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Welcome to PKU News - PKU News

Welcome to PKU News - PKU News

Categories: Health, Health and Wellness
Topics: national pku news, phenylalanine, phenylketonuria, pku, virginia schuett, welcome to pku news

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npkua.org

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Home


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pku.com

pku.com pku.com           
Education and support on your PKU journey | PKU
Personalized support for people living with phenylketonuria (PKU). Get the latest information about the disease, its symptoms, and managing blood Phe levels.



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canpku.org

canpku.org canpku.org           
Canadian PKU and Allied Disorders - Home
Canadian PKU and Allied Disorders - Home


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hgsa.org.au

hgsa.org.au hgsa.org.au           
Human Genetics Society of Australasia - Human Genetics Society of Australasia
Human Genetics Society of Australasia - Human Genetics Society of Australasia


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adultswithpku.org

adultswithpku.org adultswithpku.org           



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newenglandconsortium.org

newenglandconsortium.org newenglandconsortium.org           
New England Consortium of Metabolic Programs
New England Consortium of Metabolic Programs



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nspku.org

nspku.org nspku.org           
Home - The National Society for Phenylketonuria (NSPKU)
The National Society for Phenylketonuria (NSPKU) was founded in 1973 as the national charity for people living with the rare […]


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macpad.org

macpad.org macpad.org           
MACPAD | Home
Get Connected, Get Support - Get Connected With A Support Group Near You! Use The Following Links To Become A Member Of Macpad And The National Pku Alliance...


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lowproliving.com

lowproliving.com lowproliving.com           
Nutricia Low Protein Living Blog
Nutricia Low Protein Living Blog



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pkuconnect.com.au

pkuconnect.com.au pkuconnect.com.au           
PKU Connect
PKU (Phenylketonuria) is an inherited treatable condition where the body has problems breaking down a particular building block of protein (amino acid) called


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espku.org

espku.org espku.org           
Welcome to E.S.PKU
E.S.PKU is the umbrella organization for European Phenylketonuria organizations and hosts an annual conference in a member country.



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howmuchphe.org

howmuchphe.org howmuchphe.org           
HowMuchPhe.org
HowMuchPhe.org: A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels.


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adultmetabolicdiseasesclinic.ca

adultmetabolicdiseasesclinic.ca adultmetabolicdiseasesclinic.ca           
Adult Metabolic Diseases Clinic
Adult Metabolic Diseases Clinic


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cambrooke.com

cambrooke.com cambrooke.com           
Ajinomoto Cambrooke
Ajinomoto Cambrooke is a leader and global innovator in the field of advanced medical nutrition. We are passionate in our pursuit of improving the lives of patients by bringing new therapeutic options to those with therapeutic and chronic medical needs.



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pkuboard.info

pkuboard.info pkuboard.info           
PKUBoard
Biggest International Phenylketonuria Community!


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cookforlove.org

cookforlove.org cookforlove.org           
Just a moment...
Just a moment...


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pkunsw.org.au

pkunsw.org.au pkunsw.org.au           
PKU AssociationPKU NSW
The PKU Association of NSW is here to promote awareness around PKU and to
support individuals and their families. We also support research into the
treatment of Phenylketonuria.


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pkuil.org

pkuil.org pkuil.org           
PKU Organization of Illinois – and Allied Disorders
PKU Organization of Illinois - and Allied Disorders



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robertguthriepku.org

robertguthriepku.org robertguthriepku.org           
Robert Guthrie PKU | PKU
Robert Guthrie PKU | PKU


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southeastgenetics.org

southeastgenetics.org southeastgenetics.org           
Southeast Regional Genetics Network (SERN) | Improving health equity and outcomes in individuals with genetic conditions
Southeast Regional Genetics Network (SERN) | Improving health equity and outcomes in individuals with genetic conditions


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medicalfood.com

medicalfood.com medicalfood.com           
Home - Nutricia Metabolics
Welcome to Nutricia North America. You home for metabolic formula and low protein foods for the dietary management of PKU, MSUD, TYR, HCU, UCD and ...


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mealplansite.com

mealplansite.com mealplansite.com           
The Meal Plan Site - FREE Diet Plans to Suit YOU
The site that offers Meal Plans to suit your diet


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pkuperspectives.com

pkuperspectives.com pkuperspectives.com           
PKU Perspectives
PKU Perspectives offers over 500 low protein foods. I can place just one order and get everything I need for my PKU, CKD, MSUD, Homocystinuria diet.



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excemed.org

excemed.org excemed.org           
EXCEMED - Excellence in Medical Education
Non-profit global organization dedicated to improving the patient’s life through high-impact continuing medical education (CME).


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pkunetwork.org

pkunetwork.org pkunetwork.org           
pkunetwork.org - pkunetwork Resources and Information.
pkunetwork.org is your first and best source for all of the information you’re looking for. From general topics to more of what you would expect to find here, pkunetwork.org has it all. We hope you find what you are searching for!



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meupku.wordpress.com

meupku.wordpress.com meupku.wordpress.com           
Me, You and PKU – a rare disease, a wonderful life
a rare disease, a wonderful life


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georgiapku.org

georgiapku.org georgiapku.org           
HOME | Georgia PKU Connect
HOME | Georgia PKU Connect


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mevalia.com

mevalia.com mevalia.com           
Mevalia's complete range of tasty protein supplement and low protein foods
Mevalia is Dr. Schär’s complete range of protein supplements and food products with low protein content, specifically formulated for the treatment of Phenylketonuria (PKU), other related disorders and for diets which require to be low in protein.


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anpadnews.org

anpadnews.org anpadnews.org           
ANPAD - Arizona Network for PKU and Allied Disorders
Arizona Net for PKU and Allied Disorders


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ccpkuad.org

ccpkuad.org ccpkuad.org           
CCPKUAD
CCPKUAD


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newbornscreening.info

newbornscreening.info newbornscreening.info           
newbornscreening.info - Expanded Newborn Screening Using New Technologies, Financial, Ethical, Legal and Social Issues (FELSI)
newbornscreening.info - Expanded Newborn Screening Using New Technologies, Financial, Ethical, Legal and Social Issues (FELSI)


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wilcoxgoodness.co.nz

wilcoxgoodness.co.nz wilcoxgoodness.co.nz           
Potatoes, onions & carrots | Goodness never tasted better | Wilcox
For four generations we've brought the goodness of the best tasting potatoes, onions and carrots to New Zealand's table. Our potato range Perlas potatoes, Inca Gold potatoes, Piccolos potatoes, Vivaldi Gold and more.



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rarescience.org

rarescience.org rarescience.org           
Rare Science - Accelerating Cures for Rare Kids
Dear RARE Science Community, 

As an organization that cares deeply about our community, we believe it’s our duty to look after each other and those around us during challenging times such as these. RARE Science has been closely monitoring the Covid-19 situation and as an active member in our community support the CDC announcement to wear



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gmdi.org

gmdi.org gmdi.org           
Home


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biomarin.com

biomarin.com biomarin.com           
BioMarin Pharmaceutical Inc.
BioMarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.


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babysfirsttest.org

babysfirsttest.org babysfirsttest.org           
Baby's First Test | Newborn Screening | Baby Health
Baby's First Test | Newborn Screening | Baby Health


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lowproteinconnect.com

lowproteinconnect.com lowproteinconnect.com           
Nutricia.co.uk - Homepage Patients & Carers
Nutricia.co.uk - Homepage Healthcare professionals


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nutricialearningcenter.com

nutricialearningcenter.com nutricialearningcenter.com           
Nutricia Learning Center (NLC)
Nutricia Learning Center (NLC)


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simd.org

simd.org simd.org           

Society for Inherited Metabolic Disorders

Society for Inherited Metabolic Disorders


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pku.ie

pku.ie pku.ie           
Home - PKU
We keep this mailing list in order to share information with you that we think will be useful. We will always keep the details within this mailing list private and secure, and we will never pass this information on to…


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pkubrain.com

pkubrain.com pkubrain.com           
Phenylketonuria (PKU) Information | PKUBrain
Phenylketonuria, or PKU, is a lifelong metabolic disorder with risk of serious neurological consequences. Brain Phe Impact.


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thinkgenetic.com

thinkgenetic.com thinkgenetic.com           
Home | ThinkGenetic
Home | ThinkGenetic


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Homepage - So Delicious Dairy Free
Homepage - So Delicious Dairy Free


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metabolic.ie

metabolic.ie metabolic.ie           
Home - Metabolic
As you may be aware the HSE ICT systems have been severely compromised due to a Cyber attack since Friday. All computers and phones are affected. This also  involves the analysis and reporting of blood results. Please continue to send bloods as frequently as you have been advised by the metabolic team. There will, however …


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meadjohnson.com

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Mead Johnson Nutrition |
Mead Johnson Nutrition |
Food and drink company of the United States, division of Reckitt. Mead Johnson & Company, LLC is an American company that is a leading manufacturer of infant formula, both domestically and globally, with its flagship product Enfamil. It operates as an independent subsidiary of Reckitt. The company dates back to a firm created by Edward Mead Johnson, one of the co-founders of Johnson & Johnson, who created his own business in 1895, which was renamed Mead Johnson & Company in 1905. The company was majority owned by Bristol-Myers Squibb after an acquisition in 1967, but was spun-off in 2009 as an independent firm. Almost products were used by infants and children under 7, But Enfaschool which covers students from childhood to youth under 15 years.

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iamrare.org

iamrare.org iamrare.org           
iamrare.org
Alone we are rare. Together we are strong.®



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paulthomasmd.com

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DrPaulApproved
DrPaulApproved.com & Dr. Paul Thomas MD, brings you the best, and most important research, information, products, blogs and videos, vitamins and nutritional supplements, and provide links to information we feel you should not go without.


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motointeractive.com

motointeractive.com motointeractive.com           
Logo Design - Website Design - Marketing Strategy / Moto Interactive + Branding
Logo, website and package design clients choose Moto because we communicate with consumers in seriously compelling and personal ways.



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nbstrn.org

nbstrn.org nbstrn.org           
Newborn Screening Translational Research Network (NBSTRN)
Newborn Screening Translational Research Network (NBSTRN)



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tennesseepku.org

tennesseepku.org tennesseepku.org           
Tennessee PKU Foundation
Tennessee PKU Foundation



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celticmusicawards.com

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HOME - 2020 - Australian Celtic Music AwardsAustralian Celtic Music Awards
The Australian Celtic Music Awards, honouring the world’s best Celtic musicians, are presented at the annual Australian Celtic Festival.


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pkufoundation.com

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Attention Required! | Cloudflare



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Attention Required! | Cloudflare



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