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Education and support on your PKU journey | PKU

Personalized support for people living with phenylketonuria (PKU). Get the latest information about the disease, its symptoms, and managing blood Phe levels.

Categories: Health, Education
Topics: education and support on your pku journey

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pkunews.org

pkunews.org pkunews.org           
Welcome to PKU News - PKU News
Welcome to PKU News - PKU News


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pkuconnect.com.au

pkuconnect.com.au pkuconnect.com.au           
PKU Connect
PKU (Phenylketonuria) is an inherited treatable condition where the body has problems breaking down a particular building block of protein (amino acid) called


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npkua.org

npkua.org npkua.org           
Home


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nspku.org

nspku.org nspku.org           
Home - The National Society for Phenylketonuria (NSPKU)
The National Society for Phenylketonuria (NSPKU) was founded in 1973 as the national charity for people living with the rare […]


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cookforlove.org

cookforlove.org cookforlove.org           
Just a moment...
Just a moment...


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Categories: Non-Profit/Advocacy/NGO, Society and Lifestyles
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canpku.org

canpku.org canpku.org           
Canadian PKU and Allied Disorders - Home
Canadian PKU and Allied Disorders - Home


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newenglandconsortium.org

newenglandconsortium.org newenglandconsortium.org           
New England Consortium of Metabolic Programs
New England Consortium of Metabolic Programs



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pkuboard.info

pkuboard.info pkuboard.info           
PKUBoard
Biggest International Phenylketonuria Community!


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Categories: Forum/Bulletin Boards, Social Networking
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macpad.org

macpad.org macpad.org           
MACPAD | Home
Get Connected, Get Support - Get Connected With A Support Group Near You! Use The Following Links To Become A Member Of Macpad And The National Pku Alliance...


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adultswithpku.org

adultswithpku.org adultswithpku.org           



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hgsa.org.au

hgsa.org.au hgsa.org.au           
Human Genetics Society of Australasia - Human Genetics Society of Australasia
Human Genetics Society of Australasia - Human Genetics Society of Australasia


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Categories: Education/Reference, Health and Wellness
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meupku.wordpress.com

meupku.wordpress.com meupku.wordpress.com           
Me, You and PKU – a rare disease, a wonderful life
a rare disease, a wonderful life


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howmuchphe.org

howmuchphe.org howmuchphe.org           
HowMuchPhe.org
HowMuchPhe.org: A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels.


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pkubrain.com

pkubrain.com pkubrain.com           
Phenylketonuria (PKU) Information | PKUBrain
Phenylketonuria, or PKU, is a lifelong metabolic disorder with risk of serious neurological consequences. Brain Phe Impact.


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medicalfood.com

medicalfood.com medicalfood.com           
Home - Nutricia Metabolics
Welcome to Nutricia North America. You home for metabolic formula and low protein foods for the dietary management of PKU, MSUD, TYR, HCU, UCD and ...


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pkunetwork.org

pkunetwork.org pkunetwork.org           
pkunetwork.org - pkunetwork Resources and Information.
pkunetwork.org is your first and best source for all of the information you’re looking for. From general topics to more of what you would expect to find here, pkunetwork.org has it all. We hope you find what you are searching for!



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adultmetabolicdiseasesclinic.ca

adultmetabolicdiseasesclinic.ca adultmetabolicdiseasesclinic.ca           
Adult Metabolic Diseases Clinic
Adult Metabolic Diseases Clinic


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cambrooke.com

cambrooke.com cambrooke.com           
Ajinomoto Cambrooke
Ajinomoto Cambrooke is a leader and global innovator in the field of advanced medical nutrition. We are passionate in our pursuit of improving the lives of patients by bringing new therapeutic options to those with therapeutic and chronic medical needs.



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pkuevents.com

pkuevents.com pkuevents.com           
Upcoming PKU Events
Phenylketonuria (PKU) community events. Community support for people living with PKU. PKU educational events near me. Upcoming PKU events.


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pkuperspectives.com

pkuperspectives.com pkuperspectives.com           
PKU Perspectives
PKU Perspectives offers over 500 low protein foods. I can place just one order and get everything I need for my PKU, CKD, MSUD, Homocystinuria diet.



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lowproliving.com

lowproliving.com lowproliving.com           
Nutricia Low Protein Living Blog
Nutricia Low Protein Living Blog



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espku.org

espku.org espku.org           
Welcome to E.S.PKU
E.S.PKU is the umbrella organization for European Phenylketonuria organizations and hosts an annual conference in a member country.



Categories: Health, General Organizations
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pkunsw.org.au

pkunsw.org.au pkunsw.org.au           
PKU AssociationPKU NSW
The PKU Association of NSW is here to promote awareness around PKU and to
support individuals and their families. We also support research into the
treatment of Phenylketonuria.


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pkuil.org

pkuil.org pkuil.org           
PKU Organization of Illinois – and Allied Disorders
PKU Organization of Illinois - and Allied Disorders



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pku.ie

pku.ie pku.ie           
Home - PKU
We keep this mailing list in order to share information with you that we think will be useful. We will always keep the details within this mailing list private and secure, and we will never pass this information on to…


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mevalia.com

mevalia.com mevalia.com           
Mevalia's complete range of tasty protein supplement and low protein foods
Mevalia is Dr. Schär’s complete range of protein supplements and food products with low protein content, specifically formulated for the treatment of Phenylketonuria (PKU), other related disorders and for diets which require to be low in protein.


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southeastgenetics.org

southeastgenetics.org southeastgenetics.org           
Southeast Regional Genetics Network (SERN) | Improving health equity and outcomes in individuals with genetic conditions
Southeast Regional Genetics Network (SERN) | Improving health equity and outcomes in individuals with genetic conditions


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pku-resources.com

pku-resources.com pku-resources.com           
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lowproteinconnect.com

lowproteinconnect.com lowproteinconnect.com           
Nutricia.co.uk - Homepage Patients & Carers
Nutricia.co.uk - Homepage Healthcare professionals


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anpadnews.org

anpadnews.org anpadnews.org           
ANPAD - Arizona Network for PKU and Allied Disorders
Arizona Net for PKU and Allied Disorders


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thezbfoundation.com

thezbfoundation.com thezbfoundation.com           
The ZB Foundation
Zahra Beau Naqvi, born on October 8th, 2011, was a beautifully peaceful girl with deep, soulful black eyes, rich red lips and porcelain white skin


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taranis-nutrition.com

taranis-nutrition.com taranis-nutrition.com           
Accueil - Taranis
Accueil - Taranis



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mealplansite.com

mealplansite.com mealplansite.com           
The Meal Plan Site - FREE Diet Plans to Suit YOU
The site that offers Meal Plans to suit your diet


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metabolic.ie

metabolic.ie metabolic.ie           
Home - Metabolic
As you may be aware the HSE ICT systems have been severely compromised due to a Cyber attack since Friday. All computers and phones are affected. This also  involves the analysis and reporting of blood results. Please continue to send bloods as frequently as you have been advised by the metabolic team. There will, however …


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biomarin.com

biomarin.com biomarin.com           
BioMarin Pharmaceutical Inc.
BioMarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.


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excemed.org

excemed.org excemed.org           
EXCEMED - Excellence in Medical Education
Non-profit global organization dedicated to improving the patient’s life through high-impact continuing medical education (CME).


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met-ed.net

met-ed.net met-ed.net           
Welcome to MetED Website
Welcome to MetED Website


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mdda.org.au

mdda.org.au mdda.org.au           
MDDA | Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association (MDDA) is a national self-help group founded in 1996 by parents to support other families and individuals affected by Inborn Errors of Metabolism (IEMs). Rare genetic disorders including Phenylketonuria (PKU), Urea Cycle Disorders, Galactosaemia, Tyrosinaemia (TYRO). MDDA supports and represents families and individuals affected by a genetic Inborn Error of Metabolism whereby treatment involves a medically controlled diet.


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nutricia-na.com

nutricia-na.com nutricia-na.com           
Nutricia North America
Nutricia North America



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msud-support.org

msud-support.org msud-support.org           
Home | MSUD Family Support Group
WELCOME TO THE MSUD FAMILY SUPPORT GROUP       The MSUD Family Support Group is a non-profit volunteer-run organization serving families and...



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newbornscreening.info

newbornscreening.info newbornscreening.info           
newbornscreening.info - Expanded Newborn Screening Using New Technologies, Financial, Ethical, Legal and Social Issues (FELSI)
newbornscreening.info - Expanded Newborn Screening Using New Technologies, Financial, Ethical, Legal and Social Issues (FELSI)


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babysfirsttest.org

babysfirsttest.org babysfirsttest.org           
Baby's First Test | Newborn Screening | Baby Health
Baby's First Test | Newborn Screening | Baby Health


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americangene.com

americangene.com americangene.com           
American Gene Technologies: Developing Gene And Cell Therapies
American Gene Technologies™ (AGT) is a gene and cell therapeutics company with a proprietary lentiviral platform capable of broad applications.


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pkufoundation.com pkufoundation.com           
Attention Required! | Cloudflare



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pkutest.com

pkutest.com pkutest.com           
Attention Required! | Cloudflare



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