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xlhalliance.org

xlhalliance.org xlhalliance.org           
International XLH Alliance
We are an alliance of patient groups for individuals affected by x-linked hypophosphatemia and related disorders.


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Categories: Business, Health and Wellness
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xlhuk.org

xlhuk.org xlhuk.org           
XLH UK – Supporting individuals and families with XLH and related disorders
XLH UK - Supporting individuals and families with XLH and related disorders



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xlhlink.eu

xlhlink.eu xlhlink.eu           
Welcome to XLH link
A website focused on sharing the real-life experiences of people with XLH,
plus expert information and new ideas


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xlhlink.com

xlhlink.com xlhlink.com           
Soft and weak bones? Have you heard of X-linked hypophosphatemia (XLH)? Learn more about this disease and its symptoms.
XLHLink is dedicated to providing education and support services for XLH (X-linked hypophosphatemia). Learn about the symptoms of and disease management for this rare skeletal disorder.


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crysvita.com

crysvita.com crysvita.com           
CRYSVITA (burosumab-twza) – Official Site for Patients
CRYSVITA (burosumab-twza) is the only FDA-approved treatment for X-linked hypophosphatemia (XLH), a disease that can lead bones to “soften” and weaken over time.


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xlhnetwork.org

xlhnetwork.org xlhnetwork.org           
Home :: XLH Network
Home :: XLH Network


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ultrarareadvocacy.com

ultrarareadvocacy.com ultrarareadvocacy.com           
Ultragenyx Patient Advocacy - Rare and UltraRare Diseases
At Ultragenyx, we strive to incorporate patient & family voices into everything we do. We're passionate about supporting those with rare & ultra-rare diseases.


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rbdalliance.org

rbdalliance.org rbdalliance.org           
Rare Bone Disease Alliance
Rare Bone Disease Alliance


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metabolicsupportuk.org

metabolicsupportuk.org metabolicsupportuk.org           
Home - Metabolic Support UK
Metabolic Support UK is the leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients and families worldwide.


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ijmbs.org

ijmbs.org ijmbs.org           



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pantherxrare.com

pantherxrare.com pantherxrare.com           
Home - PANTHERx Rare
Home - PANTHERx Rare


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ultragenyx.com

ultragenyx.com ultragenyx.com           
Ultragenyx—Treatment of Rare and Ultrarare Genetic Diseases
Ultragenyx is focused on developing first-ever approved treatments for rare and ultrarare diseases and moving the rare disease community forward.


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kyowakirin.com

kyowakirin.com kyowakirin.com           
Kyowa Kirin
The Kyowa Kirin Group is a Japanese pharma group that develops innovative specialty drugs, to raise the health and well-being of people around the world. Its flagship business Kyowa Kirin Co., Ltd. creates antibody-based drugs for cancer, kidney disease, and immune system diseases.


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ects2020.org

ects2020.org ects2020.org           
Home - ECTS Congress
Home - ECTS Congress


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erknet.org

erknet.org erknet.org           
ERKNet: ERKNet
The European Rare Kidney Disease Reference Network


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findacure.org.uk

findacure.org.uk findacure.org.uk           
Findacure | 7,000 rare diseases, 1 common goal
Findacure | 7,000 rare diseases, 1 common goal


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wco-iof-esceo.org

wco-iof-esceo.org wco-iof-esceo.org           
WCO: World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases
WCO 26-29 August 2021 London, United Kingdom. IOF and ESCEO have worked in partnership for several years to develop a unique meeting programme.


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endo-ern.eu

endo-ern.eu endo-ern.eu           
Endo-ERN | European Reference Network on Rare Endocrine Conditions
Endo-ERN , European Reference Network on Rare Endocrine Conditions, European Reference Network on Rare Endocrine Conditions. Endo-ERN’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine disorders in Europe, through facilitating knowledge sharing and facilitating related healthcare and research.


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Categories: Health/Conditions and Diseases, Health/Medicine, Health/Organizations, Health, Business
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rde.ac

rde.ac rde.ac           
:: RDE :: Restorative Dentistry & Endodontics
:: RDE :: Restorative Dentistry & Endodontics


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worldosteoporosisday.org

worldosteoporosisday.org worldosteoporosisday.org           
World Osteoporosis Day
World Osteoporosis Day


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bone-abstracts.org

bone-abstracts.org bone-abstracts.org           
Bone Abstracts | Bone Abstracts
Searchable abstracts of presentations at key conferences on calcified tissues. It is also a permanent, citable record, freely available to all without access restrictions.


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aah.org

aah.org aah.org           
Home | Advocate Aurora Health
Choose from over 8,100 physicians and build a lifelong relationship that helps you connect to your healthy place. Start your healthy journey with the 10th largest nonprofit health system in the U.S.
Sobriety-focused mutual help fellowship. Alcoholics Anonymous (AA) is an international peer-led mutual aid fellowship meeting online and in-person dedicated to abstinence-based recovery from alcoholism through its spiritually-inclined Twelve Step program. Following its Twelve Traditions, AA is non-professional and non-denominational as well as apolitical and unaffiliated. In 2020 AA estimated its worldwide membership to be over two million, with 75% of those in the U.S. and Canada.Regarding its effectiveness, a 2020 scientific review saw clinical interventions encouraging increased AA participation resulted in higher abstinence rates over other clinical interventions, and most studies in the review found that AA led to lower health costs. Although AA holds no opinion on the disease model of alcoholism—or on any medical matter, its association with AA is due to many members popularizing it.AA dates its start to 1935 with Bill Wilson (Bill W) first commiserating alcoholic to alcoholic with Bob Smith (Dr. Bob) who, along with Wilson, was active in AA's immediate precursor the Christian revivalist Oxford Group.

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kyowa-kirin.com

kyowa-kirin.com kyowa-kirin.com           
Kyowa Kirin
The Kyowa Kirin Group is a Japanese pharma group that develops innovative specialty drugs, to raise the health and well-being of people around the world. Its flagship business Kyowa Kirin Co., Ltd. creates antibody-based drugs for cancer, kidney disease, and immune system diseases.


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