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Oh TWIST Home - Discover what could be making you so tired too!

Oh TWIST- Oh, That's Why I'm So Tired! Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.
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hypermobility.org

hypermobility.org hypermobility.org           
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.

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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.

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chronicpainpartners.com

chronicpainpartners.com chronicpainpartners.com           
Ehlers-Danlos Support Groups and EDS education
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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society

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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
The Ehlers-Danlos Support UK - Support for people touched by the Ehlers-Danlos syndromes
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes

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invisibleillnessforum.com

invisibleillnessforum.com invisibleillnessforum.com           
Invisible Illness Info Repository - Index
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oreds.org

oreds.org oreds.org           
Oregon EDS Home Page
Oregon EDS Group Home Page - learn about Ehlers-Danlos Syndrome Support in Oregon

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Private Site

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tmsforacure.org

tmsforacure.org tmsforacure.org           
Home - TMS - The Mast Cell Disease Society, Inc
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mastattack.org

mastattack.org mastattack.org           
Mast Attack - Educating people about life with mast cell disorders
Educating people about life with mast cell disorders


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edswellness.org

edswellness.org edswellness.org           
Home - EDS Wellness, Inc.
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Attention Required! | Cloudflare

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2020 Home - Strength Flexibility Health EDS
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edsinfo.wordpress.com edsinfo.wordpress.com           
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prettyill.com

prettyill.com prettyill.com           
NEW STUDY! Parasym Plus™ for Multiple Sclerosis - PrettyIll.com
This is an in-house study for patients with Relapsing-Remitting Multiple Sclerosis (RR-MS) dealing with constipation, gastroparesis. You will be provided with a free bottle of Parasym Plus™ and asked for a diary of bowel movements — it’s that easy! What is Parasym Plus™? Parasym Plus™ is a new supplement mix with two patents to date. It is […]


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drtaniadempsey.com drtaniadempsey.com           
Dr. Tania Dempsey | New York | Lyme Disease Specialist
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wallack.us wallack.us           
Me Me Me Me (and My Family, Too)
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edsers.com edsers.com           
Treatment And Research Center For Rare Genetic Conditions - Edsers United Foundation
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naughtylittlemastcells.com naughtylittlemastcells.com           
naughtylittlemastcells.com
One moment, please...

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ehlersdanlos.ca

ehlersdanlos.ca ehlersdanlos.ca           
The Canadian Ehlers Danlos Association
Through an educational and informational support network, CEDA is committed to the enhancement of the lives of all persons affected by Ehlers-Danlos Syndrome.


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victoriafenton.net victoriafenton.net           
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Ehlers-Danlos research and support

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Meglathery MD: Coinherited CYP21A2, TNXB, C4 Genes in Chronic illness (CFS, FM, Lyme, MCAS, POTS, Pain, Psychiatric Spectrum, Immunological, Endocrine) +- Hypermobility +- Autoimmune Diseases
RCCX: Co-segregating C4, CYP21, TNXB mutations may explain EDS/hypermobility, CFS/ME/FM, MCAS, POTS/OI/dysautonomia, autism/mood disorders/anxiety/schizophrenia, MS, Lyme, CVID, endocrine and pain syndromes, etc. in patients and their families

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geneticgenie.org

geneticgenie.org geneticgenie.org           
Genetic Genie - Free Raw DNA Data Analysis Upload Tools
Discover health-related variants with GenVue Discovery or use our genomic panels with 23andMe, AncestryDNA, or Whole Genome Sequencing data.

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mastcellaction.org

mastcellaction.org mastcellaction.org           
Home | Mast Cell Action
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annabelleschallenge.org

annabelleschallenge.org annabelleschallenge.org           
Vascular EDS is a life limiting rare genetic disorder
UK registered charity supporting patients & families touched by Vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.

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mastcellaware.com

mastcellaware.com mastcellaware.com           
MastCellAware :: Raising awareness of the important role that mast cells play in all our lives
MastCellAware :: Raising awareness of the important role that mast cells play in all our lives

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rareconnect.org

rareconnect.org rareconnect.org           
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.


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drcarlenewentworth.com

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Carlene M. Wentworth, Ph.D., LPC
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themalleablemom.com

themalleablemom.com themalleablemom.com           
themalleablemom.com -
themalleablemom.com -

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jboccupationaltherapy.co.uk

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Welcome - Jo Southall, Independent OT
Jo Southall OT. Advice for managing chronic illnesses, accessibility and tech specialist, creative thinker. Corporate & Individual consultations available.

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eds-nyc.com

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EDS NYC – Ehlers Danlos in New York
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bodysupportstore.com

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Best Quality Body Support & Ergonomic Products
Body Support Store provides Best Quality Body Support & Ergonomic Products. We offer pillows, back support, mattress solutions, leg cushions, travel pillows, ergonomic office & backpacks, wrist, leg & neck braces at competitive prices. We deliver our products on time.

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alanspanosmd.com

alanspanosmd.com alanspanosmd.com           
Ehlers Danlos Syndrome (EDS) - Alan Spanos MD
For over thirty years I worked with patients with various complex chronic illnesses. However, I now dedicate my practice exclusively to the care of patients with an Ehlers Danlos Syndrome (EDS), and similar conditions. Ehlers Danlos Syndrome (EDS) is the name for a group of conditions, in which many joints are looser than normal, i.e. […]

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instabile-halswirbelsaeule.de

instabile-halswirbelsaeule.de instabile-halswirbelsaeule.de           
Holy Shit I am Sick - Ehlers-Danlos, MCAS, POTS, CCI & Co.
Holy Shit I am Sick - Ehlers-Danlos, MCAS, POTS, CCI & Co.

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tcapp.org

tcapp.org tcapp.org           
Make A Difference Today - The Coalition Against Pediatric Pain
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ehlersdanlosnews.com

ehlersdanlosnews.com ehlersdanlosnews.com           
Ehlers-Danlos News Home | Ehlers-Danlos News
The Web's Daily Resource for Ehlers-Danlos Syndrome

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jillcarnahan.com jillcarnahan.com           
Dr. Jill Carnahan Flatiron Functional Medicine - Jill Carnahan, MD
Dr. Jill Carnahanworks as a functional medicine consultant in conjunction with your current health care team and is not a replacement for your physician.

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mastzellaktivierung.info

mastzellaktivierung.info mastzellaktivierung.info           
MCAD ➤ Mastozytose-Infos ✔ DE | EN | FR
[✚] Infoportal Mastzellaktivierungserkrankungen (MCAD): MCAS, Mastozytose, Histamin [✚] Information about mast cell activation, mastocytosis, ...

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thereluctantrawfoodist.com

thereluctantrawfoodist.com thereluctantrawfoodist.com           
What we eat today affects our health tomorrow
What we eat today affects our health tomorrow. Low histamine high raw anti inflammatory diet, raw food recipes and more with The Reluctant Raw Foodist.

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mastocytosis.ca

mastocytosis.ca mastocytosis.ca           
Mastocytosis.ca
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unsed.org

unsed.org unsed.org           
U.N.S.E.D - L'UNSED
UNSED association nationale des Syndromes d'Ehlers-Danlos.
Agréee par le Ministère de la Santé.

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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...

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spoonsandbrainfog.com spoonsandbrainfog.com           
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Spoons and brain fog - Ehler's Danlos Syndrome (EDS) and Postural
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Patient resources, my personal journey, and support groups.

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standinguptopots.org

standinguptopots.org standinguptopots.org           
Home | Standing Up To POTS
STANDING UP to POTS is committed to increasing awareness for postural orthostatic tachycardia syndome (POTS) within the medical community and raising money to support POTS research. POTS is a form of dysautonomia, and is caused by malfunctioning of the autonomic ("automatic") nervous system.

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Dysautonomia Clinic
Dysautonomia Clinic | Video and Phone Consults | Board Certified Neurologist | Patient Care | Psychotherapy | Nutrition | Life and Health Coaching

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livewello.com

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Inspire | Health and Wellness Support Groups and Communities
Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Connect with others who know what you're going through. American social network. Inspire is an Arlington, Virginia-based healthcare social network. It builds and manages online health communities for patients and caregivers, and connects patients to life science companies for the purpose of research.

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ThePatientCeliac.com is for sale | HugeDomains
Easy, affordable options for you to obtain the domain you want. Safe and secure shopping.

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mastcellresearch.com

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Mast Cell Research – Online resource for research articles and publications on Mast Cell Activation Disease
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A Little Twisted: Life with EDS
Hello and welcome!  "A Little Twisted" is my quirky, comical, and sometimes quite serious perspective on life with Ehlers-Danlos Syndrome, Hypermobility Type.  Look for scholarly articles,...

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EDS & Polysaccharides
The purpose of this page is to share the story of my family and the experiences we have had using various natural substances to increase polysaccharides to help relieve our EDS Symptoms. My hope is...

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forgottendiseases.org

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marfan.org

marfan.org marfan.org           
The Marfan Foundation | Know the Signs | Fight for Victory
The Marfan Foundation tirelessly advances the research for the treatment of marfan syndrome and its related conditions! We're here to create a brighter future!

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theilcfoundation.org

theilcfoundation.org theilcfoundation.org           
The ILC Charitable Foundation
Support for people with Ehlers-Danlos Syndromes, Heritable Connective Tissue Disorders and Chronic Pain through knowledge sharing resources, awareness, education, peer support and research to find a cure


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totaleyecare.com

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Total Eye Care - Eye Doctors in Colleyville - Keller - Southlake
Total Eye Care - Eye Doctors serving Colleyville, Keller, Southlake, North Richland Hills, and Grapevine. Medical Eye Care with onsite optical. Highly rated


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Kansas City Neurologist at Rowe Neurology in Lenexa and Los Angeles evaluation and clinical trials in Migaine, MS, Sleep, Alzheimer's, Hypermobility. Independent.


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hypermobilityconnect.com

hypermobilityconnect.com hypermobilityconnect.com           
Welcome to Hypermobility Connect
Welcome to Hypermobility Connect, an online community & education source for people with hypermobility conditions including The Hypermobility Spectrum Disorders, The Ehlers-Danlos Syndromes, Loeys-Dietz, Marfan & Stickler Syndromes and Osteogenesis Imperfecta. Based in Australia, supporting people across the globe!

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stoppotsvirginia.blogspot.com

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STOP POTS (and Dysautonomia!)
A site to raise awareness, support, and be a science based resource for people dealing with POTS (Postural Orthostatic Tachycardia Syndrome), which is a type of Dysautonomia. Lots of information no matter where you live- with tips/tools for navigating doctors, family, friends, and life with POTS/Dysautonomia. I'm on a mission to get the word out, help people find their POTS cause, and also improve treatment options and support here locally in Virginia, MD, and DC. All locations welcome :)

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