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Rare & Undiagnosed Network

To empower rare & undiagnosed patients and their families with genomic information and community through advocacy, networking and support.
Categories: Health, Health and Wellness
Topics: rare & undiagnosed network, rare and undiagnosed diseases, rare diseases, undiagnosed disease networks, undiagnosed network, utah rare

Semrush Rank: 3,283,855
rareundiagnosed.org
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Sites similar to rareundiagnosed.org - Top 34 rareundiagnosed.org alternatives

claritypharma.com

claritypharma.com claritypharma.com           
Clarity Pharma Research LLC - Pharmaceutical Market Research Companies, Pharmaceutical Market Research Reports, Rare Diseases
We provide custom pharmaceutical market research pre/post launch: market sizing, product uptake, treatment patterns, clinical utility, publication/presentation.

Semrush Rank: 13,606,832
Categories: Business, Health and Wellness
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jerinicares.com

jerinicares.com jerinicares.com           
JeriniCares | HAE | hereditary angioedema | rare diseases
JeriniCares is a free support program created to assist HAE patients and their caregivers in navigating the current healthcare system with regard to reimbursement. JeriniCares provides comprehensive assistance for insurance-related issues. JeriniCares, HAE patients and HCP's potential sponsored clinical trials.

Semrush Rank: 31,328,058
Categories: Marketing/Merchandising, Health and Wellness
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atlantichc.com

atlantichc.com atlantichc.com           
GI therapeutics | Rare Diseases | Atlantic Healthcare
We are a specialist pharmaceutical company focused on developing & commercializing therapeutics that address unmet patient needs & rare diseases.

Semrush Rank: 6,174,985
Categories: Business, Health and Wellness
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geneticalliance.org.au

geneticalliance.org.au geneticalliance.org.au           
Genetic Support | Rare Diseases | Genetic Alliance Australia | Support for those affected directly or indirectly by genetic conditions so rare there is no support group
Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia. Information, support network, personal stories, news and events.

Semrush Rank: 8,436,358
Categories: Marketing/Merchandising, Business
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orsinihealthcare.com

orsinihealthcare.com orsinihealthcare.com           
Specialty Pharmacy | Rare Diseases | Gene Therapies
Orsini Specialty Pharmacy is the leading specialty pharmacy for rare diseases and gene therapies dedicated to providing exceptional care to patients.

Semrush Rank: 26,736,517
Categories: Business, Health and Wellness
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orsinispecialtypharmacy.com

orsinispecialtypharmacy.com orsinispecialtypharmacy.com           
Specialty Pharmacy | Rare Diseases | Gene Therapies
Orsini Specialty Pharmacy is the leading specialty pharmacy for rare diseases and gene therapies dedicated to providing exceptional care to patients.


Categories: Health, Business
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plexa.ai

plexa.ai plexa.ai           
Plexa - Find, Share & Discuss trusted content on Cancer & Rare Diseases
Plexa - Find, Share & Discuss trusted content on Cancer & Rare Diseases

Semrush Rank: 51,822,273
Categories: Business, Health and Wellness
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onthepulseconsultancy.com

onthepulseconsultancy.com onthepulseconsultancy.com           
On The Pulse Consultancy | Expert Patient Insight | Rare Diseases
Independent consultancy partnering with global healthcare providers to drive patient education & choice in haemophilia & rare diseases.

Semrush Rank: 13,043,921
Categories: Business, Business
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rarediseases.about.com

rarediseases.about.com rarediseases.about.com           
Rare Diseases
It may seem unfair to be diagnosed with a rare disease, but learning as much as you can will help you cope with your illness.

Facebook ♡: 6
Categories: Health, Health and Wellness
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ngly1.org

ngly1.org ngly1.org           
500 Internal Server Error

Semrush Rank: 2,559,588
Categories: Education/Reference, Health and Wellness
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utahrare.org

utahrare.org utahrare.org           
Les Remèdes naturels Pour traiter la Dysfonction Érectile Qui fonctionnent VRAIMENT! - Lima 2019
Les Remèdes naturels Pour traiter la Dysfonction Érectile Qui fonctionnent VRAIMENT! - Lima 2019


Categories: Health, Health and Wellness
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udninternational.org

udninternational.org udninternational.org           
UDNI - Undiagnosed Diseases Network International
UDNI - Undiagnosed Diseases Network International

Semrush Rank: 3,393,714
Categories: Health, Information Technology
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overcomingmovementdisorder.com

overcomingmovementdisorder.com overcomingmovementdisorder.com           
Overcoming Movement Disorder
Overcoming Movement Disorder

Semrush Rank: 4,118,191
Categories: Blogs/Wiki, Personal Websites and Blogs
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undiagnosedfilm.com

undiagnosedfilm.com undiagnosedfilm.com           
U N D I A G N O S E D
"Undiagnosed: Medical Refugees" is a groundbreaking documentary on the
untold story of millions of people who live with unsolved illnesses. They
hold the key to the future of medicine, yet this population is being
ignored.

Semrush Rank: 3,967,673
Categories: Marketing/Merchandising, Health and Wellness
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raregenomics.org

raregenomics.org raregenomics.org           
Rare Genomics Institute
Rare Genomics Institute connects patients to research institutions and
assists with logistics and fundraising.

Moz DA: 47 Moz Rank: 4 Semrush Rank: 564,296 Facebook ♡: 203
Categories: Business, Health and Wellness
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dumcudn.org

dumcudn.org dumcudn.org           
Duke Undiagnosed Diseases Network
Duke is one of a network of medical centers across the country focusing on undiagnosed diseases.

Semrush Rank: 6,631,029
Categories: Health, Information Technology
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rareadvocates.org

rareadvocates.org rareadvocates.org           
rareadvocates.org
Sucuri WebSite Firewall - Access Denied

Semrush Rank: 1,416,987 Facebook ♡: 764
Categories: Business, Health and Wellness
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littlemisshannah.com

littlemisshannah.com littlemisshannah.com           
Little Miss Hannah
Hannah Ostrea's journey and fight against neuronopathic Gaucher's disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a mom on a mission for rare disease awareness, pediatric hospice and palliative care, and forever the fighter for a cure for Neuronopathic Gaucher's disease. Hoping to connect all families of children with Gaucher's type 2 and type 3 together.


Categories: Blogs/Wiki, Health and Wellness
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awareofangels.org

awareofangels.org awareofangels.org           
Chromosome Disorders | Genetic Disorders | Aware of Angels
Chromosome Disorders | Genetic Disorders | Aware of Angels

Semrush Rank: 3,508,174
Categories: Blogs/Wiki, Business
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adnpkids.com

adnpkids.com adnpkids.com           
"ADNP Kids" - Helsmoortel-Van Der Aa Syndrome ( HVDAS ) "ADNP Syndrome"
ADNP Syndrome, Helsmoortel-Van Der Aa Syndrome (HVDAS) Information, ADNP gene Research, Activity Dependent Neuroprotective Protein gene, Autism, Autism related syndrome

Semrush Rank: 2,924,026
Categories: Health, Business
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fdna.com

fdna.com fdna.com           
FDNA®
We use facial analysis, deep learning and artificial intelligence to transform big data into actionable genomic intelligence.


Categories: Business, Health and Wellness
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rarediseasesinternational.org

rarediseasesinternational.org rarediseasesinternational.org           
Rare Diseases International Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.


Categories: Health, Business
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mhecoalition.org

mhecoalition.org mhecoalition.org           
MHE Coalition - Home
It goes by several different names​​​ Multiple Hereditary Exostoses​ (MHE) Hereditary Multiple Exostoses (HME) Multiple Osteochondromas (MO) It's a genetic bone disorder Benign, cartilage...


Categories: Marketing/Merchandising, Medicine
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mherf.org

mherf.org mherf.org           
Home | website


Categories: Health, Information Technology
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perlara.com

perlara.com perlara.com           
Perlara PerlQuests™ find potential cures for rare and common diseases
Perlara PBC is working with families, patient organizations and researchers to develop cures for rare diseases and learn how genes work across diseases

Semrush Rank: 2,691,868 Facebook ♡: 17
Categories: Blogs/Wiki, Business
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hopeforkatherinebelle.com

hopeforkatherinebelle.com hopeforkatherinebelle.com           
HOPE FOR KATHERINE BELLE | Awareness for NUBPL
Awareness for NUBPL

Semrush Rank: 6,844,789
Categories: Blogs/Wiki, Health and Wellness
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mheresearchfoundation.org

mheresearchfoundation.org mheresearchfoundation.org           
MHE Research Foundation~Multiple Hereditary Exostoses~Multiple Osteochondroma
MHE Research Foundation 501(c)(3) organization dedicated to finding a cure for this rare bone disease. Providing comprehensive information on Research, Orthopaedics, Genetics, Chronic Pain, Conferences and Doctor Directories to help locate medical care.

Facebook ♡: 152
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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medgift.com

medgift.com medgift.com           
Homepage - MedGift Advocacy Services
start a Support Page Skip The Flowers… And Give The Gift Of Support                 Connecting People in Need with People who Care! MedGift, a 501(c)3 charity, is the complete resource tool for people facing a health-related journey. start a Support Page Donate To Medgift Struggling to afford all […]

Facebook ♡: 778

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angelshands.org

angelshands.org angelshands.org           
Angel's Hands Foundation
Angel Hands Foundation


Categories: Sports, General Organizations
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debbiejorde.com

debbiejorde.com debbiejorde.com           
Home-Debbie Jorde
Debbie Jorde, author of Eight Fingers and Eight Toes, writes about accepting and overcoming challenges, reminding you that you are not alone.

Semrush Rank: 2,286,591 Facebook ♡: 1,093
Categories: Blogs/Wiki, Business
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everylifefoundation.org

everylifefoundation.org everylifefoundation.org           
EveryLife Foundation for Rare Diseases
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.

Moz DA: 46 Moz Rank: 4.6 Semrush Rank: 475,904
Categories: Non-Profit/Advocacy/NGO, Health and Wellness
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raredisease.org.uk

raredisease.org.uk raredisease.org.uk           
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Rare Disease Day videos Becky’s Kool journey Rare Disease Day 2022 highlights Emily’s story Our SYNGAP1 story Our wo ...

Facebook ♡: 163
Categories: Business, Health and Wellness
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rarediseaseday.us

rarediseaseday.us rarediseaseday.us           
Rare Disease Day - NORD (National Organization for Rare Disorders)
Rare Disease Day USA | Alone we are Rare. Together we are Strong.


Categories: Marketing/Merchandising, Health and Wellness
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mymigrainebrain.com

mymigrainebrain.com mymigrainebrain.com           
Welcome mymigrainebrain.com - BlueHost.com
Bluehost - Top rated web hosting provider - Free 1 click installs For blogs, shopping carts, and more. Get a free domain name, real NON-outsourced 24/7 support, and superior speed. web hosting provider php hosting cheap web hosting, Web hosting, domain names, front page hosting, email hosting. We offer affordable hosting, web hosting provider business web hosting, ecommerce hosting, unix hosting. Phone support available, Free Domain, and Free Setup.


Categories: Health, Health and Wellness
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