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Rare Patient News. Well Done. - Patient Worthy

PODCAST: WAIT, HOW DO YOU SPELL THAT? PATIENT WORTHY SERIES THE LATEST FROM PATIENT WORTHY OF INTEREST Research in Treatment Options for Primary Biliary Cholangitis (PBC) Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH) PATIENT STORIES VIEW ALL » GET INVOLVED Make a difference, […]

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Topics: meme you got this, patient worthy, quentin martin cmt, rare patient news. well done, sunflower eyes, take care of yourself meme, you got this meme

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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
The Ehlers-Danlos Support UK - Support for people touched by the Ehlers-Danlos syndromes
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes


Moz DA: 53 Moz Rank: 4.8 Semrush Rank: 79,718
Categories: Education/Reference, Health and Wellness
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ohiopt.org

ohiopt.org ohiopt.org           
ohiopt.org
ohiopt.org


Facebook ♡: 3
Categories: Education/Reference, General Organizations
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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.


Semrush Rank: 2,159,555
Categories: Health, Business
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chronicpainpartners.com

chronicpainpartners.com chronicpainpartners.com           
Ehlers-Danlos Support Groups and EDS education
Ehlers-Danlos Support Groups and EDS education


Semrush Rank: 512,231
Categories: Health, Health and Wellness
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rarediseaseday.org

rarediseaseday.org rarediseaseday.org           
Rare Disease Day 2024
Raising awareness for patients, families and carers around the world that are affected by rare diseases.


Moz DA: 62 Moz Rank: 5.1 Semrush Rank: 276,129 Facebook ♡: 37,172
Categories: Health, Health and Wellness
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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society


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Categories: Health, Health and Wellness
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addisons.org.au

addisons.org.au addisons.org.au           
The Australian Addison's Disease Association, Inc. - AADAI provides valuable resources on adrenal insufficiency to the medical community, patients and carers. This non-profit organisation has more than 300 members across the country who are living with either Addison's Disease or other forms of adrenal insufficiency.



Categories: Health, Health and Wellness
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globalgenes.org

globalgenes.org globalgenes.org           
Homepage - Global Genes
Homepage - Global Genes


Semrush Rank: 228,321 Facebook ♡: 3,785
Categories: Health/Conditions and Diseases, Health/Child Health, Business/Biotechnology and Pharmaceuticals, Business, General Organizations
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rareconnect.org

rareconnect.org rareconnect.org           
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.



Categories: Health, Health and Wellness
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checkorphan.org

checkorphan.org checkorphan.org           
CheckOrphan
CheckOrphan


Moz DA: 40 Moz Rank: 3.6 Semrush Rank: 2,062,222 Facebook ♡: 5
Categories: Health and Wellness
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diseaseinfosearch.org

diseaseinfosearch.org diseaseinfosearch.org           
Disease InfoSearch - Your guide to the best disease information and support on the internet.
Disease InfoSearch will locate quality information for 10,000 diseases, including support groups, resources, clinical trials, articles, and more.


Semrush Rank: 6,644,981 Facebook ♡: 119
Categories: Marketing/Merchandising, Health and Wellness
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strengthflexibilityhealtheds.com

strengthflexibilityhealtheds.com strengthflexibilityhealtheds.com           
2020 Home - Strength Flexibility Health EDS
Strength/Flexibility/Health/EDS – the ONLY digital magazine for living well with hypermobility disorders, such as Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD) & related conditions. #LiveEDSStrong Recent Posts “,”nextArrow”:”“,”autoplay”:false,”autoplaySpeed”:5000,”rtl”:false}’ dir=”ltr”> June 21, 2018 40 Years Old in 4 Months – Day 1 June 20, 2018 Heat Therapy for the Treatment of Chronic Pain – Avacen Product … 2020 Home Read More »


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Categories: Health, Personal Websites and Blogs
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myastheniagravisnews.com

myastheniagravisnews.com myastheniagravisnews.com           
Myasthenia Gravis News Home
The Web's Daily Resource for Myasthenia Gravis News


Semrush Rank: 83,068
Categories: Health, Health and Wellness
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lyme-disease-research-database.com

lyme-disease-research-database.com lyme-disease-research-database.com           
Home
Welcome to the Lyme Disease Research Database. Independent reporting on all aspects of Lyme Disease.



Categories: Health, Health and Wellness
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alanspanosmd.com

alanspanosmd.com alanspanosmd.com           
Ehlers Danlos Syndrome (EDS) - Alan Spanos MD
For over thirty years I worked with patients with various complex chronic illnesses. However, I now dedicate my practice exclusively to the care of patients with an Ehlers Danlos Syndrome (EDS), and similar conditions. Ehlers Danlos Syndrome (EDS) is the name for a group of conditions, in which many joints are looser than normal, i.e. […]


Semrush Rank: 1,594,411

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autoinflammatory.org

autoinflammatory.org autoinflammatory.org           
Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.


Semrush Rank: 1,932,411 Facebook ♡: 2,040
Categories: Health, Health and Wellness
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newmoonfitness.com

newmoonfitness.com newmoonfitness.com           
Fitness – Teresa Wymore
Fitness - Teresa Wymore



Categories: Blogs/Wiki, Sports
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narcolepsynetwork.org

narcolepsynetwork.org narcolepsynetwork.org           
Narcolepsy Network - Benefits and services for people with Narcolepsy
Narcolepsy Network is a national patient support organization founded in 1986. We are a nonprofit organization that relies on our member.


Facebook ♡: 218
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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lifemoves.ca

lifemoves.ca lifemoves.ca           
Vancouver Kinesiologist | Kinesiology in Burnaby | Lifemoves
Kinesiologist in Burnaby and Vancouver with over 20 years of experience helping people recover from injuries and manage chronic diseases.


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Categories: Health, Health and Wellness
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wakeupnarcolepsy.org

wakeupnarcolepsy.org wakeupnarcolepsy.org           
Wake Up Narcolepsy | Awareness. Research. Support.
Wake Up Narcolepsy is a nonprofit dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.


Moz DA: 45 Moz Rank: 3.6 Semrush Rank: 1,619,178 Facebook ♡: 144
Categories: Sports, Business
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meaction.net

meaction.net meaction.net           
Home - #MEAction Network
we’re IGNITING A GLOBAL REVOLUTION IN ME CARE Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have support and access to compassionate and effective care. JOIN US What is ME? Myalgic encephalomyelitis (ME), commonly known as chronic fatigue syndrome (CFS) or ME/CFS, is a … Home Read More »


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Categories: Business, News and Media
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drrajpatel.net

drrajpatel.net drrajpatel.net           
Medical Options for Wellness
Add the site description here


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Categories: Marketing/Merchandising, Health and Wellness
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edsinfo.wordpress.com

edsinfo.wordpress.com edsinfo.wordpress.com           
EDS and Chronic Pain News & Info | Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome
Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome


Semrush Rank: 4,471,950
Categories: Blogs/Wiki, Personal Websites and Blogs
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