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Research Programmes on Rare Diseases (E-RARE)

Discover the importance of research programs on rare diseases and how they contribute to medical advancements. Learn about initiatives like the European Joint Programme on Rare Diseases (EJP RD).

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Topics: ema guidance, erare, german israeli foundation, insaid, simon woods, www.erare.eu

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react-congress.org

react-congress.org react-congress.org           
RE(ACT) Congress
The first international congress on rare and orphan diseases, a human platform for knowledge sharing



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rarediseasesinternational.org

rarediseasesinternational.org rarediseasesinternational.org           
Rare Diseases International Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.



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ejprarediseases.org

ejprarediseases.org ejprarediseases.org           
EJP RD - European Joint Programme on Rare Diseases
EJP RD - European Joint Programme on Rare Diseases


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rd-connect.eu

rd-connect.eu rd-connect.eu           
RD-Connect - RD-Connect website
RD-Connect - RD-Connect website


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irdirc.org

irdirc.org irdirc.org           
IRDiRC – International Rare Diseases Research Consortium
International Rare Diseases Research Consortium


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erapermed.eu

erapermed.eu erapermed.eu           
ERA PerMed
Iberian network of laboratories of biological alert. Accreditation of methods for detection of highly pathogenic agents, IB-BIOALERTNET, is a project supported through the Programme Prevention of and Fight against Crime (ISEC) of European Comission (directorate-General Home Affairs). It consist in building an Iberian Network of laboratories aiming the exchange of information, training, technology transfer, standardization and accreditation of procedures to become an effective tool to respond rapidly and efficiently to biological threats.


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neuron-eranet.eu

neuron-eranet.eu neuron-eranet.eu           
Homepage Neuroscience Research Network - ERA-NET NEURON
NEURON ERA-NET is an Network of European Funding for Neuroscience Research. Find out more about funding options and other activities around brain research.



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ngocommitteerarediseases.org

ngocommitteerarediseases.org ngocommitteerarediseases.org           
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care



Categories: Non-Profit/Advocacy/NGO, Business
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udninternational.org

udninternational.org udninternational.org           
UDNI - Undiagnosed Diseases Network International
UDNI - Undiagnosed Diseases Network International


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rarebestpractices.eu

rarebestpractices.eu rarebestpractices.eu           
RareBestPractices
RareBestPractices


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rd-action.eu

rd-action.eu rd-action.eu           
RD-ACTION : DATA AND POLICIES for rare diseases – RD-ACTION, the new Joint Action consisting of the member states of the European Union for rare diseases,
RD-ACTION : DATA AND POLICIES for rare diseases - RD-ACTION, the new Joint Action consisting of the member states of the European Union for rare diseases,


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m-era.net

m-era.net m-era.net           
Home - M-ERA.NET
Home - M-ERA.NET


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rare2030.eu

rare2030.eu rare2030.eu           



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ern-euro-nmd.eu

ern-euro-nmd.eu ern-euro-nmd.eu           
European Reference Network - EURO-NMD - European Reference Network for Neuromuscular Diseases
European Reference Network - EURO-NMD - European Reference Network for Neuromuscular Diseases


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solar-era.net

solar-era.net solar-era.net           
SOLAR-ERA.NET
SOLAR-ERA.NET


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forestvalue.org

forestvalue.org forestvalue.org           
ForestValue » ForestValue2
ForestValue » ForestValue2


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jointactionrarecancers.eu

jointactionrarecancers.eu jointactionrarecancers.eu           
How we work
The Joint Action on Rare Cancers is a multistakeholders collaboration between 18 Member States and European Commission, coordinated by the Fondazione IRCCS Istituto Nazionale dei Tumori of Milan. There are 34 partners involved in the JARC including Ministries of Health/Cancer Control Programmes representatives (Cyprus, Czech Republic, France, Ireland, Italy, Malta, Poland and Spain), universities, public health health institutions, population-based cancer registries, oncological onstitutes, patients associations (ECPC, EURORDIS, CCI-Europe) and other societies/organisations (including the Organisation of European Cancer Institutes - OECI and European Society for Pediatric Oncology - SIOPE).


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eurordis.org

eurordis.org eurordis.org           
EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 1000 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe



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orphadata.org

orphadata.org orphadata.org           
Orphadata
Orphadata


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e-accessibilitytoolkit.org

e-accessibilitytoolkit.org e-accessibilitytoolkit.org           
Homepage-e-accessibilitytoolkit.org
A flagship partnership initiative of UN-GAID, the United Nations Global Alliance for ICT and Development, G3ict is headed by W2i , the Wireless Internet Institute in cooperation with the Secretariat for the Convention on the Protection and Promotion of the Rights and Dignity of Persons with Disabilities and UNITAR, the United Nations Institute for Training and Research.


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era-min.eu

era-min.eu era-min.eu           
ERA.MIN |
RESEARCH & INNOVATION PROGRAMME ON RAW MATERIALS TO FOSTER CIRCULAR ECONOMY


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raregenomes.org

raregenomes.org raregenomes.org           
Rare Genomes Project
Rare Genomes Project



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recordatirarediseases.com

recordatirarediseases.com recordatirarediseases.com           
Home | Recordati Rare Diseases
At Recordati Rare Diseases, we focus on the few - those affected by rare diseases. We believe that every single patient has the right to the best possible treatment.


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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...


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gif.org.il

gif.org.il gif.org.il           
Gif - Portal
Web site created using create-react-app


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era-cvd.eu

era-cvd.eu era-cvd.eu           
Home - ERA-CVD
Home - ERA-CVD



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eranet-smartenergysystems.eu

eranet-smartenergysystems.eu eranet-smartenergysystems.eu           
ERA-Net Smart Energy Systems: INNOVATION FOR SMART ENERGY SYSTEMS IN EUROPE
This website presents information about the Joint Programming Platform Smart Energy Systems including its goals and calls for co-funded (by EC and the national/regional funding agencies) projects on Smart Energy Systems.


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e-school.or.kr

e-school.or.kr e-school.or.kr           
학생선수 e-School
학생선수 e-School


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bbmri-eric.eu

bbmri-eric.eu bbmri-eric.eu           
Home - BBMRI-ERIC
BBMRI-ERIC is a European biobanking research infrastructure dedicated to providing researchers with the support they need to find new treatments.


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rare-diseases.eu

rare-diseases.eu rare-diseases.eu           
European Conference on Rare Diseases - ECRD2022
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.


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eranet-rus.eu

eranet-rus.eu eranet-rus.eu           
Attention Required! | Cloudflare


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gender-net-plus.eu

gender-net-plus.eu gender-net-plus.eu           
GENDER-NET Plus - GENDER-NET Plus ERA-NET Cofund
GENDER-NET Plus ERA-NET Cofund


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faccejpi.com

faccejpi.com faccejpi.com           
FACCE-JPI Home
Welcome to the website of the Joint Programming Initiative Agriculture, Fod Security and Climate Change


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raresites.org

raresites.org raresites.org           
rare Charitable Research Reserve - Conservation | Research | Education
rare Charitable Research Reserve - Conservation | Research | Education


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bbmri.nl

bbmri.nl bbmri.nl           
BBMRI | BBMRI
BBMRI | BBMRI


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orphan-reach.com

orphan-reach.com orphan-reach.com           
orphan reach™- A Rare Disease CRO for Orphan Drugs
a CRO dedicated to rare disease clinical trials


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lipidgeneticsclinic.ca

lipidgeneticsclinic.ca lipidgeneticsclinic.ca           



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eranetbioenergy.net

eranetbioenergy.net eranetbioenergy.net           
eranetbioenergy.net
Welcome!   ERA-NET Bioenergy – Pulling bioenergy research together Welcome to ERA-NET Bioenergy! Here you can find background information and project descriptions on bioenergy research. The European strategy for renewable energy sources identifies bioenergy as the most important renewable energy source for the future: a source of cleaner, more secure and sustainable power for Europe.…


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erknet.org

erknet.org erknet.org           
ERKNet: ERKNet
The European Rare Kidney Disease Reference Network


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eye-tuebingen.de

eye-tuebingen.de eye-tuebingen.de           
Institute for Ophthalmic Research: Institute for Ophthalmic Research Tuebingen
Institute for Ophthalmic Research: Institute for Ophthalmic Research Tuebingen


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infect-era.eu

infect-era.eu infect-era.eu           
Infect-ERA | Infect-ERA
Website of the ERA-NET Infect-ERA: Coordination of European funding for infectious diseases research.


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vascern.eu

vascern.eu vascern.eu           
VASCERN - The European Reference Network on Rare Multisystemic Vascular Diseases
VASCERN - The European Reference Network on Rare Multisystemic Vascular Diseases


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e.org

e.org e.org           
Britain's Best Prepayment Energy Supplier | E
E Gas & Electricity are a UK-based dual fuel energy supplier, committed to providing affordable & reliable energy for your home.
Live album by Električni Orgazam. ElOrgNewWave is the fifth live album by the Serbian rock band Električni Orgazam. The album featured the live versions of the song from the band's new wave period.

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esfri.eu

esfri.eu esfri.eu           
www.esfri.eu
www.esfri.eu


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icpermed.eu

icpermed.eu icpermed.eu           
International Consortium for Personalised Medicine - ICPerMed
The International Consortium for Personalised Medicine (ICPerMed) brings together research funding organisations from 31 countries to foster research in personalised medicine.



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rarediseaseday.us

rarediseaseday.us rarediseaseday.us           
Rare Disease Day - NORD (National Organization for Rare Disorders)
Rare Disease Day USA | Alone we are Rare. Together we are Strong.



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corbel-project.eu

corbel-project.eu corbel-project.eu           
Home | CORBEL Project – Coordinated Research Infrastructures Building Enduring Life-science Services
Home: The CORBEL Project is an Initiative of eleven new biological and medical research infrastructures (BMS RIs), which together will create a platform for harmonised user access to biological and medical technologies, biological samples and data services required by cutting-edge biomedical research.


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raregenomics.org

raregenomics.org raregenomics.org           
Rare Genomics Institute
Rare Genomics Institute connects patients to research institutions and
assists with logistics and fundraising.


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bsf.org.il

bsf.org.il bsf.org.il           
Homepage - BSF
The U.S.-Israel Binational Science Foundation (BSF) promotes scientific relations between the U.S. and Israel by supporting collaborative research projects in a wide area of basic and applied scientific fields, for peaceful and non-profit purposes.


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healx.io

healx.io healx.io           
Healx | Discovering new treatments for rare disease patients
We're an AI-powered, patient-inspired biotech, and we're breaking new ground in the discovery of new treatments for rare disease patients.


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ordindia.org

ordindia.org ordindia.org           
Tabletki na dłuższy stosunek - TEST i ranking - wyłoniliśmy najlepsze tabletki na dłuższy stosunek
Poznaj zwycięzcę testu na najlepsze tabletki na dłuższy stosunek na rynku. Nasza recenzja, opinie użytkowników, działanie. Zobacz ranking i wybierz najskuteczniejsze i zaufane tabletki na dłuższy stosunek



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rarediseasefoundation.org

rarediseasefoundation.org rarediseasefoundation.org           
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.


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e-value.net

e-value.net e-value.net           
eValue


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