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EDS and Chronic Pain News & Info | Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome

Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome

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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.


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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society


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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
The Ehlers-Danlos Support UK - Support for people touched by the Ehlers-Danlos syndromes
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes


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ohtwist.com

ohtwist.com ohtwist.com           
Oh TWIST Home - Discover what could be making you so tired too!
Oh TWIST- Oh, That's Why I'm So Tired! Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.


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chronicpainpartners.com

chronicpainpartners.com chronicpainpartners.com           
Ehlers-Danlos Support Groups and EDS education
Ehlers-Danlos Support Groups and EDS education


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hypermobility.org

hypermobility.org hypermobility.org           
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.


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ehlersdanlos.ca

ehlersdanlos.ca ehlersdanlos.ca           
The Canadian Ehlers Danlos Association
Through an educational and informational support network, CEDA is committed to the enhancement of the lives of all persons affected by Ehlers-Danlos Syndrome.



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prettyill.com

prettyill.com prettyill.com           
NEW STUDY! Parasym Plus™ for Multiple Sclerosis - PrettyIll.com
This is an in-house study for patients with Relapsing-Remitting Multiple Sclerosis (RR-MS) dealing with constipation, gastroparesis. You will be provided with a free bottle of Parasym Plus™ and asked for a diary of bowel movements — it’s that easy! What is Parasym Plus™? Parasym Plus™ is a new supplement mix with two patents to date. It is […]



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strengthflexibilityhealtheds.com

strengthflexibilityhealtheds.com strengthflexibilityhealtheds.com           
2020 Home - Strength Flexibility Health EDS
Strength/Flexibility/Health/EDS – the ONLY digital magazine for living well with hypermobility disorders, such as Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD) & related conditions. #LiveEDSStrong Recent Posts “,”nextArrow”:”“,”autoplay”:false,”autoplaySpeed”:5000,”rtl”:false}’ dir=”ltr”> June 21, 2018 40 Years Old in 4 Months – Day 1 June 20, 2018 Heat Therapy for the Treatment of Chronic Pain – Avacen Product … 2020 Home Read More »


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alanspanosmd.com

alanspanosmd.com alanspanosmd.com           
Ehlers Danlos Syndrome (EDS) - Alan Spanos MD
For over thirty years I worked with patients with various complex chronic illnesses. However, I now dedicate my practice exclusively to the care of patients with an Ehlers Danlos Syndrome (EDS), and similar conditions. Ehlers Danlos Syndrome (EDS) is the name for a group of conditions, in which many joints are looser than normal, i.e. […]


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instabile-halswirbelsaeule.de

instabile-halswirbelsaeule.de instabile-halswirbelsaeule.de           
Holy Shit I am Sick - Ehlers-Danlos, MCAS, POTS, CCI & Co.
Holy Shit I am Sick - Ehlers-Danlos, MCAS, POTS, CCI & Co.


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invisibleillnessforum.com

invisibleillnessforum.com invisibleillnessforum.com           
Invisible Illness Info Repository - Index
Invisible Illness Info Repository - Index


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tcapp.org

tcapp.org tcapp.org           
Make A Difference Today - The Coalition Against Pediatric Pain
Make A Difference Today - The Coalition Against Pediatric Pain


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theilcfoundation.org

theilcfoundation.org theilcfoundation.org           
The ILC Charitable Foundation
Support for people with Ehlers-Danlos Syndromes, Heritable Connective Tissue Disorders and Chronic Pain through knowledge sharing resources, awareness, education, peer support and research to find a cure



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edswellness.org

edswellness.org edswellness.org           
Home - EDS Wellness, Inc.
Home - EDS Wellness, Inc.


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themalleablemom.com

themalleablemom.com themalleablemom.com           
themalleablemom.com -
themalleablemom.com -


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muldowneypt.com

muldowneypt.com muldowneypt.com           
Muldowney Physical Therapy
Helping Patients Live Life to the Fullest.


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edser.weebly.com

edser.weebly.com edser.weebly.com           
A Little Twisted: Life with EDS
Hello and welcome!  "A Little Twisted" is my quirky, comical, and sometimes quite serious perspective on life with Ehlers-Danlos Syndrome, Hypermobility Type.  Look for scholarly articles,...


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directionsindentistry.net

directionsindentistry.net directionsindentistry.net           
Directions in Dentistry - A Dental Blog by Orange, CT Dentist Nicholas Calcaterra DDS
A Dental Blog by Orange, CT Dentist Nicholas Calcaterra DDS


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upright-health.com

upright-health.com upright-health.com           
Calculer son IMC, comment calculer son IMC ?
Le calcul de votre imc ou votre indice de masse corporelle vous permet d’évaluer votre silhouette et votre état de santé. L'organisation mondiale sante encourage de calculer régulièrement l'indice de masse corporelle pour éviter tout risque de maladies cardiovasculaires.



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edsers.com

edsers.com edsers.com           
Treatment And Research Center For Rare Genetic Conditions - Edsers United Foundation
EDSers United Foundation Treatment and Research Center for Rare Genetic Conditions


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thezebranetwork.org

thezebranetwork.org thezebranetwork.org           
The Zebra Network
The Zebra Network


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prolotherapy.org

prolotherapy.org prolotherapy.org           
Prolotherapy and Treatment Guidelines and Comprehensive review of Prolotherapy research. - Caring Medical Florida
Ross Hauser, MD. A comprehensive review of Prolotherapy research.


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journalofprolotherapy.com

journalofprolotherapy.com journalofprolotherapy.com           
Welcome to the Journal of Prolotherapy - Journal of Prolotherapy
The Journal of Prolotherapy® is a peer-reviewed journal with the purpose of providing the readers with new, cutting-edge information on Prolotherapy, as well as provide a forum for physicians and patients alike to tell their stories. As of 2012, all issues of the Journal of Prolotherapy are FREE to access online. FEATURED ARTICLE FEATURED ARTICLE


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rareconnect.org

rareconnect.org rareconnect.org           
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.



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csfinfo.org

csfinfo.org csfinfo.org           
Chiari & Syringomyelia Foundation
To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders.


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oreds.org

oreds.org oreds.org           
Oregon EDS Home Page
Oregon EDS Group Home Page - learn about Ehlers-Danlos Syndrome Support in Oregon


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painnewsnetwork.org

painnewsnetwork.org painnewsnetwork.org           
Pain News Network
Pain News Network is an independent non-profit online news source for
information and commentary about chronic pain and pain management.


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healthrising.org

healthrising.org healthrising.org           
Health Rising - Finding Answers for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)
Health Rising provides the latest treatment and research information for fibromyalgia and chronic fatigue syndrome (ME/CFS)


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stopchildhoodpain.org

stopchildhoodpain.org stopchildhoodpain.org           
Stop Childhood Pain | Juvenile Fibromyalgia | CRPS in Children & Teens
Visit Stop Childhood Pain to learn about Juvenile Fibromyalgia, and CRPS in Children & Teens. Amplified Pain Managment Treatment Videos for your child.


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chiaribridges.org

chiaribridges.org chiaribridges.org           
Building Bridges To Redefine The Chiari Fight!
Chiarians are constantly facing obstacles when it comes to our health and a medical industry that continually fails us on a global level. Bridges are built as a means to assist people in getting over the things that obstruct their path. so we decided to build a few bridges to help navigate us in our fight!



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mastcellblog.wordpress.com

mastcellblog.wordpress.com mastcellblog.wordpress.com           
Private Site


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fibrofriends.typepad.com

fibrofriends.typepad.com fibrofriends.typepad.com           
Fibro Friends
A patient authored resource on chronic fatigue and fibromylagia syndromes and therapies that treat these conditions.


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eds-nyc.com

eds-nyc.com eds-nyc.com           
EDS NYC – Ehlers Danlos in New York
EDS NYC - Ehlers Danlos in New York


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marfan.org

marfan.org marfan.org           
The Marfan Foundation | Know the Signs | Fight for Victory
The Marfan Foundation tirelessly advances the research for the treatment of marfan syndrome and its related conditions! We're here to create a brighter future!


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rccxandillness.com

rccxandillness.com rccxandillness.com           
Meglathery MD: Coinherited CYP21A2, TNXB, C4 Genes in Chronic illness (CFS, FM, Lyme, MCAS, POTS, Pain, Psychiatric Spectrum, Immunological, Endocrine) +- Hypermobility +- Autoimmune Diseases
RCCX: Co-segregating C4, CYP21, TNXB mutations may explain EDS/hypermobility, CFS/ME/FM, MCAS, POTS/OI/dysautonomia, autism/mood disorders/anxiety/schizophrenia, MS, Lyme, CVID, endocrine and pain syndromes, etc. in patients and their families


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chronicpainanonymous.org

chronicpainanonymous.org chronicpainanonymous.org           
Chronic Pain Anonymous - A fellowship for those with chronic pain and chronic illness
Welcome to Chronic Pain Anonymous
Chronic Pain Anonymous (CPA) is a fellowship of people from all walks of life who live with chronic pain and chronic illness. The members come together to share their experience, strength, and hope, and to support each other. They learn how to discover serenity



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theacpa.org

theacpa.org theacpa.org           
American Chronic Pain Association
The American Chronic Pain Association - Education and Support for People with Pain.


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reluctantcontortionist.co.uk

reluctantcontortionist.co.uk reluctantcontortionist.co.uk           
A Reluctant Contortionist
'A Reluctant Contortionist' - A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.



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pharmaciststeve.com

pharmaciststeve.com pharmaciststeve.com           
PHARMACIST STEVE
How our healthcare system is killing and harming us


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cedsa.org

cedsa.org cedsa.org           
CEDSA Home
CEDSA helps patients and families who are diagnosed with Ehlers-Danlos Syndrome by providing advocacy, medical resources, and additional help.



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normanmarcuspaininstitute.com

normanmarcuspaininstitute.com normanmarcuspaininstitute.com           
Norman Marcus Pain Institute
Norman Marcus Pain Institute


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standinguptopots.org

standinguptopots.org standinguptopots.org           
Home | Standing Up To POTS
STANDING UP to POTS is committed to increasing awareness for postural orthostatic tachycardia syndome (POTS) within the medical community and raising money to support POTS research. POTS is a form of dysautonomia, and is caused by malfunctioning of the autonomic ("automatic") nervous system.


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inspire.com

inspire.com inspire.com           
Inspire | Health and Wellness Support Groups and Communities
Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Connect with others who know what you're going through.
American social network. Inspire is an Arlington, Virginia-based healthcare social network. It builds and manages online health communities for patients and caregivers, and connects patients to life science companies for the purpose of research.

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painmedicinenews.com

painmedicinenews.com painmedicinenews.com           



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patientworthy.com

patientworthy.com patientworthy.com           
Rare Patient News. Well Done. - Patient Worthy
PODCAST: WAIT, HOW DO YOU SPELL THAT? PATIENT WORTHY SERIES THE LATEST FROM PATIENT WORTHY OF INTEREST Research in Treatment Options for Primary Biliary Cholangitis (PBC) Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH) PATIENT STORIES VIEW ALL » GET INVOLVED Make a difference, […]


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spinalcsfleak.org

spinalcsfleak.org spinalcsfleak.org           
Spinal CSF Leak Foundation
because your dura maters


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potscare.com

potscare.com potscare.com           
POTS Care - Postural Orthostatic Tachycardia Syndrome - POTS Care
POTS Care is the only clinic that treats the underlying medical conditions of POTS, not just the symptoms. Talk to a friendly POTS specialist to start now!


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providencemedical.com

providencemedical.com providencemedical.com           
Providence Medical Center
Providence Medical Center


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gratitudeaddict.com

gratitudeaddict.com gratitudeaddict.com           
Welcome ⋆ Gratitude Addict
We'd love to have you in AoG! Join us! #anxiety #chronicpain #chronicpainanonymous


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mystripylife.com

mystripylife.com mystripylife.com           
My Stripy Life • EDS, CMT & ME
EDS, CMT & ME


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paincommunity.org

paincommunity.org paincommunity.org           
Home Page - The Pain Community
Home Page - The Pain Community


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kaplanclinic.com

kaplanclinic.com kaplanclinic.com           
Kaplan Center for Integrative Medicine : McLean Virginia
Integrative Medicine services located in McLean Virginia, incorporating the best elements of conventional and alternative medicine.



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b-u-b-b-l-e-girl.blogspot.com

b-u-b-b-l-e-girl.blogspot.com b-u-b-b-l-e-girl.blogspot.com           
Ehlers-Danlos Syndrome-Deal With It
Ehlers-Danlos Syndrome-Deal With It



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