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FIMARAD - Flière de Santé Maladies Rares

En France, chaque maladie rare touche moins de 30 000 personnes mais du fait de leur nombre cumulé, 3 à 4 millions de français sont concernés directement parmi les 25 millions d’européens touchés. FIMARAD, a pour vocation d’animer et de coordonner les actions entre les acteurs impliqués dans la prise en charge d’un ensemble cohérent de maladies rares.
Categories: Health, Business
Topics: centre de reference, dermatologie, dysplasie, epidermolyse bulleuse, flière de santé maladies rares, hopital necker, ichtyose, maladies bulleuses auto immunes, maladies rares, pemphigus, syndrome de lyell

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