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GERSED Belgium asbl - Study and Research Group on Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome Study and Research Group

Categories: Health, Business
Topics: gersed belgium asbl, study and research group on ehlers-danlos syndrome

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docteurdaens.be
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Categories: Health, Business

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gesed.com
GESED asbl - Accueil
GESED - Groupe d'Entraide des Syndromes d'Ehlers-Danlos

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Categories: Non-Profit/Advocacy/NGO, General Organizations

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gersed.com
Gersed - Accueil - Gersed - Groupe d'Etude et de Recherche du Syndrome Ehlers-Danlos
Site de l'association du Groupe d’Etudes et de Recherches du Syndrome d’Ehlers-Danlos (GERSED), structure coordonnant les efforts d‘amélioration du diagnostic, du traitement et de la recherche sur le syndrome d’Ehlers-Danlos.
Le SED est une pathologie de l'ensemble du tissu conjonctif ,d'origine génétique, avec altération des collagènes.
Ce n’est plus une « maladie rare » mais un syndrome fréquent, méconnu, ignoré, voire refusé, dont le diagnostic est très tardif.
Le diagnostic repose sur la seule clinique, ce qui, est parfois difficile à admettre à notre époque d'inflation de l'imagerie et de la biologie ( qui sont normales dans ce cas).
Nous vous proposerons ici les outils d’aide au diagnostic du syndrome ainsi que leur mode d’emploi.
Il existe pourtant des traitements symptomatiques spécifiques efficaces quand le diagnostic est posé.

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assosed1plus.com
Association de sensibilisation, d'information et d'échanges sur les Syndrome d'Ehlers Danlos - Association Sed1+
Vous êtes atteint par l’une de ces maladies ? Vous accompagnez un malade ? Vous avez dans votre entourage une …

Semrush Rank: 8,557,427
Categories: Health, Business

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unsed.org
U.N.S.E.D - L'UNSED
UNSED association nationale des Syndromes d'Ehlers-Danlos.
Agréee par le Ministère de la Santé.

Semrush Rank: 4,297,024
Categories: Health, Shopping

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rqmo.org
RQMO – Regroupement québécois des maladies orphelines
:: Regroupement québécois des maladies orphelines::

Facebook ♡: 54
Categories: Health, Health and Wellness

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sedinfrance.org
SED in France - Association pour les Syndromes d'Ehlers-Danlos et les Troubles du Spectre de l'Hypermobilité - SED in FRANCE
SED in France - Association pour les Syndromes d'Ehlers-Danlos et les Troubles du Spectre de l'Hypermobilité - SED in FRANCE

Semrush Rank: 8,159,202
Categories: Non-Profit/Advocacy/NGO, Business

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