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International XLH Alliance

We are an alliance of patient groups for individuals affected by x-linked hypophosphatemia and related disorders.

Categories: Business, Health and Wellness

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xlhnewstoday.com

xlhnewstoday.com xlhnewstoday.com           
XLH News Today Home - XLH News Today
The Web's Daily Resource for XLH News Today


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xlhlink.eu

xlhlink.eu xlhlink.eu           
Welcome to XLH link
A website focused on sharing the real-life experiences of people with XLH,
plus expert information and new ideas


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xlhuk.org

xlhuk.org xlhuk.org           
XLH UK – Supporting individuals and families with XLH and related disorders
XLH UK - Supporting individuals and families with XLH and related disorders



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xlhlink.com

xlhlink.com xlhlink.com           
Soft and weak bones? Have you heard of X-linked hypophosphatemia (XLH)? Learn more about this disease and its symptoms.
XLHLink is dedicated to providing education and support services for XLH (X-linked hypophosphatemia). Learn about the symptoms of and disease management for this rare skeletal disorder.


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crysvita.com

crysvita.com crysvita.com           
CRYSVITA (burosumab-twza) – Official Site for Patients
CRYSVITA (burosumab-twza) is the only FDA-approved treatment for X-linked hypophosphatemia (XLH), a disease that can lead bones to “soften” and weaken over time.


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phosphatdiabetes.de

phosphatdiabetes.de phosphatdiabetes.de           
XLH Deutschland | Phosphatdiabetes e.V.
Im bundesweit aktiven Verein Phosphatdiabetes e.V. werden Fachinformationen, lebens- und alltagspraktische Hilfen, sowie wertvolle persönliche Erfahrungen im Umgang und in der Bewältigung von Phosphatdiabetes (XLH, X-chromosomal-dominante hypophosphatämische Rachitis) weitergegeben.


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xlhnetwork.org

xlhnetwork.org xlhnetwork.org           
Home :: XLH Network
Home :: XLH Network


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pantherxrare.com

pantherxrare.com pantherxrare.com           
Home - PANTHERx Rare
Home - PANTHERx Rare


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ultrarareadvocacy.com

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Ultragenyx Patient Advocacy - Rare and UltraRare Diseases
At Ultragenyx, we strive to incorporate patient & family voices into everything we do. We're passionate about supporting those with rare & ultra-rare diseases.


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ijmbs.org

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kyowakirin.com

kyowakirin.com kyowakirin.com           
Kyowa Kirin
The Kyowa Kirin Group is a Japanese pharma group that develops innovative specialty drugs, to raise the health and well-being of people around the world. Its flagship business Kyowa Kirin Co., Ltd. creates antibody-based drugs for cancer, kidney disease, and immune system diseases.


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ultragenyx.com

ultragenyx.com ultragenyx.com           
Ultragenyx—Treatment of Rare and Ultrarare Genetic Diseases
Ultragenyx is focused on developing first-ever approved treatments for rare and ultrarare diseases and moving the rare disease community forward.


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rarevoices.org.au

rarevoices.org.au rarevoices.org.au           
Rare Voices Australia
An estimated two million Australians live with a rare disease. Approximately 80% of rare diseases are genetic disorders.


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worldosteoporosisday.org

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World Osteoporosis Day
World Osteoporosis Day


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erknet.org

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endo-ern.eu

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Endo-ERN , European Reference Network on Rare Endocrine Conditions, European Reference Network on Rare Endocrine Conditions. Endo-ERN’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine disorders in Europe, through facilitating knowledge sharing and facilitating related healthcare and research.


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connectgroups.org.au

connectgroups.org.au connectgroups.org.au           
ConnectGroups | helping support groups & individuals
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