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As you may be aware the HSE ICT systems have been severely compromised due to a Cyber attack since Friday. All computers and phones are affected. This also  involves the analysis and reporting of blood results. Please continue to send bloods as frequently as you have been advised by the metabolic team. There will, however …

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agsn.org.au

agsn.org.au agsn.org.au           
The Australian Galactosaemia Support Network | Supporting the treatment of galactosaemia
The Australian Galactosaemia Support Network | Supporting the treatment of galactosaemia


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galactosemia.org

galactosemia.org galactosemia.org           
Galactosemia Foundation
We connect families affected by galactosemia, and support networking efforts between clinicians and researchers.


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hgsa.org.au

hgsa.org.au hgsa.org.au           
Human Genetics Society of Australasia - Human Genetics Society of Australasia
Human Genetics Society of Australasia - Human Genetics Society of Australasia


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pkuconnect.com.au

pkuconnect.com.au pkuconnect.com.au           
PKU Connect
PKU (Phenylketonuria) is an inherited treatable condition where the body has problems breaking down a particular building block of protein (amino acid) called


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gmdi.org

gmdi.org gmdi.org           
Home


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mdda.org.au

mdda.org.au mdda.org.au           
MDDA | Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association (MDDA) is a national self-help group founded in 1996 by parents to support other families and individuals affected by Inborn Errors of Metabolism (IEMs). Rare genetic disorders including Phenylketonuria (PKU), Urea Cycle Disorders, Galactosaemia, Tyrosinaemia (TYRO). MDDA supports and represents families and individuals affected by a genetic Inborn Error of Metabolism whereby treatment involves a medically controlled diet.


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bimdg.org.uk

bimdg.org.uk bimdg.org.uk           
BIMDG :: British Inherited Metabolic Disease Group
BIMDG :: British Inherited Metabolic Disease Group



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metabolicdietapp.org

metabolicdietapp.org metabolicdietapp.org           
Diet App Suite
Diet App Suite


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newenglandconsortium.org

newenglandconsortium.org newenglandconsortium.org           
New England Consortium of Metabolic Programs
New England Consortium of Metabolic Programs



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lowproteinconnect.com

lowproteinconnect.com lowproteinconnect.com           
Nutricia.co.uk - Homepage Patients & Carers
Nutricia.co.uk - Homepage Healthcare professionals


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medicalfood.com

medicalfood.com medicalfood.com           
Home - Nutricia Metabolics
Welcome to Nutricia North America. You home for metabolic formula and low protein foods for the dietary management of PKU, MSUD, TYR, HCU, UCD and ...


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nspku.org

nspku.org nspku.org           
Home - The National Society for Phenylketonuria (NSPKU)
The National Society for Phenylketonuria (NSPKU) was founded in 1973 as the national charity for people living with the rare […]


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sweetpoison.com

sweetpoison.com sweetpoison.com           
Aspartame Dangers Revealed!
Sweetpoison, written by author Dr. Janet Starr Hull, is a book exposing aspartame dangers. SweetPoison.com provides a variety of aspartame information, nutritional advice on detoxification and various aspartame resources.


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msud-support.org

msud-support.org msud-support.org           
Home | MSUD Family Support Group
WELCOME TO THE MSUD FAMILY SUPPORT GROUP       The MSUD Family Support Group is a non-profit volunteer-run organization serving families and...



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gemssforschools.org

gemssforschools.org gemssforschools.org           
Genetic Education Materials for School Success (GEMSS) | New England Regional Genetics Network
Genetic Education Materials (GEMSS)



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taranis-nutrition.com

taranis-nutrition.com taranis-nutrition.com           
Accueil - Taranis
Accueil - Taranis



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lowproliving.com

lowproliving.com lowproliving.com           
Nutricia Low Protein Living Blog
Nutricia Low Protein Living Blog



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nutricor.ro

nutricor.ro nutricor.ro           
Centrul de Reabilitare Nutricor
Produse de nutritie enterala. Suplimente nutritionale. Produse pentru malnutritie. Regimuri alimentare.


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espku.org

espku.org espku.org           
Welcome to E.S.PKU
E.S.PKU is the umbrella organization for European Phenylketonuria organizations and hosts an annual conference in a member country.



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pkunsw.org.au

pkunsw.org.au pkunsw.org.au           
PKU AssociationPKU NSW
The PKU Association of NSW is here to promote awareness around PKU and to
support individuals and their families. We also support research into the
treatment of Phenylketonuria.


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npkua.org

npkua.org npkua.org           
Home


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adultmetabolicdiseasesclinic.ca

adultmetabolicdiseasesclinic.ca adultmetabolicdiseasesclinic.ca           
Adult Metabolic Diseases Clinic
Adult Metabolic Diseases Clinic


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georgiapku.org

georgiapku.org georgiapku.org           
HOME | Georgia PKU Connect
HOME | Georgia PKU Connect


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nucdf.org

nucdf.org nucdf.org           
Home : National Urea Cycle Disorders Foundation
Home : National Urea Cycle Disorders Foundation


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mevalia.com

mevalia.com mevalia.com           
Mevalia's complete range of tasty protein supplement and low protein foods
Mevalia is Dr. Schär’s complete range of protein supplements and food products with low protein content, specifically formulated for the treatment of Phenylketonuria (PKU), other related disorders and for diets which require to be low in protein.


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cambrooke.com

cambrooke.com cambrooke.com           
Ajinomoto Cambrooke
Ajinomoto Cambrooke is a leader and global innovator in the field of advanced medical nutrition. We are passionate in our pursuit of improving the lives of patients by bringing new therapeutic options to those with therapeutic and chronic medical needs.



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pkuperspectives.com

pkuperspectives.com pkuperspectives.com           
PKU Perspectives
PKU Perspectives offers over 500 low protein foods. I can place just one order and get everything I need for my PKU, CKD, MSUD, Homocystinuria diet.



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acesulfamek.org

acesulfamek.org acesulfamek.org           
Acesulfame Potassium (Ace-K) – Acesulfame Potassium, also called Acesulfame K or Ace-K, is a calorie-free sweetener used to replace sugar and reduce calories in foods and beverages.
Acesulfame Potassium (Ace-K) - Acesulfame Potassium, also called Acesulfame K or Ace-K, is a calorie-free sweetener used to replace sugar and reduce calories in foods and beverages.


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hcusupport.com

hcusupport.com hcusupport.com           
HCU Support - HOMOCYSTINURIA SUPPORT SITE
HCU Support - HOMOCYSTINURIA SUPPORT SITE



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pkuboard.info

pkuboard.info pkuboard.info           
PKUBoard
Biggest International Phenylketonuria Community!


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oaanews.org

oaanews.org oaanews.org           
Organic Acidemia Association - we care for the rare
Welcome to the Organic Acidemia AssociationVisit our blog to find the latest OAA news, meet our kids, and find helpful resources.Learn MoreWe Are a Parent-Led CommunityOrganic Acidemia Association is a non-profit organization on a mission to empower families with knowledge and resources for organic acidemia metabolic disorders.Learn More Previous slide Next slide We are parents,…


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aboutaspartame.com

aboutaspartame.com aboutaspartame.com           
Aspartame - Amino Acid-Based Sweetener | Ajinomoto Health & Nutrition
The world's best high potency amino acid-based sweetener for sugar-like taste. Made of amino acids found naturally in fruits & vegetables. Order a sample!


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pku.com

pku.com pku.com           
Education and support on your PKU journey | PKU
Personalized support for people living with phenylketonuria (PKU). Get the latest information about the disease, its symptoms, and managing blood Phe levels.



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prominpku.com

prominpku.com prominpku.com           
Promin Metabolics - Promin
Promin Metabolics


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canpku.org

canpku.org canpku.org           
Canadian PKU and Allied Disorders - Home
Canadian PKU and Allied Disorders - Home


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hyetsweet.com

hyetsweet.com hyetsweet.com           
TransIP - Reserved domain
TransIP - Reserved domain



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newbornscreening.on.ca

newbornscreening.on.ca newbornscreening.on.ca           
Home | CHEO NSO
Home | CHEO NSO


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glycosadeusa.com

glycosadeusa.com glycosadeusa.com           
This site is experiencing a problem



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fodsupport.org

fodsupport.org fodsupport.org           
Fatty Oxidation Disorders Family Support Group - All In This Together
Fatty Oxidation Disorders Family Support Group - All In This Together


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agsdus.org

agsdus.org agsdus.org           
Home | Association for Glycogen Storage Disease
Home | Association for Glycogen Storage Disease


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pkunews.org

pkunews.org pkunews.org           
Welcome to PKU News - PKU News
Welcome to PKU News - PKU News


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nutricia.co.uk

nutricia.co.uk nutricia.co.uk           
Nutricia UK | Homepage for Patients & Carers
Discover Nutricia for Patients and Carers including information about our products, support services, recipe ideas and more.



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americangene.com

americangene.com americangene.com           
American Gene Technologies: Developing Gene And Cell Therapies
American Gene Technologies™ (AGT) is a gene and cell therapeutics company with a proprietary lentiviral platform capable of broad applications.


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acertx.com

acertx.com acertx.com           
Home - Acer Therapeutics
Home - Acer Therapeutics


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