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Little Miss Hannah

Hannah Ostrea's journey and fight against neuronopathic Gaucher's disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a mom on a mission for rare disease awareness, pediatric hospice and palliative care, and forever the fighter for a cure for Neuronopathic Gaucher's disease. Hoping to connect all families of children with Gaucher's type 2 and type 3 together.

Categories: Blogs/Wiki, Health and Wellness
Topics: 84gg, childhood rare disease, d409, gaucher's disease type 2, gaucher's disease type 3, little miss hannah, lysosomal storage disease, neuronopathic, rare disease, terminal illness, world rare disease day

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