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U.N.S.E.D - L'UNSED

UNSED association nationale des Syndromes d'Ehlers-Danlos.
Agréee par le Ministère de la Santé.
Categories: Health, Shopping

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unsed.org
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gersed.com

gersed.com gersed.com           
Gersed - Accueil - Gersed - Groupe d'Etude et de Recherche du Syndrome Ehlers-Danlos
Site de l'association du Groupe d’Etudes et de Recherches du Syndrome d’Ehlers-Danlos (GERSED), structure coordonnant les efforts d‘amélioration du diagnostic, du traitement et de la recherche sur le syndrome d’Ehlers-Danlos.
Le SED est une pathologie de l'ensemble du tissu conjonctif ,d'origine génétique, avec altération des collagènes.
Ce n’est plus une « maladie rare » mais un syndrome fréquent, méconnu, ignoré, voire refusé, dont le diagnostic est très tardif.
Le diagnostic repose sur la seule clinique, ce qui, est parfois difficile à admettre à notre époque d'inflation de l'imagerie et de la biologie ( qui sont normales dans ce cas).
Nous vous proposerons ici les outils d’aide au diagnostic du syndrome ainsi que leur mode d’emploi.
Il existe pourtant des traitements symptomatiques spécifiques efficaces quand le diagnostic est posé.

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assosed1plus.com

assosed1plus.com assosed1plus.com           
Association de sensibilisation, d'information et d'échanges sur les Syndrome d'Ehlers Danlos - Association Sed1+
Vous êtes atteint par l’une de ces maladies ? Vous accompagnez un malade ? Vous avez dans votre entourage une …

Semrush Rank: 8,557,427
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sedinfrance.org

sedinfrance.org sedinfrance.org           
SED in France - Association pour les Syndromes d'Ehlers-Danlos et les Troubles du Spectre de l'Hypermobilité - SED in FRANCE
SED in France - Association pour les Syndromes d'Ehlers-Danlos et les Troubles du Spectre de l'Hypermobilité - SED in FRANCE

Semrush Rank: 8,159,202
Categories: Non-Profit/Advocacy/NGO, Business
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gesed.com

gesed.com gesed.com           
GESED asbl - Accueil
GESED - Groupe d'Entraide des Syndromes d'Ehlers-Danlos

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Categories: Non-Profit/Advocacy/NGO, General Organizations
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rqmo.org

rqmo.org rqmo.org           
RQMO – Regroupement québécois des maladies orphelines
:: Regroupement québécois des maladies orphelines::

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maladies-vasculaires-rares.fr

maladies-vasculaires-rares.fr maladies-vasculaires-rares.fr           
Centre de référence des Maladies Vasculaires Rares - APHP
Le CRMVR regroupe 39 hôpitaux et centres de compétence en France et permet l'accueil et le traitement des patients atteints de maladies vasculaires rares.

Semrush Rank: 5,342,518
Categories: Internet Services, Real Estate
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annabelleschallenge.org

annabelleschallenge.org annabelleschallenge.org           
Vascular EDS is a life limiting rare genetic disorder
UK registered charity supporting patients & families touched by Vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.

Semrush Rank: 3,911,871 Facebook ♡: 2,014
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docteurdaens.be

docteurdaens.be docteurdaens.be           
HOME

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gersedbelgique.com

gersedbelgique.com gersedbelgique.com           
GERSED Belgium asbl - Study and Research Group on Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome Study and Research Group

Semrush Rank: 16,963,232
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ehlersdanlos.dk

ehlersdanlos.dk ehlersdanlos.dk           
Ehlers-Danlos Foreningen i Danmark
Ehlers-Danlos’ syndrom er den hyppigste arvelige bindevævssygdom. Sygdommen medfører typisk hypermobile led. Hudens elasticitet og helingen ved sår er påvirket.

Semrush Rank: 13,546,669
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vivre-avec-le-sed.fr

vivre-avec-le-sed.fr vivre-avec-le-sed.fr           
Vivre avec le Sed – Association Vivre avec le Sed
Vivre avec le Sed - Association Vivre avec le Sed

Semrush Rank: 36,545,240
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hypermobility.org

hypermobility.org hypermobility.org           
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.

Moz DA: 51 Moz Rank: 4.9 Semrush Rank: 453,222 Facebook ♡: 836
Categories: Health, Health and Wellness
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ehlersdanlosnews.com

ehlersdanlosnews.com ehlersdanlosnews.com           
Ehlers-Danlos News Home | Ehlers-Danlos News
The Web's Daily Resource for Ehlers-Danlos Syndrome

Moz DA: 30 Moz Rank: 3.7 Semrush Rank: 67,698 Facebook ♡: 25
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movewelldaily.com

movewelldaily.com movewelldaily.com           
Personal Health Coaching for Pain-free Movement - Move Well Daily
Canada's top resource for Personal Health Coaching and pain-free movement. In-person and online health coaching for clients across the world.

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edstoday.org

edstoday.org edstoday.org           

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afsed.com

afsed.com afsed.com           
Accueil - AFSED
> Informer les malades et leurs familles ASSOCIATION FRANÇAISE DES SYNDROMES D'EHLERS-DANLOS > Sensibiliser le public et les médecins > Soutenir la


Categories: Health, ???
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nuviline.fr

nuviline.fr nuviline.fr           
Gamme de collagène marin | Peptides de collagène | Nutrition Premium
Envie d'une alimentation saine ? Découvrez notre gamme nuviline de superaliments, supersnacks , subsituts de repas, repas hyperprotéinés, Vegan, Sans Gluten

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jeanniedibon.com

jeanniedibon.com jeanniedibon.com           
Jeannie Di Bon - Move Pain-Free with Hypermobility and EDS
Joint Hypermobility & Ehlers-Danlos Syndrome Movement Therapist. Hypermobility and chronic pain online exercises. Join The Zebra Club today!

Semrush Rank: 1,541,366 Facebook ♡: 693
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ehlers-danlos.org

ehlers-danlos.org ehlers-danlos.org           
The Ehlers-Danlos Support UK - Support for people touched by the Ehlers-Danlos syndromes
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes

Moz DA: 53 Moz Rank: 4.8 Semrush Rank: 79,718
Categories: Education/Reference, Health and Wellness
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vivreavec.fr

vivreavec.fr vivreavec.fr           
Vivre Avec
c très la reconstruction du site de Vivre Avec

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jlmk.co.uk

jlmk.co.uk jlmk.co.uk           
JLMK
Health Supplements

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ehlersdanlos.ca

ehlersdanlos.ca ehlersdanlos.ca           
The Canadian Ehlers Danlos Association
Through an educational and informational support network, CEDA is committed to the enhancement of the lives of all persons affected by Ehlers-Danlos Syndrome.


Categories: Education/Reference, Health and Wellness
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afsed.fr

afsed.fr afsed.fr           
Accueil - AFSED
> Informer les malades et leurs familles ASSOCIATION FRANÇAISE DES SYNDROMES D’EHLERS-DANLOS > Sensibiliser le public et les médecins > Soutenir la recherche


Categories: Health, Charitable Organizations
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histology.be

histology.be histology.be           
The digital microscope 2.0
The digital microscope version 2020

Semrush Rank: 4,757,791
Categories: Education/Reference, Education
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sedadvisory.com

sedadvisory.com sedadvisory.com           
ADVISORY SERVICES | Ballarat Warrnambool | SED Regional Advisory
SED Regional Advisory offers advisory services in Strategy, Governence, Planning and Recruitment

Semrush Rank: 22,930,387
Categories: Business, Business
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sed.js.org

sed.js.org sed.js.org           
GNU sed live editor
GNU sed live editor

Semrush Rank: 1,299,367 Facebook ♡: 0
Categories: Internet Services, Information Technology
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se-dept.co.jp

se-dept.co.jp se-dept.co.jp           
エスイーディー株式会社 - 第三者検証・音響測定・人材派遣のSED
SEDのご提供するソリューションのご案内. エスイーディー株式会社では、携帯電話の音声通信通話品質評価（3GPP、VoLTE評価）からオーディオ機器、サウンドテクノロジー・システムといった幅広い分野において音質評価に特化した第三者検証業務を行っております。


Categories: Business, Business
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forgottendiseases.org

forgottendiseases.org forgottendiseases.org           
Forgotten Diseases Research Foundation | Home
description

Semrush Rank: 3,293,905
Categories: Health, Health and Wellness
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scienceoveracuppa.com

scienceoveracuppa.com scienceoveracuppa.com           
Science Over a Cuppa | BI-WEEKLY POSTS ON SCIENCY TOPICS
BI-WEEKLY POSTS ON SCIENCY TOPICS

Semrush Rank: 2,330,532
Categories: Blogs/Wiki, Business
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instabile-halswirbelsaeule.de

instabile-halswirbelsaeule.de instabile-halswirbelsaeule.de           
Holy Shit I am Sick - Ehlers-Danlos, MCAS, POTS, CCI & Co.
Holy Shit I am Sick - Ehlers-Danlos, MCAS, POTS, CCI & Co.

Semrush Rank: 41,010,854
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smamform.fr

smamform.fr smamform.fr           
doble cámara de molino de bolas, dientes grandes trituradoras de piedra escala
Plateforme de téléchargement du Service médical PACA-Corse de l'Assurance Maladie

Semrush Rank: 9,155,960
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tcapp.org

tcapp.org tcapp.org           
Make A Difference Today - The Coalition Against Pediatric Pain
Make A Difference Today - The Coalition Against Pediatric Pain

Semrush Rank: 2,076,075 Facebook ♡: 1,713
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sedsurvey.org

sedsurvey.org sedsurvey.org           
SED INFO

Semrush Rank: 2,957,233
Categories: Education/Reference, Reference
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edhs.info

edhs.info edhs.info           
Understanding hypermobile Ehlers Danlos syndrome
Providing resources and information to live well with hEDS and HSD, this website accompanies the book Understanding Ehlers-Danlos syndrome & Hypermobility Spectrum Disorder, by Claire Smith.

Semrush Rank: 2,159,555
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lasedinc.org

lasedinc.org lasedinc.org           
Error

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Categories: Business, Advocacy Organizations
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hypermobilitet.se

hypermobilitet.se hypermobilitet.se           
Ehlers-Danlos Syndrom och Hypermobilitet
Medicinsk information för vårdpersonal och lekmän


Categories: Health, Health and Wellness
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fondation-groupama.com

fondation-groupama.com fondation-groupama.com           
Fondation Groupama "Vaincre les Maladies Rares"
Engagée depuis près de 20 ans dans la lutte contre les maladies rares, découvrez les missions et actions de la Fondation d'entreprise Groupama dans toute la France.

Facebook ♡: 44
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sed-ml.org

sed-ml.org sed-ml.org           
SED-ML: The Simulation Experiment Description Markup Language
Simulation Experiment Description Language (SED-ML)

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mthfrheds.com

mthfrheds.com mthfrheds.com           
www.mthfrheds.com/
EDS3: causative gene and the connection to dysautonomia and mastocytosis in my family

Semrush Rank: 50,232,413
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ohtwist.com

ohtwist.com ohtwist.com           
Oh TWIST Home - Discover what could be making you so tired too!
Oh TWIST- Oh, That's Why I'm So Tired! Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.

Semrush Rank: 1,844,798
Categories: Blogs/Wiki, Personal Websites and Blogs
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favamulti.fr

favamulti.fr favamulti.fr           
Accueil | FAVA-Multi
Accueil | FAVA-Multi

Semrush Rank: 20,341,741
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theilcfoundation.org

theilcfoundation.org theilcfoundation.org           
The ILC Charitable Foundation
Support for people with Ehlers-Danlos Syndromes, Heritable Connective Tissue Disorders and Chronic Pain through knowledge sharing resources, awareness, education, peer support and research to find a cure


Categories: Health, Health and Wellness
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sfetd-douleur.org

sfetd-douleur.org sfetd-douleur.org           
Accueil - SFETD - Site web de la Société Française d'Etude et du Traitement de la Douleur
L’actualité Voir toute l’actualité Voir toute l’actualité Adhésion à l’association SFETD Commissions & groupes de travail Structures spécialisées en douleur chronique Nos partenaires Boîte à outils Agenda Offre d’emploi


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fermipy.readthedocs.io

fermipy.readthedocs.io fermipy.readthedocs.io           
Welcome to Fermipy's documentation! — Fermipy v1.2+dirty documentation
Welcome to Fermipy's documentation! — Fermipy v1.2+dirty documentation

Semrush Rank: 8,231,610
Categories: Technical Information, Information Technology
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ehlers-danlos.com

ehlers-danlos.com ehlers-danlos.com           
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society

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dplusforcare.com

dplusforcare.com dplusforcare.com           
Compléments alimentaires naturels fabriqués en France - DAY+
DAY+ est votre marque de compléments alimentaires révolutionnaires, naturels et faits en France. Des produits de qualité pour révolutionner la prise de compléments alimentaires beauté.

Semrush Rank: 3,044,646
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collagenvital.com

collagenvital.com collagenvital.com           
VITA RECHERCHE | Collagen Vital Power & Covéline | Collagène Marin Pur
Le collagène marin pur de VITA RECHERCHE réveille le capital jeunesse qui est en vous. Nos solutions Inside/ Outside COLLAGEN VITAL POWER & COVELINE PARIS sont hautement concentrées. Notre collagène est 10 fois plus puissant.


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aulased.org

aulased.org aulased.org           
Inicio - AULA SED
Why Choose Us We Do Something Better For Bright Children Future Activities Study & Game Learning combined with entertainment for the best development of children read more A to Z Programs Many comprehensive development programs for children read more Expert Teacher A team of enthusiastic, dedicated teachers with many certificates read more Mental Health Sed […]

Facebook ♡: 10
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edswellness.org

edswellness.org edswellness.org           
Home - EDS Wellness, Inc.
Home - EDS Wellness, Inc.

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sedsystems.ca

sedsystems.ca sedsystems.ca           
Calian Advanced Technologies | Calian
Calian Advanced Technologies is a global supplier of highly technical solutions, services and products to the aerospace and defence, satellite, wired and…

Semrush Rank: 3,584,006 Facebook ♡: 312
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sed-ongd.org

sed-ongd.org sed-ongd.org           
SED ONGD
SED ONGD

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apaiser.org

apaiser.org apaiser.org           
Apaiser S&C | Site officiel
Accueil Apaiser S&C, Site officiel, Apaiser S&C, Association pour Aider, Informer, Soutenir Études & Recherches pour la Syringomyélie & le Chiari

Semrush Rank: 8,566,871
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colpropur.fr

colpropur.fr colpropur.fr           
Complément alimentaire au Collagène Hydrolysé | COLPROPUR
Découvrez COLPROPUR, spécialisé en collagène pour articulations, os, muscles et peau. 100% naturel, efficace… Livraison gratuite en France dès 50€ d'achats.

Semrush Rank: 24,114,122
Categories: Business, Business
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reseau-maladies-rares.fr

reseau-maladies-rares.fr reseau-maladies-rares.fr           
Maladies rares Occitanie
Maladies rares Occitanie apporte des ressources aux professionnels accompagnant les personnes concernées par une maladie rare

Moz DA: 27 Moz Rank: 2.5 Facebook ♡: 33
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iyengar-yoga.co.uk

iyengar-yoga.co.uk iyengar-yoga.co.uk           
Maidstone Yoga Centre
Maidstone Yoga Centre

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ellasante.paris

ellasante.paris ellasante.paris           
Centre de Santé, Consultations et examens médicaux - Ellasanté
  Le Centre Ellasanté offre une prise en charge médicale globale : – curative et préventive – personnalisée et participative avec à la fois des diagnostics, traitements et accompagnement à la santé (ateliers) Notre objectif commun tout mettre en oeuvre – pour éviter ou retarder certaines maladies et ainsi vivre en meilleure santé, avec une meilleure …

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centre-ism.fr

centre-ism.fr centre-ism.fr           
Centre médical ISM
Centre médical ISM

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filiere-oscar.fr

filiere-oscar.fr filiere-oscar.fr           
Filière Maladies rares de l'os, du calcium et du cartilage - OSCAR
Le réseau national des acteurs des maladies rares de l’os, du calcium et du cartilage, financé et piloté par le Ministère de la Santé et de la [...]

Moz DA: 30 Moz Rank: 3.3 Semrush Rank: 23,895,373 Facebook ♡: 999
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martiderm.fr

martiderm.fr martiderm.fr           
MartiDerm - La marque de référence en dermocosmétique
Chez MartiDerm, nous proposons des solutions innovantes avec des formules efficaces et différenciées pour chaque besoin de la peau. Découvrez toutes nos gammes.

Semrush Rank: 4,557,130
Categories: Fashion/Beauty, ,Business,Business
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sed.fr

sed.fr sed.fr           
Accueil-SeD
{"robots":"","author":"","rights":"","xreference":""}


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mieux-vivre-avec-la-sep.com

mieux-vivre-avec-la-sep.com mieux-vivre-avec-la-sep.com           
Mieux vivre avec la Sclérose En Plaques (SEP)
Découvrez des conseils pratiques d'experts en texte et vidéos pour mieux gérer sa sclérose en plaques et mieux vivre avec la SEP au quotidien.

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emulek.github.io

emulek.github.io emulek.github.io           
Site not found · GitHub Pages

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hypermobilityconnect.com

hypermobilityconnect.com hypermobilityconnect.com           
Welcome to Hypermobility Connect
Welcome to Hypermobility Connect, an online community & education source for people with hypermobility conditions including The Hypermobility Spectrum Disorders, The Ehlers-Danlos Syndromes, Loeys-Dietz, Marfan & Stickler Syndromes and Osteogenesis Imperfecta. Based in Australia, supporting people across the globe!

Semrush Rank: 4,641,314
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afrh.fr

afrh.fr afrh.fr           
"Mettre un mot sur un mal, c'est mettre à mal tous les maux" | Association Française pour la Recherche sur l'Hidrosadénite | Marie-France Bru-Daprés
L'AFRH informe et soutient les personnes atteintes de la Maladie de Verneuil, diffuse l'information, incite la recherche médicale, recueille des fonds.

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karamursel.bel.tr

karamursel.bel.tr karamursel.bel.tr           
T.C. Karam�rsel Belediyesi
Kocaeli Karamursel, Kocaeli Karam�rsel, Karam�rsel Belediyesi

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sedcenter.org

sedcenter.org sedcenter.org           
Spanish Education Development (SED) Center - SED Center
Spanish Education Development (SED) Center

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sediabetes.org

sediabetes.org sediabetes.org           
Sociedad Española de Diabetes | SED
Sociedad Española de Diabetes | SED

Moz DA: 56 Moz Rank: 3.9 Semrush Rank: 14,476,009 Facebook ♡: 108
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alliance-maladies-rares.org

alliance-maladies-rares.org alliance-maladies-rares.org           
Alliance Maladies Rares - Accueil
La mission de l’Alliance Maladies Rares est de susciter, de développer, sur les questions communes aux maladies rares et aux handicaps rares, d’origine génétique ou non, toutes actions de recherche, d’entraide, d’information, de formation et de revendication.

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adenauercampus.de

adenauercampus.de adenauercampus.de           
Home - Adenauer Campus
Home - Adenauer Campus

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les-menus-services.com

les-menus-services.com les-menus-services.com           
Portage de repas � domicile pour personnes �g�es - Les Menus Services
Les Menus Services proposent un service de portage de repas à domicile pour personnes âgées. Nos repas sains et équilibrés, sont adaptés à tous les seniors.

Moz DA: 35 Moz Rank: 3.6 Semrush Rank: 4,512,538 Facebook ♡: 40
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