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rarediseasesinternational.org

rarediseasesinternational.org rarediseasesinternational.org           
Rare Diseases International Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.


Categories: Health, Business
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visualsnowsyndrome.com

visualsnowsyndrome.com visualsnowsyndrome.com           
The Visual Snow Foundation - Raising awareness of Visual Snow Syndrome
Imagine dots flickering throughout your entire vision — 24/7 — without a cure. Visual Snow Syndrome ('VS') is a rare but devastating neurological condition that can affect an individual’s vision, hearing, and cognitive functioning.

Semrush Rank: 8,957,684
Categories: Health, Health and Wellness
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misophoniainstitute.org

misophoniainstitute.org misophoniainstitute.org           
Misophonia Institute | Research, Education & Treatment
Know more about Misophonia, what it is, causes, symptoms, diagnosis, treatment and latest researchs. Explore Misophonia Institute for more details.

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rarevoices.org.au

rarevoices.org.au rarevoices.org.au           
Rare Voices Australia
An estimated two million Australians live with a rare disease. Approximately 80% of rare diseases are genetic disorders.

Semrush Rank: 12,486,464
Categories: Business, Health and Wellness
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ordindia.org

ordindia.org ordindia.org           
Tabletki na dłuższy stosunek - TEST i ranking - wyłoniliśmy najlepsze tabletki na dłuższy stosunek
Poznaj zwycięzcę testu na najlepsze tabletki na dłuższy stosunek na rynku. Nasza recenzja, opinie użytkowników, działanie. Zobacz ranking i wybierz najskuteczniejsze i zaufane tabletki na dłuższy stosunek


Categories: Blogs/Wiki, Health and Wellness
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misophonia.com

misophonia.com misophonia.com           

Moz DA: 49 Moz Rank: 3.7 Semrush Rank: 10,424,853 Facebook ♡: 5,192
Categories: Marketing/Merchandising, Health and Wellness
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rarediseasesindia.org

rarediseasesindia.org rarediseasesindia.org           
Rare Diseases India
Rare Diseases India


Categories: Business, Health and Wellness
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neurologytimes.com

neurologytimes.com neurologytimes.com           
NeurologyLive - Clinical Neurology News and Neurology Expert Insights
NeurologyLive is your direct connection to the latest neurology news and interviews with expert neurologists in multimedia formats.

Semrush Rank: 106,600
Categories: Health, Health and Wellness
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ngocommitteerarediseases.org

ngocommitteerarediseases.org ngocommitteerarediseases.org           
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care


Categories: Non-Profit/Advocacy/NGO, Business
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rarediseasesnetwork.org

rarediseasesnetwork.org rarediseasesnetwork.org           
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.

Facebook ♡: 292
Categories: Education/Reference, Health and Wellness
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rareconnect.org

rareconnect.org rareconnect.org           
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.


Categories: Health, Health and Wellness
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rare-diseases.eu

rare-diseases.eu rare-diseases.eu           
European Conference on Rare Diseases - ECRD2022
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

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fromhopetocures.org

fromhopetocures.org fromhopetocures.org           
FromHopeToCures.org - FromHopeToCures.org
FromHopeToCures.org


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patientworthy.com

patientworthy.com patientworthy.com           
Rare Patient News. Well Done. - Patient Worthy
PODCAST: WAIT, HOW DO YOU SPELL THAT? PATIENT WORTHY SERIES THE LATEST FROM PATIENT WORTHY OF INTEREST Research in Treatment Options for Primary Biliary Cholangitis (PBC) Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH) PATIENT STORIES VIEW ALL » GET INVOLVED Make a difference, […]

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rareadvocates.org

rareadvocates.org rareadvocates.org           
rareadvocates.org
Sucuri WebSite Firewall - Access Denied

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raregenomics.org

raregenomics.org raregenomics.org           
Rare Genomics Institute
Rare Genomics Institute connects patients to research institutions and
assists with logistics and fundraising.

Moz DA: 47 Moz Rank: 4 Semrush Rank: 564,296 Facebook ♡: 203
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axonoptics.com

axonoptics.com axonoptics.com           
Axon Optics Migraine & Light Sensitivity Glasses
Manage the Impact of Light on Your Life with Axon Optics powered by Avulux Migraine & Light Sensitivity Lenses – the only clinically proven lens that precisely filters light to help people living with migraine.

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Categories: Fashion/Beauty, Health and Wellness
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irdirc.org

irdirc.org irdirc.org           
IRDiRC – International Rare Diseases Research Consortium
International Rare Diseases Research Consortium

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Categories: Health, Health and Wellness
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misophonia-uk.org

misophonia-uk.org misophonia-uk.org           
MISOPHONIA UK
Homepage of Misophonia UK

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Categories: Health, Health and Wellness
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rarediseasefoundation.org

rarediseasefoundation.org rarediseasefoundation.org           
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.

Semrush Rank: 4,363,547
Categories: Non-Profit/Advocacy/NGO, General Organizations
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alexionpharma.com

alexionpharma.com alexionpharma.com           
Alexion
Alexion is a global biopharmaceutical company focused on developing life-changing therapies for people living with rare disorders.

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raredisorders.ca

raredisorders.ca raredisorders.ca           
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders


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icpcare.org

icpcare.org icpcare.org           
Helping Those Diagnosed with Intrahepatic Cholestasis of Pregnancy - ICP Care
Everything you need to know about Intrahepatic Cholestasis of Pregnancy. Download, print, share research based information with healthcare providers


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worldwaterday.org

worldwaterday.org worldwaterday.org           
World Water Day 2021 | 22 MARCH WORLD WATER DAY
World Water Day, held on 22 March every year since 1993, celebrates water and raises awareness of the 2.2 billion people living without access to safe water. It is about taking action to tackle the global water crisis and achieving Sustainable Development Goal 6: water and sanitation for all by 2030.

Moz DA: 66 Moz Rank: 5.5 Semrush Rank: 976,727 Facebook ♡: 548
Categories: Non-Profit/Advocacy/NGO, General Organizations
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visualsnowinitiative.org

visualsnowinitiative.org visualsnowinitiative.org           
Home | Visual Snow Initiative
Visual Snow Syndrome (VSS) is a neurological disorder that impacts an individual's vision, hearing, cognition, sensory processing, and quality of life. The

Semrush Rank: 583,628 Facebook ♡: 2,315
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leightons.co.uk

leightons.co.uk leightons.co.uk           
Opticians & Hearing Specialist | Eye Test | Leightons
Leightons Opticians offers friendly professional care, prescription glasses & sunglasses, contact lenses & hearing products. Visit your local branch now

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aoporphan.com

aoporphan.com aoporphan.com           
Home - AOP Health
AOP Orphan is now AOP Health

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innovation.org

innovation.org innovation.org           
Medicines in Development | PhRMA
By constantly developing new medicines, America’s biopharmaceutical research companies help prevent diseases, improve patient health, and save lives.

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ifopa.org

ifopa.org ifopa.org           
Home

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saferinternetday.org

saferinternetday.org saferinternetday.org           
Home - Safer Internet Day - BIK Community
Safer Internet Day (SID) is organised by Insafe in February of each year to promote safer and more responsible use of online technology and mobile phones, especially among children and young people in Europe and across the world.


Categories: Technical Information, Business
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misophoniatreatment.com

misophoniatreatment.com misophoniatreatment.com           
misophoniatreatment.com
Sucuri WebSite Firewall - Access Denied

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Categories: Health, Health and Wellness
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rareaction.org

rareaction.org rareaction.org           
Rare Action Network
The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment […]

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Categories: Non-Profit/Advocacy/NGO, Business
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worldcancerday.org

worldcancerday.org worldcancerday.org           
StackPath
StackPath

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findzebra.com

findzebra.com findzebra.com           
FindZebra
FindZebra

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nzord.org.nz

nzord.org.nz nzord.org.nz           
Rare Disorders NZ
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues


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events-support.com

events-support.com events-support.com           
Events-Support Web Site
Events-Support Web Site

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